Abstract
Objective
To evaluate the effectiveness of the provision of information in the form of a rehabilitation program following critical illness in reducing psychological distress in the patients’ close family.
Design
Randomised controlled trial, blind at follow-up with final assessment at 6 months.
Setting
Two district general hospitals and one teaching hospital.
Patients and participants
The closest family member of 104 recovering intensive care unit (ICU) patients.
Interventions
Ward visits, ICU clinic appointments at 2 and 6 months. Relatives and patients received the rehabilitation program at 1 week after ICU discharge. The program comprised a 6-week self-help manual containing information about recovery from ICU, psychological information and practical advice.
Measurements and results
Psychological recovery of relatives was assessed by examining the rate of depression, anxiety, and post-traumatic stress disorder (PTSD)-related symptoms by 6 months after ICU. The proportion of relatives scoring in the range >19 on the Impact of Events Scale (cause for concern) was high in both groups at 49% at 6 months. No difference was shown in the rate of depression, anxiety, or PTSD-related symptoms between the study groups.
Conclusion
A high incidence of psychological distress was evident in relatives. Written information concerning recovery from ICU provided to the patient and their close family did not reduce this. High levels of psychological distress in patients were found to be correlated with high levels in relatives.
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Appendix
Appendix
The topics addressed in ICU Recovery Manual are as follows: Anxiety; Assessing your life style; Changes in appearance; Depression; Exercises; Feeling jittery; Feeling down; Food; Getting fit again; Getting out and about; Information—after intensive care; Living alone; Medicines; Mobility; Mood changes; Nightmares; Overworking; Panic attacks; Phobias; Relaxation; Sex after serious illness; Sleeping; Smoking; Stress; Stress in marriage; Tiredness; Where to go from here?; Where to start; Worrying.
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Jones, C., Skirrow, P., Griffiths, R.D. et al. Post-traumatic stress disorder-related symptoms in relatives of patients following intensive care. Intensive Care Med 30, 456–460 (2004). https://doi.org/10.1007/s00134-003-2149-5
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DOI: https://doi.org/10.1007/s00134-003-2149-5