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Frontotemporale Demenz: Besondere Probleme für die Angehörigen

Frontotemporal dementia: specific problems for caregivers

  • BEITRAG ZUM THEMENSCHWERPUNKT
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Zusammenfassung

Die Frontotemporale Demenz (FTD) ist eine vergleichsweise seltene neurodegenerative Erkrankung. Die Symptome setzen meist im Präsenium ein; im Vordergrund des klinischen Bildes stehen Verhaltensauffälligkeiten sowie Persönlichkeitsveränderungen, während kognitive Beeinträchtigungen anfangs nur gering ausgeprägt sind. Daher werden die üblicherweise auf die Alzheimer–Krankheit, deren Symptome, Verlauf und die damit zusammenhängenden Probleme zugeschnittenen Interventionen für Angehörige, vor allem expertengeleitete Beratungsprogramme und Selbsthilfegruppen, den Bedürfnissen der Bezugspersonen von Patienten mit FTD nicht gerecht. Im vorliegenden Beitrag geben wir einen Überblick über die klinischen Merkmale der FTD, stellen wir die besonderen Schwierigkeiten und Belastungen dar, mit denen die Angehörigen dieser Demenzkranken zu kämpfen haben und beschreiben neuartige Interventionen für diese Gruppe von pflegenden Familienmitgliedern.

Summary

Frontotemporal dementia is a relatively rare neurodegenerative disease. In the majority of cases the onset is at a presenile age, and changes of behavior as well as alterations of personality and social conduct are predominant symptoms whereas cognitive deficits are mild. Therefore interventions for caregivers including self–help groups and educational programs which are usually tailored to Alzheimer’s disease often do not meet the needs of caregivers of patients with FTD. The present paper reviews the clinical features of FTD, outlines the specific problems and burdens that caregivers are faced with, and describes novel interventions for this group of family caregivers.

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Authors and Affiliations

  1. Klinik und Poliklinik für Psychiatrie der TU München, Ismaninger Str. 22, 81675, München, Germany

    Janine Diehl,  H. Förstl &  A. Kurz

  2. Deutsche Alzheimer Gesellschaft, Friedrichstraße 236, 10969, Berlin, Germany

    S. Jansen

Authors
  1. Janine Diehl
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  2. H. Förstl
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  3. S. Jansen
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  4. A. Kurz
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Correspondence to Janine Diehl.

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Diehl, J., Förstl, H., Jansen, S. et al. Frontotemporale Demenz: Besondere Probleme für die Angehörigen. Z Gerontol Geriat 37, 301– 306 (2004). https://doi.org/10.1007/s00391-004-0202-9

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  • DOI: https://doi.org/10.1007/s00391-004-0202-9

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