Zusammenfassung
Der vorliegende Überblicksbeitrag geht auf Besonderheiten der Definition chronischer Erkrankungen im Kindesalter ein, zeigt methodische Entwicklungen der letzten Jahre unter Diskussion methodischer Vorteile und potenzieller Defizite auf und berichtet über epidemiologische Trends bei pädiatrischen Erkrankungsbildern vor dem Hintergrund unterschiedlicher Definitionen und Methoden. Konzeptuelle Zusammenhänge zu Konstrukten der Versorgungsforschung, zum Beispiel der Lebensqualität, werden aufgezeigt.
Abstract
The current overview article highlights specific features of defining chronic illnesses in children with a view on recent methodological developments. Methodological advantages and potential pitfalls of these approaches are discussed. Epidemiological trends are reported taking these definitions and methodological approaches into account. The conceptual interrelationships with other constructs in the area of health service research, for instance quality of life, are demonstrated.
Literatur
Stein REK, Silver EJ (2002) Comparing different definitions of chronic conditions in a national data set. Ambul Pediatr 2(1):63–70
Perrin JM, Thyen U (1999), Chronic illness. In: Levine WB, Crocker AC (eds) Developmentalbehavioral pediatrics. W.B. Saunders Company, Philadelphia
Stein REK, et al. (1993) Framework for identifying children who have chronic conditions: the case for a new definition. J Pediatrics 122:342–347
Stein RE, Silver EJ (1999) Operationalizing a conceptually based noncategorical definition: a first look at US children with chronic conditions. Arch Pediatrics Adolescent Med 153(1):68–74
Van der Lee JH, Mokkink LB, et al. (2007) Definitions and measurement of chronic health conditions in childhood – a systematic review. JAMA 297(24):2741–2751
Stein REK (2004) Measurement of children´s health. Ambulatory Pediatrics 4:365–370
Bethell CD, et al. (2002) Identifying children with special health care needs: development and evaluation of a short screening instrument. Ambulatory Pediatrics 2(1):38–48
Schmidt S, Thyen U, Chaplin J, Mueller-Godeffroy E (2006) Cross-cultural development of a child health care questionnaire on satisfaction, utilization and needs (CHC-SUN). Ambulatory Pediatrics 7(5):374–382
Schmidt S, et al. (2008) Health care needs and satisfaction from the perspective of families of children with chronic conditions: The DISABKIDS approach. Child Care, Health Develop 43(3):355–366
Warschburger P (2000) Chronisch kranke Kinder und Jugendliche. Psychosoziale Belastung und Bewältigungsanforderung. Hogrefe, Göttingen
Jessop DJ, Stein REK (1985) Uncertainty and its relation to the psychological and social correlates of chronic illness in children. Soc Sci Med 20(10):993–999
Perrin EC, et al. (1993) Issues involved in the definition and classification of chronic health conditions. Pediatrics 91(4):787–793
Stein REK, Jessop DJ (1982) A noncategorical approach to chronic childhood illness. Public Health Reports 97(4):354–362
Stein RE, Westbrook LE, Bauman LJ (1997) The questionnaire for identifying children with chronic conditions: a measure based on a noncategorical approach. Paediatrics 4:513–521
Stein REK, Jessop DJ, Riessman CK (1983) Health care services received by children with chronic illness. Am J Dis Child 137:225–230
WHO (2001) International classification of functioning, disability and health (ICF). WHO, Geneva
Lollar D, Simeonsson KJ (2005) Diagnosis to function: classification of children and youth. J Development Behav Pediatrics 26(4):323–330
Newacheck PW, Taylor WR (1992) Childhood chronic illness: prevalence, severity, and impact. Am J Public Health 82(3):364–371
Kurth BM (2007) Der Kinder- und Jugendsurvey (KIGGS): Ein Überblick über Planung. Ein Überblick über Planung, Durchführung und Ergebnisse unter Berücksichtigung von Aspekten des Qualitätsmanagements. Bundesgesundheitsbl Gesundheitsforsch Gesundheitsschutz 50:533–546
Kamtsiuris P, Atzpodien K, Ellert U, et al. (2007) Prävalenz von chronischen Erkrankungen bei Kindern und Jugendlichen in Deutschland – Ergebnisse des Kinder- und Jugendsurveys (KIGGS). Bundesgesundheitsbl Gesundheitsforsch Gesundheitsschutz 50:686–700
Hölling H, Erhart M, Ravens-Sieberer U, Schlack R (2007) Verhaltensauffälligkeiten bei Kindern und Jugendlichen. Erste Ergebnisse aus dem Kinderund Jugendsurvey. Bundesgesundheitsbl Gesundheitsforsch Gesundheitsschutz 50(5, 6):784–793
Perrin JM, et al. (2002) Generalist and subspecialist care for children with chronic conditions. Ambul Pediatr 2(6):462–469
