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Assessing parent–child agreement in health-related quality of life among three health status groups

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Abstract

Purpose

To examine parent–child agreement regarding a child’s health-related quality of life (HRQOL) among three health status groups.

Methods

Parent–child agreement was evaluated for three health status groups of a population-based sample: (1) children with mental health problems (N = 461), (2) children with physical health problems (N = 281), and (3) healthy controls (N = 699). The KIDSCREEN-27 was used to assess HRQOL. The children were 9–14 years of age.

Results

Intraclass correlation coefficients were mostly good across all HRQOL scores and health status groups. This relatively high level of agreement was also reflected by the following findings: first, the AGREE group was the largest in three out of five HRQOL subscales in all health status groups; second, when disagreement occurred, it was often minor in magnitude. Despite this relatively high level of agreement, the means of self-ratings were significantly higher for all HRQOL scores and health status groups than the means of proxy ratings. These higher self-ratings were especially pronounced among children with mental health problems in certain HRQOL domains.

Conclusions

Even though the level of parent–child agreement regarding a child’s HRQOL is relatively high, it should be considered that children (especially those with mental health problems) often report better HRQOL than their parents. It is, therefore, highly recommended that both proxy- and self-ratings are used to evaluate a child’s HRQOL comprehensively.

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References

  1. Achenbach TM, McConaughy SH, Howell CT (1987) Child/adolescent behavioral and emotional problems: implications of cross-informant correlations for situational specificity. Psychol Bull 101(2):213–232

    Article  PubMed  CAS  Google Scholar 

  2. Mesman J, Koot HM (2000) Child-reported depression and anxiety in preadolescence: I. Associations with parent- and teacher-reported problems. J Am Acad Child Adolesc Psychiatry 39(11):1371–1378. doi:10.1097/00004583-200011000-00011

    Article  PubMed  CAS  Google Scholar 

  3. Salbach-Andrae H, Lenz K, Lehmkuhl U (2009) Patterns of agreement among parent, teacher and youth ratings in a referred sample. Eur Psychiatry 24(5):345–351. doi:10.1016/j.eurpsy.2008.07.008

    Article  PubMed  Google Scholar 

  4. Woo BS, Ng TP, Fung DS, Chan YH, Lee YP, Koh JB, Cai Y (2007) Emotional and behavioural problems in Singaporean children based on parent, teacher and child reports. Singapore Med J 48(12):1100–1106

    PubMed  CAS  Google Scholar 

  5. Taylor RM, Gibson F, Franck LS (2008) A concept analysis of health-related quality of life in young people with chronic illness. J Clin Nurs 17(14):1823–1833. doi:10.1111/j.1365-2702.2008.02379.x

    Article  PubMed  Google Scholar 

  6. Matza LS, Swensen AR, Flood EM, Secnik K, Leidy NK (2004) Assessment of health-related quality of life in children: a review of conceptual, methodological, and regulatory issues. Value Health 7(1):79–92. doi:10.1111/j.15241524-4733,2004.71273.x

    Article  PubMed  Google Scholar 

  7. Coghill D, Danckaerts M, Sonuga-Barke E, Sergeant J (2009) Practitioner review: quality of life in child mental health-conceptual challenges and practical choices. J Child Psychol Psychiatry 50(5):544–561. doi:10.1111/j.1469-7610.2009.02008.x

    Article  PubMed  Google Scholar 

  8. Eiser C, Morse R (2001) A review of measures of quality of life for children with chronic illness. Arch Dis Child 84(3):205–211

    Article  PubMed  CAS  Google Scholar 

  9. Wallander JL, Schmitt M, Koot HM (2001) Quality of life measurement in children and adolescents: issues, instruments, and applications. J Clin Psychol 57(4):571–585

    Article  PubMed  CAS  Google Scholar 

  10. Eiser C, Morse R (2001) Can parents rate their child’s health-related quality of life? Results of a systematic review. Qual Life Res 10(4):347–357

