Agreement assessment of key maternal and newborn data elements between birth registry and Clinical Administrative Hospital Databases in Ontario, Canada
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Since 2012, BORN Ontario, a maternal-newborn registry, has collected data on every birth in Ontario. To ensure data quality, we assessed the reliability of key elements collected in BORN by comparing these with like data elements in the Canadian Institute for Health Information-Discharge Abstract Database (CIHI-DAD).
We used provincial health card numbers to deterministically link live or stillbirth records and their corresponding mothers’ records in the BORN database to the CIHI-DAD in the fiscal years 2012–2013 to 2014–2015. Percentage agreement and Cohen Kappa statistics were used to assess agreement on main elements in both databases.
The percentage agreement and Kappa coefficients were 99.98% and 0.740 (95% CI: 0.677–0.803) on live/stillbirth, respectively. The Kappa coefficients for infant sex, gestational age at birth, induction of labour, and caesarean birth were 0.989 (95% CI: 0.988–0.989), 0.920 (95% CI: 0.919–0.920), 0.782 (95% CI: 0.780–0.785), and 0.995 (95% CI: 0.995–0.996), respectively. Kappa agreement for the number of fetuses in a pregnancy was 0.979 (95% CI: 0.977–0.981). Percentage agreement was very high for infants’ birthdates (99.9%), infant postal codes (91.8%), infants’ birth weight in grams (95.5%), and mothers’ dates of birth (99.1%).
Overall, the BORN and CIHI-DAD databases had concordance on key birth and maternal data elements; however, additional work is needed to understand discrepancies identified.
KeywordsThe BORN database The Canadian Institute for Health Information Discharge Abstract Database (CIHI-DAD) Data quality Agreement Kappa test
We thank all BORN staff, especially Ms. Jessica Reszel, Ms. Catherine Riddell, Ms. Farzana Yasmin, Ms. Vivian Holmberg, Dr. Jill Wiley and Dr. Mary (Yanfang) Guo for their excellent comments and editing on this manuscript. We also thank CIHI for providing the CIHI-DAD data to BORN.
Q Miao: project development, data management and analysis, manuscript writing and editing. DB Fell: project development, manuscript writing and editing. S Dunn: manuscript writing and editing. AE Sprague: project development, manuscript writing and editing.
Compliance with ethical standards
Conflict of interest
The authors declare that there is no conflict of interest.
Parts of this material are based on data and information compiled and provided by CIHI. However, the analyses, conclusions, opinions and statements expressed herein are those of the author(s), and not necessarily CIHI.
As a quality assurance project, this data quality assessment was exempt from Research Ethics Board review in Canada.
- 1.Sprague AE, Sidney D, Darling EK, Wagner V, Soderstrom B, Rogers J, Graves E, Coyle D, Sumner A, Holmberg V, Khan B, Walker MC (2018) Outcomes for the first year of Ontario’s Birth Center demonstration project. J Midwifery Womens Health 63(5):532–540. https://doi.org/10.1111/jmwh.12884 CrossRefGoogle Scholar
- 2.Dunn S, Sprague AE, Grimshaw JM, Graham ID, Taljaard M, Fell D, Peterson WE, Darling E, Harrold J, Smith GN, Reszel J, Lanes A, Truskoski C, Wilding J, Weiss D, Walker M (2016) A mixed methods evaluation of the maternal-newborn dashboard in Ontario: dashboard attributes, contextual factors, and facilitators and barriers to use: a study protocol. Implement Sci 11:59. https://doi.org/10.1186/s13012-016-0427-13 CrossRefGoogle Scholar
- 3.Dunn S, Sprague A, Fell D, Dy J, Harrold J, Lamontagne B, Walker M (2013) The use of a quality indicator to reduce elective repeat caesarean section for low-risk women before 39 weeks’ gestation: the Eastern Ontario Experience. J Obstet Gynaecol Can 35(4):306–316. https://doi.org/10.1016/S1701-2163(15)30957-9 CrossRefGoogle Scholar
- 4.Canadian Institute for Health Information (CIHI) (2016) Data quality study of the 2015–2016 Discharge Abstract Database: a focus on hospital harm 2016. https://secure.cihi.ca/free_products/DAD_15_16_Reab_Report_EN.pdf. Accessed 22 Oct 2018.
