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Validation of the “Good2Go”: the first French-language transition readiness questionnaire

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European Journal of Pediatrics Aims and scope Submit manuscript

Abstract

The use of transition readiness questionnaires is strongly recommended in adolescents with chronic conditions. The aim of our study was to validate “Good2Go,” the first French-language transition readiness questionnaire. We analyzed the data from 2 multicentric studies (Canada and France) involving adolescents with chronic conditions (type 1 diabetes, inflammatory bowel disease, cystic fibrosis, epilepsy, juvenile idiopathic arthritis). Content and construct validity were examined using factorial and Rasch analysis (structural validity), Spearman’s correlation, and Mann-Whitney test (external validity). Cronbach’s α and intra-class correlation coefficients explored reliability. Cognitive interviews assessed wording comprehension and item appropriateness. Good2Go was completed by 321 participants (boys = 51%; mean age = 16.4 years (standard deviation = 1.5; min = 14.0; max = 18.0); Canada = 51.1%). Factor analysis identified 3 domains: “health self-advocacy,” “knowledge about chronic conditions,” and “self-management skills.” The 3-domain structure showed a satisfying Rasch fit, internal consistency, and test-retest reliability. Good2Go domain scores were significantly higher in participants over 17 years of age, indicating satisfactory external validity.

Conclusion: Good2Go is a valid 20-item questionnaire to assess transition readiness in adolescents with chronic conditions and may be useful in routine care to propose individually tailored preparation for their transfer to adult healthcare. Further research is now needed to analyze correlation between domain scores and success of transition.

What is Known:

• In adolescents with chronic conditions, the use of transition readiness questionnaires is recommended to propose individually tailored preparation for their transfer to adult healthcare.

• However, no French-language questionnaire has been so far validated.

What is New:

• Based on a complete validation methodology, this study highlights that the French-language 20-items Good2Go questionnaire has good psychometric properties.

• It explores all transition key points though 3 scored domains: “health self-advocacy”, “knowledge about chronic disease” and “self-management skills”.

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Abbreviations

RMEF:

Réseau Mère-Enfant de la Francophonie

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Acknowledgments

The authors wish to thank Priscilla Boizeau and Damir Mohamed for their participation in data analysis, and Andrea Limbourg and Nick Barton for proofreading the manuscript. We are also grateful to the following: the RECaP Network – Perceived Health Measurement Working Group (non-author contributors: Jonathan Epstein, Francis Guillemin, Philippe Martin, Laetitia Ricci, Michel Spodenkiewicz, Amandine Verga-Gérard), for help with designing the study and analyzing the data sets; the RMEF and its former Adolescence group, local research coordinator, including Caroline Pesant, Jo Anne Couillard and the Pass’Age study working group for their participation in data collection; the Good2Go Transition Program team at the Hospital for Sick Children (Toronto) for allowing us to use their English Good2Go questionnaire; and the research program La Personne en Médecine-Université Paris Diderot for financial support.

Funding

The research was funded by the research program La Personne en Médecine-Université Paris Diderot.

Author information

Authors and Affiliations

  1. Plateforme de transition Ad’venir, Unité de médecine d’adolescent, Assistance Publique-Hôpitaux de Paris, Hôpital Robert Debré, 75019, Paris, France

    Hélène Mellerio, Paul Jacquin & Sophie Guilmin-Crépon

  2. Université Paris Diderot, Sorbonne Paris Cité, ECEVE, UMRS 1123, 75010, Paris, France

    Hélène Mellerio, Enora Le Roux, Corinne Alberti & Sophie Guilmin-Crépon

  3. INSERM, ECEVE U1123 and CIC-EC, CIC 1426, 75010, Paris, France

    Hélène Mellerio, Enora Le Roux, Corinne Alberti & Sophie Guilmin-Crépon

  4. Unité d’épidémiologie clinique, Assistance Publique-Hôpitaux de Paris, Hôpital Robert Debré, 75019, Paris, France

    Hélène Mellerio, Enora Le Roux, Corinne Alberti & Sophie Guilmin-Crépon

  5. French Clinical Research Group in Adolescent Medicine and Health, 75014, Paris, France

    Hélène Mellerio & Paul Jacquin

  6. RECaP Network–Perceived health measurement Working Group, Paris, France

    Hélène Mellerio, Enora Le Roux, Corinne Alberti & Hervé Devilliers

  7. Service de chirurgie viscérale et digestive, Centre Hospitalier René Dubos, 95303, Pontoise, France

    Nelson Trelles

  8. Axe Santé des Populations et Pratiques Optimales en Santé, Centre de recherche du CHU de Québec, Québec, QC, G1E 6W2, Canada

    Richard Belanger

  9. Département de pédiatrie, Centre mère-enfant Soleil du CHU de Québec, Université Laval, Quebec, Canada

    Richard Belanger

  10. Service d’Endocrinologie et de Diabétologie pédiatrique, Assistance Publique-Hôpitaux de Paris, Hôpital Robert Debré, 75019, Paris, France

    Nadia Tubiana-Rufi & Sophie Guilmin-Crépon

  11. Département de pédiatrie, CHU Saint Justine, Montréal, QC, Canada

    Chantal Stheneur

  12. Faculté de médecine, Université de Montréal, Quebec, Canada

    Chantal Stheneur

  13. Service de Médecine interne et Maladies systémiques (Médecine interne 2), Hôpital François-Mitterrand, 21079, Dijon cedex, France

    Hervé Devilliers

Authors
  1. Hélène Mellerio
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  2. Paul Jacquin
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  3. Nelson Trelles
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  4. Enora Le Roux
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  5. Richard Belanger
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  6. Corinne Alberti
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  7. Nadia Tubiana-Rufi
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  8. Chantal Stheneur
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  9. Sophie Guilmin-Crépon
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  10. Hervé Devilliers
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Contributions

Dr. Mellerio conceptualized and designed the study, drafted the initial manuscript, and reviewed and revised the manuscript.

Dr. Jacquin conceptualized and designed the study, collected data, conducted the cognitive interviews and reviewed and revised the manuscript.

Dr. Trelles conceptualized and designed the study, carried out the statistical analyses, and critically reviewed the manuscript.

Prof. Alberti, and Drs. Guilmin-Crépon, Le Roux, Tubiana-Rufi conceptualized and designed the study and critically reviewed the manuscript.

Dr. Belanger and Dr. Stheneur coordinated and supervised data collection, and critically reviewed the manuscript.

Dr. Devilliers conceptualized and designed the study, carried out the statistical analyses, drafted the initial manuscript, and reviewed and revised the manuscript.

All authors approved the final manuscript as submitted and agree to be accountable for all aspects of the work.

Corresponding author

Correspondence to Hélène Mellerio.

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Conflict of interest

The authors declare that they have no conflict of interest.

Ethical approval

This article does not contain any studies with human participants or animals performed by any of the authors.

Informed consent

Informed consent was obtained from all individual participants included in the study.

Additional information

Communicated by Nicole Ritz

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Mellerio, H., Jacquin, P., Trelles, N. et al. Validation of the “Good2Go”: the first French-language transition readiness questionnaire. Eur J Pediatr 179, 61–71 (2020). https://doi.org/10.1007/s00431-019-03450-4

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