Zusammenfassung
Änderungen.
Aufgrund neuerer wissenschaftlicher Erkenntnisse wurde im 4. österreichischen SIDS-Konsensusgespräch 1998 festgehalten, dass Polysomnographie und Heimmonitoring keine effizienten Mittel zur Erkennung und Prävention des SIDS-Risikos darstellen. In unserer Beratungsstelle wurde die resultierende Einschränkung der apparativen Diagnostik und Überwachung ersetzt durch: a) Verbesserung der Beratungsqualität durch Kommunikationstraining des Beratungsteams und inhaltliches Fokussieren allgemeiner Sicherheitsmaßnahmen in der Säuglingspflege; b) Einführung des Case-Managements für Patienten und Eltern an kritischen Schnittstellen im Krankenhaus und in der ambulanten Betreuung; c) Fortbildung des Kernteams und Multiplikatortätigkeit nach außen. Die Folge dieser Veränderungen waren eine Vermehrung der Zuweisungen von niedergelassenen Fachärzten sowie ein Rückgang der Selbstkommer und der Ambulanzzahlen im Allgemeinen.
Ziele.
Ziel dieses Qualitätsmanagementprojekts ist die Verbesserung der Ergebnisqualität. Diese kann mittelfristig durch Erhebung der Patienten- und Mitarbeiterzufriedenheit und langfristig durch die Auswirkungen auf die SIDS-Inzidenz evaluiert werden.
Abstract
Alterations.
Based on recent scientific findings, it was established at the 4th Austrian SIDS Consensus Meeting that polysomnography and home monitoring are no efficient means of detecting and preventing the risk of SIDS. At our consultation center, the resulting limited application of equipment-based diagnostic methods and monitoring has been replaced by: a) an improvement in the quality of consultation and communication training of the counseling team as well as focusing on general safety measures in infant care; b) the introduction of case management for patients / parents at critical points of intersection in the hospital and in outpatient care; c) advanced training of the core and dissemination of the same in the rest of the team. As a result of these alterations the following changes were noted: a shift in the referral profile, i.e. patients were referred more frequently from specialists' offices outside the hospital; a reduction in the number of patients/parents coming to the hospital on their own; and generally lesser numbers of outpatients.
Aims.
The purpose of this quality management project is to improve the quality of outcome. The latter will be evaluated in the mid term by assessing the level of satisfaction among patients and staff, and in the long term by the effect of these measures on the incidence of SIDS.
Literatur
Bentele KHP, Albani M (1988) Are there tests predictive for prolonged apnoea and SIDS? Acta Paediatr Scand Suppl 342: 1–21
Black L, David RJ, Brouillette RT, Hunt CE (1986) Effects of birth weight and ethnicity on incidence of sudden infant death syndrome. J Pediatr 108: 209–214
Eckardstein D, Lueger G, Niedl K, Schuster B (1995). Psychische Befindensbeeinträchtigung und Gesundheit im Betrieb. Herausforderung für Personalmanager und Gesundheitsexperten. Rainer Hampp, München
Engelberts AC, Jonge GA de (1990) Choice of sleeping position for infants: possible association with cot death. Arch Dis Child 65: 462–467
Fetus and Newborn Committee, Canadian Paediatric Society (1992) The infant home monitoring dilemma. Position statement. Can Med Assoc J 147: 1661–1664
Fleming PJ, Lair PS, Bacon C et al. (1996) Environment of infants during sleep and risk of the sudden infant death syndrome: results of 1993–5 case-control study for confidential inquiry into stillbirths and deaths in infancy. BMJ 313: 191–195
Harper RM, Bandler R (1998) Finding the failure mechanism in sudden infant death syndrome. Nat Med 4: 157–158
Hoffmann HJ, Damus K, Hillman L, Krongard E (1998) Risk factors for SIDS: results of the National Institute of Child Health and Human Development SIDS Cooperative Epidemiological Study. Ann NY Acad Sci 533: 13–30
Hunt CE, Brouillette RT, Hanson D (1988) Apnea-onset definition significantly affects pneumogram results. Sleep 11: 286–290
Ipsiroglu OS, Lischka A, Sacher M, Stögmann W, Pollak A (2000) Sicheres Schlafen – Die SIDS-Präventionskampagne der Wiener Kinderspitäler. Wien Klin Wochenschr 112: 185–186
Ipsiroglu OS, Kerbl R, Urschitz MS, Kurz R (2000) 4. Österreichisches SIDS-Konsensus-Gespräch anlässlich der Wiener SIDS-Präventionskampagne "Sicheres Schlafen". Wien Klin Wochenschr 112: 187–192