Ogden CL, Flegal KM, et al. (2002) Prevalence and trends in overweight among US children and adolescents, 1999–2000. JAMA 288(14):1728–1732
Gortmaker S, et al. (1990) Chronic conditions, socioeconomic risks, and behavioral problems in children and adolescents. Pediatrics 85:267–276
Horbar JD, Bagder GJ, Carpenter JH, et al. (2002) Trends in mortality and morbidity for very low birth weight infants, 1991–1999. Pediatrics 110:143–151
Stoelhorst GM, Rijken M, et al. (2005) Follow-op project on prematurity. Canges in neonatology: comparison of two cohorts of very preterm infants (gestational age <32 weeks): The Project on Preterm and Small für Gestational Age Infants 1983 and the Leiden Follow-Up Project on Premtaturity 1996–1997. Pediatrics 115:396–405
Nelson LJ (2004) Epidemiology of childhood tuberculosis in the United States, 1993–2001: the need for continued vigilance. Pediatrics 114:333–341
Perrin JM, Thyen U (2008) Chronic illness. In: Levine WB, Crocker AC (eds) Developmental-behavioral pediatrics. W.B. Saunders Company, Philadelphia
Schlack R, Hölling H, Kurth B, Huss M (2007) Die Prävalenz der ADHS bei Kindern und Jugend lichen in Deutschland. Erste Ergebnisse aus dem Kinderund Jugendsurvey. Bundesgesundheitsbl Gesundheitsforsch Gesundheitsschutz 5, 6:827–835
Bethell CD, Read D, Brockwood K (2004) Using existing population-based data sets to measure the American Academy of Pediatrics definition of medical home for all children and children with special health care needs. Pediatrics 113(5):1529–1537
Bethell C, Read D, Hochheimer J (2002) CAHPS 2.0H Child Survey with Children with Special Health Care Needs (CSHCN) Module: Measure Work-Up. 2000, NCQA Committee on Performance Measurement, Washington, DC
Stein REK, Silver EJ, Bauman LJ (2001) Shortening the questionnaire for identifying children with chronic conditions: What is the consequence? Pediatrics 107(4):61
U.S. Department of Health and Human Services, H.R.a.S.A. (2004) The National Survey of Children with Special Health Care Needs. In: Chartbook, M. a.C.H. Bureau, Editor. U.S. Department of Health and Human Services, Rockville, Maryland
van Dyck PC, et al. (2004) Prevalence and characteristics of children with special health care needs. Arch Pediatr Adolesc Med 158(9):884–890
Scheidt-Nave C, Ellert U, Thyen U, Schlaud M (2007) Prävalenz und Charakteristika von Kindern und Jugendlichen mit speziellem Versorgungsbedarf im Kinder- und Jugendsurvey (KIGGS) in Deutschland. Bundesgesundheitsbl Gesundheitsforsch Gesundheitsschutz 50:750–756
Gosch A, Erhart M, Wille N, et al. and the European KIDSCREEN Group (2006) Children with special health care needs (CSHCN) – results of the European KIDSCREEN project. Abstract presented at the 13th ISOQOL conference, Lisbon, Portugal, October 10–14, 2006
Schmidt S, et al. (2007) Cross-cultural development of a child health care questionnaire on satisfaction, utilization and needs (CHC-SUN). Ambulatory Pediatrics 7(5):374–382
Schmidt S, et al. (2006) The DISABKIDS generic quality of life instrument showed cross-cultural validity. J Clin Epidemiol 59(6):587–598
Schmidt S, et al. (2006) The DISABKIDS Manual. Papst Science Publishers, Lengerich
Ravens-Sieberer U, et al. (2001) Quality of life in children and adolescents: a European public health perspective. Sozial Präventivmed 46(5):294–302
Dickinson H, Parkinson KN, et al. (2007) Selfreported quality of life of 12–18 year old children with cerebral palsy: a cross-sectional European study. Lancet 369:2172–2177
Schmidt S, et al. (2006) Cross-cultural performance of the DISABKIDS condition generic measure. J Clin Epidemiol 59(6):587–598
Goodman R, et al. (2003) Using the Strenghts and Difficulties Questionnaire (SDQ) to screen for child psychiatric disorders in a community sample. Internat Rev Psychiatry 15(1–2):166–172
Noeker M, Petermann F (2003) Entwicklungsorientierte Betrachtung chronischer Krankheiten im Kindes- und Jugendalter. Zeitschrift für Klinische Psychologie, Psychiatrie und Psychotherapie 51:191–229
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Schmidt, S., Thyen, U. Was sind chronisch kranke Kinder?. Bundesgesundheitsbl. 51, 585–591 (2008). https://doi.org/10.1007/s00103-008-0534-5
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DOI: https://doi.org/10.1007/s00103-008-0534-5
Schlüsselwörter
- Chronische Erkrankung im Kindesalter
- Versorgungsforschung
- Nonkategorialer Ansatz
- Krankheitsfolgen
- Spezieller Versorgungsbedarf
- Lebensqualität