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International Urogynecology Journal

, Volume 14, Issue 5, pp 296–304 | Cite as

Reasons why women with long-term urinary incontinence do not seek professional help: a cross-sectional population-based cohort study

  • Doris HägglundEmail author
  • Marie-Louise Walker-Engström
  • Gregor Larsson
  • Jerzy Leppert
Original Article

Abstract

The aims of this study were to investigate the reasons why some women with long-term urinary incontinence (UI) seek professional help whereas others do not, their experiences and satisfactions with the healthcare services, and how women deal with their incontinence. In total, 95 women aged 23–51 years with persistent UI (median 10 years, range 6–20 years) were included in this telephone interview survey. Seventy-four percent of the women with long-term UI had not sought help. The most common reason given was that the disorder was considered a minor problem, which they felt they could cope with on their own. When women did consult professional help they did so because they were afraid of the odor of urine and that they perceived the leakage as shameful and embarrassing. These women felt that the healthcare service offered appropriate care for their condition. Pelvic floor exercises were the most commonly used management methods for all participants.

Keywords

Seeking help Urinary incontinence Women 

Abbreviations

-

UI Urinary incontinence

Notes

Acknowledgement

The study was supported by a grant from the Västmanland County Research Foundation.

References

  1. 1.
    Rekers H, Drogendijk AC, Valkenburg H, Riphagen F (1992) Urinary incontinence in women from 35 to 79 years of age: prevalence and consequences. Eur J Obstet Gynecol Reprod Biol 43:229–234PubMedGoogle Scholar
  2. 2.
    Simenova Z, Milsom I, Kullendorff AM, Molander U, Bengtsson C (1999) The prevalence of urinary incontinence and its influence on the quality of life in women from an urban Swedish population. Acta Obstet Gynecol Scand 78:546–551PubMedGoogle Scholar
  3. 3.
    Hägglund D, Walker-Engström ML, Larsson G, Leppert J (2001) Quality of life and seeking help in women with urinary incontinence. A population-based study. Acta Obstet Gynecol Scand 80:1051–1055CrossRefPubMedGoogle Scholar
  4. 4.
    Holst K, Wilson PD (1988) The prevalence of female urinary incontinence and reasons for not seeking treatment. NZ Med J 101:756–758Google Scholar
  5. 5.
    Seim A, Sandvik H, Hermstad R, Hunskaar S (1995) Female urinary incontinence – consultation behaviour and patient experiences: an epidemiological survey in a Norwegian community. Fam Pract 12:18–21PubMedGoogle Scholar
  6. 6.
    Burgio KL, Matthews KA, Engel BT (1991) Prevalence, incidence and correlates of urinary incontinence in healthy middle-aged women. J Urol 146:1255–1259PubMedGoogle Scholar
  7. 7.
    Goldstein M, Hawthorne ME, McDowell BJ, Burgio KL (1992) Urinary incontinence. Why people do not seek help. J Ger Nurs 18:15–20Google Scholar
  8. 8.
    Shaw C, Tansey R, Jackson C, Hyde C, Allan R (2001) Barriers to help seeking in people with urinary symptoms. Fam Pract 18:48–51CrossRefPubMedGoogle Scholar
  9. 9.
    Seim A, Hunskaar S (2000) Female urinary incontinence – the role of the general practitioner. Acta Obstet Gynecol Scand 79:1046–1051CrossRefPubMedGoogle Scholar
  10. 10.
    Lagro-Janssen ALM, Debuyne FMJ, Smits AJA, Van Weel C (1991) Controlled trials of pelvic floor exercises in the treatment of urinary stress incontinence in general practice. Br J Gen Pract 41:445–449PubMedGoogle Scholar
  11. 11.
    O'Brien J, Long H (1995) Urinary incontinence: long term effectiveness of nursing intervention in primary care. Br Med J 311:1208Google Scholar
  12. 12.
    Shaw C (2001) A review of the psychosocial predictors of help-seeking behaviour and impact on quality of life in people with urinary incontinence. J Clin Nurs 10:15–24CrossRefPubMedGoogle Scholar
  13. 13.
    Stoddart H, Donavan J, Whitley E, Sharp D, Harvey I (2001) Urinary incontinence in older people in the community: a neglected problem? Br J Gen Pract 51:548–554PubMedGoogle Scholar
  14. 14.
    Mittenes LS (1990) Knowledge and beliefs about urinary incontinence in adulthood and old age. J Am Geriatr Soc 38:374–378PubMedGoogle Scholar
  15. 15.
    Hunskaar S, Arnold EP, Burgio K, Diokno AC, Herzog AR, Mallett VT (2000) Epidemiology and natural history of urinary incontinence. Int Urogynecol J 11:309–319CrossRefGoogle Scholar
  16. 16.
    Hägglund D, Walker-Engström M-L, Larsson G, Leppert J. Quality of life, cumulative incidence and remission rates and management of urinary incontinence. A four-year-follow-up population-based study of women aged 22–50 years. (Submitted)Google Scholar
  17. 17.
    Sandvik H, Seim A, Vanvik A, Hunskaar S (2000) A severity index for epidemiological surveys of female urinary incontinence: Comparison with 48-hour pad-weighing tests. Neurourol Urodyn 19:137–145CrossRefPubMedGoogle Scholar
  18. 18.
    Bo K, Talseth T, Vinsnes A (2000) Randomized controlled trial on the effect of pelvic floor muscle training on quality of life and sexual problems in genuine stress incontinent women. Acta Obstet Gynecol Scand 79:598–603CrossRefPubMedGoogle Scholar
  19. 19.
    Hannestad Y, Rortveit G, Hunskaar S (2002) Help-seeking and associated factors in female urinary incontinence. Scand J Prim Health Care 20:102–107PubMedGoogle Scholar
  20. 20.
    Klarskov P, Nielsen K, Knudsen LM, Norgaard JP, Djurhuus JC (1991) Long-term results of pelvic floor training for female genuine stress incontinence. Int Urogynecol J 2:132–135Google Scholar

Copyright information

© International Urogynecological Association 2003

Authors and Affiliations

  • Doris Hägglund
    • 1
    • 2
    Email author
  • Marie-Louise Walker-Engström
    • 3
  • Gregor Larsson
    • 4
  • Jerzy Leppert
    • 5
  1. 1.Centre for Clinical Research, Central HospitalUppsala UniversityVästerås
  2. 2.Department of Caring SciencesÖrebro UniversityÖrebroSweden
  3. 3.Centre for Clinical Research, Central HospitalUppsala UniversityVästeråsSweden
  4. 4.Department of Obstetrics and GynecologyCentral HospitalVästeråsSweden
  5. 5.Centre for Clinical Research, Central HospitalUppsala UniversityVästeråsSweden

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