    Article  PubMed  CAS  Google Scholar 

  11. Upton P, Lawford J, Eiser C (2008) Parent–child agreement across child health-related quality of life instruments: a review of the literature. Qual Life Res 17(6):895–913. doi:10.1007/s11136-008-9350-5

    Article  PubMed  Google Scholar 

  12. McGraw KO, Wong SP (1996) Forming inferences about some intraclass correlation coefficients. Psychol Methods 1(1):30–46

    Article  Google Scholar 

  13. Sattoe JN, van Staa A, Moll HA, Feet RGOYO (2010) The proxy problem anatomized: child–parent disagreement in health related quality of life reports of chronically ill adolescents. Health Qual Life Outcomes 2012 10(10): 1–13

    Google Scholar 

  14. Klassen AF, Miller A, Fine S (2004) Health-related quality of life in children and adolescents who have a diagnosis of attention-deficit/hyperactivity disorder. Pediatrics 114(5):e541–e547. doi:10.1542/peds.2004-0844

    Article  PubMed  Google Scholar 

  15. Limbers CA, Ripperger-Suhler J, Heffer RW, Varni JW (2011) Patient-reported Pediatric Quality of Life Inventory 4.0 Generic Core Scales in pediatric patients with attention-deficit/hyperactivity disorder and comorbid psychiatric disorders: feasibility, reliability, and validity. Value Health 14(4):521–530. doi:S1098-3015(10)00038-0

    Article  PubMed  Google Scholar 

  16. Escobar R, Soutullo CA, Hervas A, Gastaminza X, Polavieja P, Gilaberte I (2005) Worse quality of life for children with newly diagnosed attention-deficit/hyperactivity disorder, compared with asthmatic and healthy children. Pediatrics 116(3):e364–e369. doi:10.1542/peds.2005-0386

    Article  PubMed  Google Scholar 

  17. Varni JW, Burwinkle TM (2006) The PedsQL as a patient-reported outcome in children and adolescents with attention-deficit/hyperactivity disorder: a population-based study. Health Qual Life Outcomes 4:26–36. doi:10.1186/1477-7525-4-26

    Article  PubMed  Google Scholar 

  18. Shipman DL, Sheldrick C, Perrin EC (2011) Quality of life in adolescents with autism spectrum disorders: reliability and validity of self-report. J Dev Behav Pediatr 32:85–89

    Article  PubMed  Google Scholar 

  19. Kiss E, Kapornai K, Baji I, Mayer L, Vetro A (2009) Assessing quality of life: mother–child agreement in depressed and non-depressed Hungarian. Eur Child Adolesc Psychiatry 18(5):265–273. doi:10.1007/s00787-008-0727-3

    Article  PubMed  Google Scholar 

  20. Lack CW, Storch EA, Keeley ML, Geffken GR, Ricketts ED, Murphy TK, Goodman WK (2009) Quality of life in children and adolescents with obsessive-compulsive disorder: base rates, parent–child agreement, and clinical correlates. Soc Psychiatry Psychiatr Epidemiol 44(11):935–942. doi:10.1007/s00127-009-0013-9

    Article  PubMed  Google Scholar 

  21. Rotsika V, Coccossis M, Vlassopoulos M, Papaeleftheriou E, Sakellariou K, Anagnostopoulos DC, Kokkevi A, Skevington S (2011) Does the subjective quality of life of children with specific learning disabilities (SpLD) agree with their parents’ proxy reports? Qual Life Res 20(8):1271–1278. doi:10.1007/s11136-011-9857-z

    Article  PubMed  CAS  Google Scholar 

  22. Bastiaansen D, Koot HM, Ferdinand RF, Verhulst FC (2004) Quality of life in children with psychiatric disorders: self-, parent, and clinician report. J Am Acad Child Adolesc Psychiatry 43(2):221–230. doi:00004583-200402000-00019

    Article  PubMed  Google Scholar 

  23. Mohler-Kuo M, Jann B, Dey M, Zellweger U (2011) A recruitment method to obtain community samples of children for survey research in Switzerland. Int J Public Health 56(3):353–356

