Zusammenfassung
Kinder körperlich kranker Eltern gelten als bislang klinisch unterversorgte und zu wenig beforschte Risikogruppe für die Entwicklung seelischer Gesundheitsprobleme. Im vorliegenden Beitrag wird einleitend die epidemiologische und klinische Relevanz der Thematik beleuchtet. Anschließend wird auf die familiendynamischen und entwicklungspsychologischen Folgen der elterlichen körperlichen Erkrankung für minderjährige Kinder eingegangen. Es schließt sich eine Übersicht über aktuelle empirische Studien an, in der Ergebnisse aus einer transnationalen europäischen Verbundstudie (COSIP – „Children of Somatically Ill Parents“) besonders berücksichtigt werden. Die wichtigsten Empfehlungen aus bislang publizierten Interventionskonzepten werden zusammengefasst. Abschließend werden Ausblicke für Klinik und Forschung diskutiert.
Abstract
Irrespective of their well-known increased risk for mental health problems, children of somatically ill parents are a clinically underserved as well as under-researched group. In this article, the authors introduce the epidemiologic and clinical relevance of this topic and present a theoretical framework for understanding the sequelae of a serious parental illness on minor-age children, based on family dynamics and developmental concepts. This is followed by a comprehensive review of current empirical studies in this field, with a special emphasis on results from a transnational European collaborative study (COSIP = Children of Somatically Ill Parents), which was coordinated by the last author. The most important recommendations from intervention concepts published to date are summarized. Some outlooks for clinical practice as well as future research are presented.
Literatur
Romer G (2007) Kinder körperlich kranker Eltern: Psychische Belastungen, Wege der Bewältigung und Perspektiven der seelischen Gesundheitsvorsorge. Praxis Kinderpsychol Kinderpsychiatrie 56:870–890
Worsham NL, Compas BE, Sydney EY (1997) Children’s coping with parental illness. In: Wolchik SA, Sandler IN (eds) Handbook of children’s coping: linking theory and intervention. Plenum Press, New York, pp 195–213
Barkmann C, Romer G, Watson M, Schulte-Markwort M (2007) Parental physical illness as a risk for psychosocial maladjustment in children and adolescents: epidemiological findings from a national survey in Germany. Psychosomatics 48:476–481
Frick-Bruder V (1998) Psychosomatische Gynäkologie und Geburtshilfe. In: Kentenich H, Scheele M (Hrsg) Beiträge der Jahrestagung 1994/95. Psychosozial Verlag, Gießen
Romer G, Haagen M (2007) Kinder körperlich kranker Eltern. Hogrefe, Göttingen
Christ G (2000) Healing children’s grief: surviving a parent‘s death from cancer. Oxford Universities Press, Oxford
Romer G, Barkmann C, Schulte Markwort M, et al. (2002) Children of somatically III parents: a methodological review. Clinical Child Psychol Psychiatry 7:17–38
Romer G, Stavenow K, Brüggemann A, et al. (2006) Kindliches Erleben der chronischen körperlichen Erkrankung eines Elternteils: Eine qualitative Analyse von Interviews mit Kindern dialysepflichtiger Eltern. Praxis Kinderpsychol Kinderpsychiatrie 55:53–72
Welch AS, Wadsworth ME, Compas BE (1996) Adjustment of children and adolescents to parental cancer: Parents’ and childrens’ perspectives. Cancer 77:1409–1418
Rutter M (1966) Children of sick parents. An environmental and psychiatric study. Maudsley Monographs, London
McDaniel S, Hepworth J, Doherty WJ (1992) Medical family therapy. Basic Books, New York
Cierpka M, Krebeck S, Retzlaff R (2001) Arzt, Patient, Familie. Klett-Cotta, Stuttgart
Geigges W (1996) Familienprozesse bei Krebspatienten. In: Adler RH, Herrmann JM, Köhle K, et al. (Hrsg.) Uexküll – Psychosomatische Medizin. Urban & Schwarzenberg, München, S 970–978
Lewis FM (1986) The impact of cancer on the family: a critical analyses of the research literature. Patient Education Counseling 8:269–289
Rost R (1992) Psychosoziale Probleme von Kindern körperlich kranker Eltern – Ein Literaturüberblick. Medizinische Dissertation, Albert-Ludwigs-Universität Freiburg
Aldridge J, Becker S (1993) Children as carers. Arch Disease Childhood 69:459–462
Romer G, Schulte-Markwort M, Riedesser P (2002) Kinder körperlich kranker Eltern am Beispiel Kinder krebskranker Mütter. Geburtshilfe Frauenheilkd 62:537–542
Rutter M (2006) Implications of resilience concepts for scientific understanding. Annals of the New York Academy of Sciences. Annals New York Acad Sci 1094:1–12
Herriger N (1993) Die „unverwundbare“ Familie: Belastende Lebensumstände und psychosoziale Immunität. Soziale Arbeit 42:146–152
Power PW (1985) Family coping behaviours in chronic illness: a rehabilitation perspective. Rehabilitation Literature 46:78–83
Steck B (2002) Multiple Sklerose und Familie: Psychosoziale Situation und Krankheitsverarbeitung. Karger, Basel
Lewandowski LA (1992) Needs of children during the critical illness of a parent or sibling. Critical Care Nursing Clinics North Am 4:573–585
Piaget J (1983) Meine Theorie der geistigen Entwicklung. Fischer, Frankfurt a.M.
