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Prevalence and correlates of health information-seeking among Hispanic and non-Hispanic childhood cancer survivors

Supportive Care in Cancer volume 26, pages 1305–1313 (2018)Cite this article

Abstract

Purpose

Childhood cancer survivors (CCS) report high unmet information needs. This study examined the prevalence of cancer-related information-seeking among CCS and investigated associations between information-seeking behavior and positive health outcomes such as follow-up care.

Methods

Participants (n = 193) were young adult CCS diagnosed with cancer in Los Angeles County, 54% of Hispanic ethnicity, with a mean age of 19.87, in remission, and at least 2 years from completion of treatment. CCS were asked where they accessed health information related to their cancer with response options categorized into four information domains: hospital resources, social media, other survivors, and family members. Multivariable logistic regression was used to assess variables associated with each information domain, including sociodemographics, post-traumatic growth (i.e., reporting positive changes since cancer diagnosis), health care engagement, level of education, and health insurance status.

Results

Hospital resources were the most commonly accessed information domain (65.3%), and CCS of Hispanic ethnicity (vs. non-Hispanic) were more likely to access this source. Seeking information from other cancer survivors was positively associated with follow-up care and post-traumatic growth. Hispanic CCS were marginally less likely to seek information from other survivors and family than non-Hispanics.

Conclusions

While CCS obtain information from a variety of sources, hospital resources are an important site for access, particularly for individuals of Hispanic ethnicity. Information sharing between survivors may promote positive health care engagement; however, Hispanic CCS may be less likely to utilize this resource and may face barriers in information sharing with other cancer survivors.

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Funding

This paper was supported by the Whittier Foundation and 1R01MD007801 from the National Institute on Minority Health and Health Disparities of the National Institutes of Health. Additional support was provided by P30CA014089 and T32CA009492 from the National Cancer Institute of the National Institutes of Health. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.

Author information

Affiliations

  1. Department of Preventive Medicine, Keck School of Medicine of the University of Southern California, 2001 N Soto Street, Los Angeles, CA, 90032, USA

    Kimberly A. Miller, Cynthia N. Ramirez, Katherine Y. Wojcik, Anamara Ritt-Olson, Lourdes Baezconde-Garbanati, Ann S. Hamilton & Joel E. Milam

  2. Department of Dermatology, Keck School of Medicine of the University of Southern California, Los Angeles, CA, USA

    Kimberly A. Miller

  3. Department of Pediatrics, Keck School of Medicine of the University of Southern California, Los Angeles, CA, USA

    Stefanie M. Thomas & David R. Freyer

  4. Children’s Center for Cancer and Blood Diseases, Children’s Hospital Los Angeles, Los Angeles, CA, USA

    Stefanie M. Thomas & David R. Freyer

  5. USC Norris Comprehensive Cancer Center, Los Angeles, CA, USA

    David R. Freyer

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  1. Kimberly A. Miller
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  2. Cynthia N. Ramirez
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Correspondence to Kimberly A. Miller.

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All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards. This article does not contain any studies with animals performed by any of the authors.

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Informed consent was obtained from all individual participants included in the study.

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Miller, K.A., Ramirez, C.N., Wojcik, K.Y. et al. Prevalence and correlates of health information-seeking among Hispanic and non-Hispanic childhood cancer survivors. Support Care Cancer 26, 1305–1313 (2018). https://doi.org/10.1007/s00520-017-3956-5

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  • DOI: https://doi.org/10.1007/s00520-017-3956-5

Keywords

  • Child
  • Adolescent
  • Young adult
  • Cancer
  • Survivorship
  • Hispanic ethnicity
  • Health information-seeking