    Article  PubMed  Google Scholar 

  24. Bethell CD, Read D, Stein REK, Blumberg SJ, Wells N, Newacheck PW (2002) Identifying children with special health care needs: development and evaluation of a short screening instrument. Ambul Pediatr 2(1):38–48

    Article  PubMed  Google Scholar 

  25. WHO (1992) The ICD-10 classification of mental and behavioural disorders. Clinical descriptions and diagnostic guidelines. WHO, Geneva

    Google Scholar 

  26. Mohler-Kuo M, Dey M (2011) A comparison of health-related quality of life between children with versus without special health care needs, and children requiring versus not requiring psychiatric services. Quality Life Res. doi:10.1007/s11136-011-0078-2 [Epub ahead of print]

  27. The KIDSCREEN Group (2006) The Kidscreen questionnaires. Quality of life questionnaires for children and adolescents. Pabst Science Publishers, Lengerich

  28. Cronbach LJ (1951) Coefficient alpha and the internal structure of tests. Psychometrika 16(3):297–334

    Article  Google Scholar 

  29. Nunnally JC, Bernstein IR (1994) Psychometric theory, 3rd edn. McGraw-Hill, New York

    Google Scholar 

  30. Landis JR, Koch GG (1977) The measurement of observer agreement for categorical data. Biometrics 33:159–174

    Article  PubMed  CAS  Google Scholar 

  31. Norman GR, Sloan JA, Wyrwich KW (2003) Interpretation of changes in health-related quality of life. The remarkable universality of half a standard deviation. Med Care 41(5):582–592

    PubMed  Google Scholar 

  32. Sneeuw KCA, Sprangers MAG, Aaronson NK (2002) The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease. J Clin Epidemiol 55(11):1130–1143

    Article  PubMed  Google Scholar 

  33. Danckaerts M, Sonuga-Barke EJ, Banaschewski T, Buitelaar J, Dopfner M, Hollis C, Santosh P, Rothenberger A, Sergeant J, Steinhausen HC, Taylor E, Zuddas A, Coghill D (2009) The quality of life of children with attention deficit/hyperactivity disorder: a systematic review. Eur Child Adolesc Psychiatry 19(2):83–105. doi:10.1007/s00787-009-0046-3

    Article  PubMed  Google Scholar 

  34. Katschnig H (2006) How useful is the concept of quality of life in psychiatry? In: Katschnig H, Freeman H, Sartorius N (eds) Quality of life in mental disorders. John Wiley, Chichester

  35. Davis E, Nicolas C, Waters E, Cook K, Gibbs L, Gosch A, Ravens-Sieberer U (2007) Parent-proxy and child self-reported health-related quality of life: using qualitative methods to explain the discordance. Qual Life Res 16(5):863–871. doi:10.1007/S11136-007-9187-3

    Article  PubMed  Google Scholar 

  36. Biederman J, Newcorn J, Sprich S (1991) Comorbidity of attention-deficit hyperactivity disorder with conduct, depressive, anxiety, and other disorders. Am J Psychiatry 148(5):564–577

    PubMed  CAS  Google Scholar 

Download references

Acknowledgments

We thank all children and parents for their participation. Furthermore, we express our thanks to Fabian Dey for writing some of the data-cleaning programs; David Faeh, Yuri B. Suris, and Katharina Zogg Matt for helping us with the classification of CSHCN; and Alois Tschopp for his statistical consulting. This work was supported by the Swiss National Science Foundation (325130_125486) and the Swiss School of Public Health plus.

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The authors declare that they have no conflicts of interest.

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Correspondence to Michelle Dey.

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Dey, M., Landolt, M.A. & Mohler-Kuo, M. Assessing parent–child agreement in health-related quality of life among three health status groups. Soc Psychiatry Psychiatr Epidemiol 48, 503–511 (2013). https://doi.org/10.1007/s00127-012-0556-z

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