Seiffge-Krenke I (2001) Diabetic adolescents and their families: Stress, coping, and adaptation. Cambridge University Press, New York
Romer G, Kienbacher C, Milea S, et al. (2005) Children of somatically Ill parents: international perspectives on family-oriented mental health prevention. Final Consolidated Report of RTD Project QLG4-CT-2001-02378. Report to the European Commission, University of Hamburg
Birenbaum L, Yancey D, Phillips N, et al. (1999) School-age children’s and adolescents adjustment when a parent has cancer. Oncol Nursing Forum 26:1639–1645
Visser A, Huizinga G, Hoekstra H, et al. (2005) Emotional and behavioural functioning of children of a parent with cancer: a cross informant perspective. Psycho Oncology 14:746–758
Steck B, Amsler F, Grether A, et al. (2007) Mental health problems in children of somatically ill parents, e.g. multiple sclerosis. European Child Adolescent Psychiatry 16:199–207
Lewis FM, Hammond MA, Woods NF (1993) The family’s functioning with newly diagnosed breast cancer in the mother: the development of an explanatory model. J Behavioral Med 16:351–370
Huizinga G, Visser A, Graaf Wvd, et al. (2005) The quality of communication between parents and adolescent children in the case of parental cancer. Annals Oncol 16:1956–1961
Howes MJ, Hoke LA, Winterbottom M, Delafield D (1994) Psychosocial effects of breast cancer on the patient’s children. J Psychosocial Oncol 12:1–12
Compas BE, Worsham NL, Epping-Jordan JE, et al. (1994) When mom or dad has cancer: Markers of psychological distress in cancer patients, spouses and children. Health Psychol 13:507–515
Compas BE, Worsham NL, Ey S, Howell DC (1996) When mom or dad has cancer: II. Coping, cognitive appraisals, and psychological distress in children of cancer patients. Health Psychol 15:167–175
Watson M, St. James-Roberts I, Ashley S, et al. (2006) Factors associated with emotional and behavioural problems among school age children of breast cancer patients. Br J Cancer 94:43–50
Sigal J, Perry C, Robbins JM, et al. (2003) Maternal preoccupation and parenting as predictors of emotional and behavioral in children of women with breast cancer. J Clinical Oncol 21:1155–1160
Lewis FM, Darby EL (2003) Adolescent adjustment and maternal breast cancer: a test of the „faucet hypothesis“. J Psychosocial Oncol 21:81–104
Diareme S, Tsiantis J, Kolaitis G, et al. (2006) Emotional and behavioural difficulties in children of parents with multiple sclerosis: a controlled study in Greece. Eur Child Adolescent Psychiatry 15(6):309–318
Romer G, Baldus C, Haagen M, et al. (2007) Mental health problems in children of somatically ill parents: Predictors of psychological symptoms and quality of life. Clinical Child Psychol Psychiatry (eingereicht)
Gunther M, Crandles S, Williams G, Swain M (1998) A place called HOPE: Group psychotherapy for adolescents of parents with HIV/AIDS. Child Welfare 77:251–271
Urbach JR, Culbert JP (1991) Head-injured parents and their children: Psychosocial consequences of a traumatic syndrome. Psychosomatics 32:24–33
Davis-Kirsch SE, Brandt PA, Lewis FM (2003) Making the most of the moment: when a child‘s mother has breast cancer. Cancer Nursing 26:47–54
Rotheram-Borus MJ, Murphy DA, Miller S, Draimin BH (1997) An intervention for adolescents whose parents are living with AIDS. Clinical Child Psychol Psychiatry 7:17–38
Hoke LA (1997) A short-term psychoeducational intervention for families with parental cancer. Harvard Rev Psychiatry 5:99–103
Dale B, Altschuler J (1999) „In sickness and in health“: The development of alternative discourses in work with families with parental illness. J Family Ther 21:267–283
Rolland JS (1999) Parental illness and disability: a family system framework. J Family Ther 21:242–266
Sholevar GP, Perkel R (1990) Family systems intervention and physical illness. General-Hospital- Psychiatry 12(6):363–372
Steinglass P, Horan M (1988) Families and chronic medical illness. In: Walsh F, Anderson C (eds) Chronic disorders and the family. Harworth Press, New York
Steinglass P, Horan M-E (1987) Families and chronic medical illness. J Psychother Family 3:127–142
Diareme S, Tsiantis J, Romer G, et al. (2007) Mental health support for children of parents with somatic illness: a review of the theory and intervention concepts. Family Systems Health 25:98–118
Romer G, Möller B, Haagen M, et al. (2007) Psychische Belastungen und ihre Bewältigung bei Kindern krebskranker Eltern. Jahrbuch für Medizinische Psychologie (im Druck)
Paschen P, Saha R, Baldus C, et al. (2007) Evaluation eines präventiven Beratungskonzeptes für Kinder körperlich kranker Eltern. Psychotherapeut 52:265–272
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1 Gekürzte und überarbeitete Version eines jüngst in der Zeitschrift „Praxis der Kinderpsychologie und Kinderpsychiatrie“ erschienenen ausführlicheren Übersichtsartikels des Letztautors [1].
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Möller, B., Stegemann, T. & Romer, G. Psychosoziale Belastungen bei Kindern körperlich kranker Eltern. Bundesgesundheitsbl. 51, 657–663 (2008). https://doi.org/10.1007/s00103-008-0542-5
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DOI: https://doi.org/10.1007/s00103-008-0542-5
Schlüsselwörter
- Kinder kranker Eltern
- Krankheit und Familie
- Psychotraumatologie
- Medizinische Familientherapie
- Psychosoziale Konzepte