- 5.Canadian Institute for Health Information (CIHI) (1996–2018) Discharge Abstract Database Metadata (DAD). https://www.cihi.ca/en/discharge-abstract-database-metadata. Accessed 22 Oct 2018.
- 6.Canadian Institute for Health Information (CIHI) (1996–2019). DAD Data Elements 2015–2016. p. 2015–6. https://secure.cihi.ca/estore/productSeries.htm?pc=PCC189&_ga=2.107224642.115153162.1540238008-2019196711.1518113758. Accessed 22 Oct 2018.
- 7.Dunn S, Bottomley J, Ali A, Walker M (2011) 2008 Niday perinatal database quality audit: report of a quality assurance project. Chronic Dis Inj Can 32(1):32–42Google Scholar
- 8.BORN Ontario (2013) BORN Data Quality Framework. https://datadictionary.bornontario.ca/data-quality/. Accessed 22 Oct 2018.
- 10.Viera AJ, Garrett JM (2015) Understanding interobserver agreement: the kappa statistic. Fam Med 37(5):360–363Google Scholar
- 11.Government of Canada (2014) Ethical Conduct for Research Involving Humans. https://www.pre.ethics.gc.ca/eng/policy-politique/initiatives/tcps2-eptc2/default/. Accessed 22 Oct 2018.
- 13.Joseph KS, Fahey J (2009) Validation of perinatal data in the Discharge Abstract Database of the Canadian Institute for Health Information. Chronic Dis Can 29(3):96–100Google Scholar
- 14.Statistics Canada (2005) Data quality, concepts and methodology, Database, Vital Statistics - Stillbirth. 2002. https://www150.statcan.gc.ca/n1/pub/84f0211x/2005000/4153052-eng.htm. Accessed 22 Oct 2018.
- 15.Newfoundland and Labrador Centre for Health Information (2014) Provincial standard related to stillborn abstracting. https://www.nlchi.nl.ca/images/PDFs/Provincial%20Standard%20for%20Stillborn%20Abstracting%202014.pdf. Accessed 22 Oct 2018.
- 16.Canadian Institute for Health Information (CIHI) (2015) International Statistical Classification of Diseases and Related Health Problems, Tenth Revision. https://www.cihi.ca/en/icd_volume_one_2015_en.pdf. Accessed 22 Oct 2018.
- 17.Hanley GE, Munro S, Greyson D, Gross MM, Hundley V, Spiby H, Janssen PA (2016) Diagnosing onset of labor: a systematic review of definitions in the research literature. BMC Pregnancy Childbirth. 16:71. https://www.ncbi.nlm.nih.gov/pubmed/27039302
- 18.Lange I, Ab C, Lee L, Bc V, Muise S, On ST (2013) Induction of labour. 296:1–18. https://sogc.org/wp-content/uploads/2013/08/September2013-CPG296-ENG-Online_REV-D.pdf. Accessed 22 Oct 2018.
- 20.BORN Ontario (2018) BORN Data Dictionary. https://datadictionary.bornontario.ca/. Accessed 22 Oct 2018.
- 22.Dusetzina SB, Tyree S, Meyer AM, Meyer A, Green L, Carpenter WR (2014) Linking data for health services research: a framework and instructional guide. Agency for Healthcare Research and Quality, MarylandGoogle Scholar
- 24.Laganà AS, Giordano D, Loddo S, Zoccali G, Vitale SG, Santamaria A, Buemi M, D'Anna R (2017) Decreased Endothelial Progenitor Cells (EPCs) and increased Natural Killer (NK) cells in peripheral blood as possible early markers of preeclampsia: a case-control analysis. Arch Gynecol Obstet 295:867–872. https://doi.org/10.1007/s00404-017-4296-x CrossRefGoogle Scholar