Family interactions in childhood leukemia: an exploratory descriptive study
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A child’s cancer not only affects the child in question, but also their family members and even closes relatives and friends. The nature of this disease is such that, while imposing a high level of care workload on the family, it also affects various family aspects including personal, familial, and social interactions and relationships, as well as family functioning. This study aims to describe family interactions in childhood leukemia.
This study was an exploratory descriptive study, conducted on 58 participants (40 family members and 18 members of the health team), with purposeful sampling and semi-structured interviews—63 personal interviews and four group interviews—in the research context of the Cancer Hospital in Isfahan, 2016–2017. Data analysis in this study was carried out with qualitative content analysis using the Graneheim method.
In the data analysis, four main categories and 13 subcategories were revealed. The first category, changes in roles, included the subcategories of super caregiver mother, supportive super father, role shift, self and others’ forgetfulness, and confusion in roles and tasks; the second category, changes in interpersonal relationships, included the subcategories of changes in spousal relationships, changes in parent-child relationships, and changes in relationships between children; the third category, changes in social interactions, included the subcategories of changes in relationships with relatives, changes in relationships with peers, changes in relationships with the therapy team, and changes in interaction with supportive social networks; and the fourth category, changes in relationship with God, included the subcategories of spiritual bond and spiritual illness.
Regarding the findings of this study, it is expected that health system policymakers in the country, while striving to strengthen the positive aspect of changes in family relationships and interactions, will develop and execute operational, comprehensive, and society-based plans in order to eliminate the barriers and problems of relationships within the family, as well as in relation to the larger community, taking into consideration the family’s cultural and social beliefs.
KeywordsChild Leukemia Interaction Family Qualitative study Iran
The authors thank the participants in the university training center attached to the IUMS in which the study was conducted; the financial support of the IUMS Vice-President for Research is sincerely appreciated as well.
This research was conducted with the financial support of the Vice-Chancellor for Research, Isfahan University of Medical Sciences (IUMS, research project number 395268)
Compliance with ethical standards
This study was approved by the Ethics Committee of the Isfahan University of Medical Sciences (No. IR.MUI.REC.1395030268). Written and oral consent was obtained from the participants. The location and time of the interviews were determined according to the participants’ comments. They were also assured of the confidentiality of their information and the right to resign from the research. Their names were classified and a code was assigned to each participant so as to provide access to the text of the interviews in the phases of analysis and report. Participants with negative and distressing experiences were psychologically supported by being referred to psychologists.
Conflict of interest
The authors declare that they have no conflict of interest.
- 8.Aghajani H, Eatemad K, Goya M, Ramezani R, Modirian M, Nadali F (2012) Iranian annual of national cancer registration report. Tehran: nashre javan 154 pGoogle Scholar
- 9.Fyta K (2008) Parenting a child with leukemia: Mothers' and fathers' sense of competence and orientation towards uncertainty (Order No. NR47562). Available from ProQuest Dissertations & Theses A ProQuest Dissertations & Theses Global. (304799911). Retrieved from https://search.proquest.com/docview/304799911?accountid=41305 or https://papyrus.bib.umontreal.ca/mwg-internal/de5fs23hu73ds/progress?id=DBIWHUPr3EgQ-IzxH5qNrGOmM7oRHq3qKv_5TSMk98w
- 10.Valizadeh L, Joonbakhsh F, Pashaee S (2014) Determinants of care giving burden in parents of child with cancer at Tabriz children medical and training center. Journal of Clinical Nursing and Midwifery 3(2):13–20Google Scholar
- 15.Kuan HY (2000) Identifying the needs of Chinese family caregivers of children with cancer in Hong Kong (Order No. 9975716). Available from Nursing & Allied Health Database; ProQuest Dissertations & Theses A ProQuest Dissertations & Theses Global. (304676770). Retrieved from https://search.proquest.com/docview/304676770?accountid=41305 or http://hdl.handle.net/10397/4161
- 18.Hydary L, Mokhtari Hesari P (2015) Common breast cancer family care giving problems. Iran J Breast Dis 8(2):7–14Google Scholar
- 20.Oliveira M, Campos M, Padilha J, Pereira F, Sousa P (2011) Exploring the family caregiving phenomenon in nursing documentation. Online J Nurs Inform 15(1). http://ojni.org/issues/?p=137
- 22.Grove SK, Burns N, Gray J (2014) Understanding nursing research: building an evidence-based practice: St. Louis, Missouri: ElsevierGoogle Scholar
- 24.Denzin NK, Lincoln YS (2011) The sage handbook of qualitative research. Thousand Oaks [etc.]: SageGoogle Scholar
- 25.Hosoda T (2014) The impact of childhood cancer on family functioning: a review. Graduate Student Journal of Psychology 15:18–30Google Scholar
- 37.Castor C, Landgren K, Hansson H, Kristensson Hallström I (2018) A possibility for strengthening family life and health: family members’ lived experience when a sick child receives home care in Sweden. Health & Social Care in the Community 26(2):224–231Google Scholar
- 45.Hekmatpou D, Eghbali A, Memari F (2013) The experiences of parents of children with leukemia: a qualitative research. J Arak Uni Med Sci 15(9):28–40Google Scholar