Ipsiroglu OS, Stekel H, Pollak A, Kaspar L (2000) Die Wiener SIDS-Präventionskampagne als Qualitätsmanagementprojekt. Wien Klin Wochenschr 112: 221–225
Kahn A, Blum D, Rebuffat E et al. (1988) Polysomnographic studies of infants who subsequently died of sudden infant death syndrome. Pediatrics 82: 721–727
Kelly DH, Golub MD, Carley D, Shannon DC (1986) Pneumograms in infants who subsequently died of sudden infant death syndrome. J Pediatr 109: 249–254
Kelly DH, Pathak A, Meny R (1991) Sudden severe bradycardia in infancy. Pediatr Pulmonol 10: 199–204
Kraus JF, Greenland S, Bulterys M (1989) Risk factors for sudden infant death syndrome in the US Collaborative Perinatal Project. Int J Epidemiol 18: 113–120
Kurz R, Prechtl HFR (1995) Prävention des Plötzlichen Säuglingstodes. 2. Österreichisches SIDS-Konsensus-Gespräch am 12. Juni 1994 in Gößl/Grundlsee. Padiatr Padol 30: 33–35
Kurz R, Sterniste W, Haidmayer R, Lischka A (1996) Bericht vom 3. Österreichischen SIDS-Konsensus-Gespräch. Graz, 8. März 1996. Padiatr Padol 31: 197–199
Leitich H, Tiefenthaler M, Popow Ch, Seyfried-Holzer G, Urschitz M, Ipsiroglu OS, Pollak A (2000) SIDS related anxiety – a risk factor analysis. Wien Klin Wochenschr 112: 216–220
Markestad T, Skadberg B, Hordvik E, Morild I, Irgens LM (1995) Sleeping position and sudden infant death syndrome (SIDS) – Effect of an intervention program to avoid prone sleeping. Acta Paediatr 84: 375–378
Marteau TM, Bekker H (1992) The development of a six-item short-form of the state scale of the Spielberger State-Trait Anxiety Inventory (STAI). Br J Clin Psychol 31: 301–306
Meny RG, Carroll JL, Carbone MT, Kelly DH (1994) Cardiorespiratory recordings from infants dying suddenly and unexpectedly at home. Pediatrics 93: 44–49
Meny RG, Jesurun A, Lin CH, Smialek JE (1996) SIDS is not always truly sudden. J SIDS Infant Mortal 1: 51–54
Mitchell EA (1991) Cot death: should the prone sleeping position be discouraged? J Paediatr Child Health 27: 319–321
Mitchell EA, Taylor BJ, Ford RPK et al. (1992) Four modifiable and other major risk factors for cot death: the New Zealand Study. J Paediatr Child Health [Suppl 1] 28: 3–8
Monod N, Plouin P, Sternberg B et al. (1986) Are polygraphic and cardiopneumographic respiratory patterns useful tools for predicting the risk for sudden infant death syndrome? Biol Neonate 50: 147–153
National Institutes of Health (1987) Consensus statement of infantile apnea and home monitoring. Pediatrics 79: 292–299
Official Statement of the American Thoracic Society (1996) Standards and indications for cardiopulmonary sleep studies in children. Am J Respir Crit Care Med 153: 866–878
Poets CF (1997) Polygraphic sleep studies in infants and children. Eur Respir Mon 5: 179–213
Poets CF, Meny RG, Chobanian MR, Bonofiglo RE (1999) Gasping and other cardiorespiratory patterns during sudden infant deaths. Pediatr Res 45: 350–354
Samuels MP, Stebbens VA, Poets CF, Southall DP (1993) Deaths on infant "apnoea" monitors. J Maternal Child Health 18: 262–266
Southall DP, Richards JM, Swiet M de et al. (1983) Identification of infants destined to die unexpectedly during infancy: evaluation of predictive importance of prolonged apnoea and disorders of cardiac rhythm or conduction. BMJ 286: 1092–1096
Southall DP, Richards JM, Stebbens V et al. (1986) Cardiorespiratory function in 16 full-term infants with sudden infant death syndrome. Pediatrics 78: 787–796
Spiers PS, Gunterroth WG (1994) Recommendations to avoid the prone sleeping position and recent statistics for sudden infant death syndrome in the United States. Arch Pediatr Adolesc Med 148: 141–146
Steinschneider A (1972) Prolonged apnea and the sudden infant death syndrome: clinical and laboratory observations. Pediatrics 50: 646–654
Wigfield RE, Fleming PJ, Berry PJ, et al.(1992) Can the fall in Avon's sudden infant death rate be explained by changes in sleeping position? BMJ 304: 282–283
Zeanah CH, Benoit D, Barton M (1988) Working model of the child interview and manual. Copyright with: Womans and Infants Hospital, Providence, Rhode Island
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Ipsiroglu, O.S., Urschitz, M. & Pollak, A. Änderungen in der SIDS-Beratung und -Prävention im Anschluss an den 4. österreichischen SIDS-Konsens von 1998. Monatsschr Kinderheilkd 151, 749–756 (2003). https://doi.org/10.1007/s00112-002-0593-x
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DOI: https://doi.org/10.1007/s00112-002-0593-x