Sexual dysfunction among patients with colorectal cancer is frequently reported. Studies examining patients’ sexual health care needs are rare. We examined the sexual health care needs after colorectal cancer treatment according to patients, partners, and health care professionals (HCPs). Factors that impede or facilitate the quality of this care were identified.
Participants were recruited from three Dutch hospitals: St. Elisabeth, TweeSteden, and Catharina hospitals. Patients (n = 21), partners (n = 9), and 10 HCPs participated in eight focus groups.
It is important to regularly evaluate and manage sexual issues. This does not always occur. Almost all participants reported a lack of knowledge and feelings of embarrassment or inappropriateness as barriers to discuss sexuality. HCPs reported stereotypical assumptions regarding the need for care based on age, sex, and partner status. The HCPs debated on whose responsibility it is that sexuality is discussed with patients. Factors within the organization, such as insufficient re-discussion of sexuality during (long-term) follow-up and unsatisfactory (knowledge of the) referral system impeded sexual health care. The HCPs could facilitate adequate sexual health care by providing patient-tailored information and permission to discuss sex, normalizing sexual issues, and establishing an adequate referral system. It is up to the patients and partners to demarcate the extent of sexual health care needed.
Our findings illustrate the need for patient-tailored sexual health care and the complexity of providing/receiving this care. An adequate referral system and training are needed to help HCPs engage in providing satisfactory sexual health care.
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This research is supported by the Dutch Cancer Society (UvT 2009–4495) to Brenda Den Oudsten, Jan Anne Roukema, and Jolanda De Vries. We thank all patients, partners, and HCPs for their participation. In addition, we thank the following hospitals for their cooperation: Catharina Hospital (Eindhoven), St. Elisabeth Hospital (Tilburg), and TweeSteden Hospital (Tilburg and Waalwijk). Finally, we would like to thank Marianne De Vries, Marieke Van Der Sanden, and Lindy Arts for their help in transcribing the focus groups verbatim and for their assistance during the focus groups.
Conflict of interest
None of the authors have conflicts of interest. The authors have full control of all primary data, and if needed, we allow the journal to review the data.
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Traa, M.J., De Vries, J., Roukema, J.A. et al. The sexual health care needs after colorectal cancer: the view of patients, partners, and health care professionals. Support Care Cancer 22, 763–772 (2014). https://doi.org/10.1007/s00520-013-2032-z
- Health care needs
- Colorectal cancer
- Focus group