Skip to main content

Advertisement

SpringerLink
Log in

Postoperative complications in adults with anorectal malformation: a need for transition. German Network for Congenital Uro-REctal Malformations (CURE-Net)

  • Original Article
  • Published:
Pediatric Surgery International Aims and scope Submit manuscript

Abstract

Purpose

The aim of the German Network for Congenital Uro-REctal malformations (CURE-Net) is to collect data of affected patients with anorectal malformation (ARM) to investigate molecular causes, clinical implications and psychosocial outcome. The current issue was to examine the transition to adulthood in adults with ARM and to explore condition-related needs and skills required.

Methods

This qualitative study is part of a larger multi-center study of clinical queries and quality of life in patients with ARM. The guided interview focused on the analysis of medical data and personal questionnaires.

Results

Interviews were completed with 55 (23 females, 32 males) participants, age ranging from 18 to 56 years. Twenty-one patients suffered from mucosal prolapse, 18 patients had had megasigmoid/megacolon. Relevant stenosis of the neo-anus occurred in 13 (42 %) males and 4 (18 %) females, permanent neurogenic bladder dysfunction in 10 (32 %) males and 4 (18 %) females, recurrent urinary tract infections in 10 (32 %) males and 13 (59 %) females, latex allergy in 10 (32 %) males and 7 (32 %) females. Thirty-seven (70 %) patients had to be reoperated. Forty-one (75 %) patients needed means of aftercare to achieve social continence.

Conclusion

The study wants to contribute to a better understanding of the challenges of transition for adults with ARM.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Log in via an institution

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Institutional subscriptions

Similar content being viewed by others

References

  1. Hartman EE, Sprangers MA, Visser MR, Oort FJ, Hanneman MJ, van Heurn LW, de Langen ZJ, Madern GC, Rieu PN, van der Zee DC, Looyaard N, Aronson DC (2005) Anorectal malformations: does healthcare meet the needs? J Pediatr Gastroenterol Nutr 41(2):210–215

    Article  PubMed  Google Scholar 

  2. Granoa C, Aminoff D, Lucidic F, Violani C (2011) Long-term disease-specific quality of life in adult anorectal malformation patients. J Pediatr Surg 46:691–698

    Article  Google Scholar 

  3. Brindis CD, Ralph LJ (2011) Critical junctures: assuring healthy outcomes for adolescents in the new millennium. Adolesc Med State Art Rev 22(3):341–366 ix. Review

    PubMed  Google Scholar 

  4. Hanneman MJ, Sprangers MA, De Mik EL, Ernest van Heurn LW, De Langen ZJ, Looyaard N, Madern GC, Rieu PN, van der Zee DC, van Silfhout M, Aronson DC (2001) Quality of life in patients with anorectal malformation or Hirschsprung’s disease: development of a disease-specific questionnaire. Dis Colon Rectum 44(11):1650–1660

    Article  PubMed  CAS  Google Scholar 

  5. Brennan LJ, Rolfe PM (2011) Transition from pediatric to adult health services: the perioperative care perspective. Paediatr Anaesth 21(6):630–635

    Article  PubMed  Google Scholar 

  6. Bai Y, Yuan Z, Wang W, Zhao Y, Wang H, Wang WJ (2000) Quality of life for children with fecal incontinence after surgically corrected anorectal malformation. Pediatr Surg 35(3):462–464

    Article  CAS  Google Scholar 

  7. Hullmann SE, Chalmers LJ, Wisniewski AB (2012) Transition from pediatric to adult care for adolescents and young adults with a disorder of sex development. J Pediatr Adolesc Gynecol 25(2):155–157

    Article  PubMed  Google Scholar 

  8. Foster L, Holmes Y (2007) Transition from paediatric to adult service in epidermolysis bullosa. Br J Nurs 16(4):244–246

    PubMed  Google Scholar 

  9. Gawlik A, Kaczor B, Kaminska H, Zachurzok-Buczynska A, Gawlik T, Malecka-Tendera E (2012) Quality of medical follow-up of young women with turner syndrome treated in one clinical center. Horm Res Paediatr 13:556–571

    Google Scholar 

Download references

Author information

Authors and Affiliations

  1. Department of Pediatric Surgery, Charité Universitätsmedizin Berlin, Berlin, Germany

    Dominik Schmidt & Stefanie Maerzheuser

  2. Division of Clinical Epidemiology and Aging Research, German Cancer Research Centre, Heidelberg, Germany

    Ekkehart Jenetzky & Nadine Zwink

  3. Department of Pediatric Surgery, Urology Centre for Child and Youth Health, Klinikum Bremen-Mitte, Bremen, Germany

    Eberhard Schmiedeke

Authors
  1. Dominik Schmidt
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. Ekkehart Jenetzky
    View author publications

    You can also search for this author in PubMed Google Scholar

  3. Nadine Zwink
    View author publications

    You can also search for this author in PubMed Google Scholar

  4. Eberhard Schmiedeke
    View author publications

    You can also search for this author in PubMed Google Scholar

  5. Stefanie Maerzheuser
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Stefanie Maerzheuser.

Rights and permissions

Reprints and permissions

About this article

Cite this article

Schmidt, D., Jenetzky, E., Zwink, N. et al. Postoperative complications in adults with anorectal malformation: a need for transition. German Network for Congenital Uro-REctal Malformations (CURE-Net). Pediatr Surg Int 28, 793–795 (2012). https://doi.org/10.1007/s00383-012-3120-8

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s00383-012-3120-8

Keywords

Search

Navigation