Abstract
Patients and families desire an accurate understanding of the expected recovery following congenital cardiac surgery. Variation in knowledge and expectations within the care team may be under-recognized and impact communication and care delivery. Our objective was to assess knowledge of common postoperative milestones and perceived efficacy of communication with patients and families and within the care team. An 18-question survey measuring knowledge of expected milestones for recovery after four index operations and team communication in the postoperative period was distributed electronically to multidisciplinary care team members at 16 academic pediatric heart centers. Answers were compared to local median data for each respondent’s heart center to assess accuracy and stratified by heart center role and years of experience. We obtained 874 responses with broad representation of disciplines. More than half of all respondent predictions (55.3%) did not match their local median data. Percent matching did not vary by care team role but improved with increasing experience (35.8% < 2 years vs. 46.4% > 10 years, p = 0.2133). Of all respondents, 62.7% expressed confidence discussing the anticipated postoperative course, 78.6% denoted confidence discussing postoperative complications, and 55.3% conveyed that not all members of their care team share a common expectation for typical postoperative recovery. Most respondents (94.6%) stated that increased knowledge of local data would positively impact communication. Confidence in communication exceeded accuracy in predicting the timing of postoperative milestones. Important variation in knowledge and expectations for postoperative recovery in pediatric cardiac surgery exists and may impact communication and clinical effectiveness.
Similar content being viewed by others
Abbreviations
- LOS:
-
Length of stay
- PC4:
-
Pediatric Cardiac Critical Care Consortium
- CNU:
-
Cardiac Networks United
- TBC:
-
Target-Based Care
- VSD:
-
Ventricular Septal Defect
- TOF:
-
Tetralogy of Fallot
- BDG:
-
Bidirectional Glenn
- ASO:
-
Arterial Switch Operation
- ICU:
-
Intensive Care Unit
- PCICU:
-
Pediatric Cardiac Intensive Care Unit
References
Franck L, Mcquillan A, Wray J, Grocott M, Goldman A (2010) Parent stress levels during children’s hospital recovery after congenital heart surgery. Pediatr Cardiol 31(7):961–968
LeRoy S, Elixson E, O’Brien P, Tong E, Turpin S et al (2003) Recommendations for preparing children and adolescents for invasive cardiac procedures: a statement from the American Heart Association Pediatric nursing subcommittee of the council on cardiovascular nursing in collaboration with the council on cardiovascular diseases of the young. Circulation 108(10):2550–2564
Shudy M, de Almeida M, Ly S, Landon C, Groft S et al (2006) Impact of pediatric critical illness and injury on families: a systematic literature review. Pediatrics 118(Suppl 3):5203–5219
Lion K, Wright D, Spencer S, Zhou C, Del Beccaro M, Mangione-Smith R (2016) Standardized clinical pathways for hospitalized children and outcomes. Pediatrics. 2016;137(4).
Rove K, Edney J, Brockel M (2018) Enhanced recovery after surgery in children: promising, evidence-based multidisciplinary care. Pediatr Anesth 28(6):482–492
Shin A, Rao I, Bassett H, Chadwick W, Kim J, Kipps A et al (2021) Target-based care: an intervention to reduce variation in postoperative length of stay. J Pediatr 228:208–212
Harris P, Taylor R, Thielke R, Payne J, Gonzalez N et al (2009) Research electronic data capture (REDCap) A metadata-driven methodology and workflow process for providing translational research informatics support. J Biomed Inform. 42(2):377–81
Harris P, Taylor R, Minor B, Elliott V, Fernandez M et al (2019) The REDCap consortium: building an international community of software partners. J Biomed Inform. https://doi.org/10.1016/j.jbi.2019.103208
Ogrinc G, Davies L, Goodman D, Batalden P, Davidoff F, Stevens D (2016) Squire 2.0 (Standards for quality improvement reporting excellence): revised publication guidelines from a detailed consensus process. BMJ Qual Saf. 25(12):986–992
Eysenbach G (2004) Improving the quality of web surveys: the checklist for reporting results of internet e-surveys (Cherries). J Med Internet Res 6(3):e34
Jacobs M, Jacobs J, Thibault D, Hill K, Anderson B et al (2021) Updating an empirically based tool for analyzing congenital heart surgery mortality. World J Pediatr Congenit Heart Surg 12(2):246–281
Hummel K, White B, Algaze C, Marrone T, Sinnott J, Wawrzynski S et al (2021) Bedside benchmarks: transparent data to reduce variation in postoperative care. NEJM Catalyst. https://doi.org/10.1056/CAT.21.0032
Nassar A, Caruso P (2015) ICU physicians are unable to accurately predict length of stay at admission: a prospective study. Int J Qual Health Care 28(1):99–103
Gusmão Vicente F, Polito Lomar F, Mélot C, Vincent J (2004) Can the experienced ICU physician predict ICU length of stay and outcome better than less experienced colleagues? Intensive Care Med 30(4):655–659
Pagel C, Bull C, Utley M, Wray J, Barron D, Stoica S et al (2019) Exploring communication between parents and clinical teams following children’s heart surgery: a survey in the UK. BMJ Paediatrics Open 3(1):e000391
Blumenthal-Barby J, Krieger H (2015) Cognitive biases and heuristics in medical decision making: a critical review using a systematic search strategy. Med Decis Making 35:539–557
Saposnik G, Redelmeier D, Ruff C, Tobler P (2016) Cognitive biases associated with medical decisions: a systematic review. BMC Med Inform Decis Mak 16:138
Funding
The authors have no financial relationships relevant to this article to disclose.
Author information
Authors and Affiliations
Contributions
A.M., J.B., C.A., L.P, and M.M. primarily wrote the manuscript text. C.C performed the statistical analysis and preparation of all figures. All authors participating significantly in review and editing of the manuscript.
Corresponding author
Ethics declarations
Conflict of interest
The authors have no conflicts of interest relevant to this article to disclose.
Additional information
Publisher's Note
Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.
Supplementary Information
Below is the link to the electronic supplementary material.
Rights and permissions
Springer Nature or its licensor (e.g. a society or other partner) holds exclusive rights to this article under a publishing agreement with the author(s) or other rightsholder(s); author self-archiving of the accepted manuscript version of this article is solely governed by the terms of such publishing agreement and applicable law.
About this article
Cite this article
Bushnell, J., Connelly, C., Algaze, C.A. et al. Team Communication and Expectations Following Pediatric Cardiac Surgery: A Multi-Disciplinary Survey. Pediatr Cardiol 44, 908–914 (2023). https://doi.org/10.1007/s00246-022-03059-9
Received:
Accepted:
Published:
Issue Date:
DOI: https://doi.org/10.1007/s00246-022-03059-9