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Closer to Home: The Case for Experiential Participation in Health Reform

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Abstract

This article describes partial results from a case study of community participation in “New Directions for a Healthy B.C.”, a now-abandoned health reform policy. For this study, focus groups were conducted to explore the perspectives of traditionally under-represented citizens in understanding reasons for nonparticipation and to identify strategies for fostering participation in the health reform process. The findings indicate that participating in traditional ways — committee meetings, public fora, completing surveys — was not relevant to the realities of these individuals. Yet, rather than merely refusing to be involved, focus group members extended an invitation for health planning group members to experience their daily lives; an idea that is referred to in the literature as ‘experiential participation’. In order to foster broad-based participation in community health initiatives, the findings from this study argue for a new understanding of, and appreciation for what actually constitutes participation.

Résumé

Cet article décrit les résultats partiels d’une étude de cas impliquant la participation de la communauté sur „les nouvelles directives pour une Colombie-Britannique en bonne santé”, programme de réforme sur la santé maintenant annulé. Pour cette étude, des groupes d’observation furent établis afin d’étudier le point de vue de citoyens habituellement sous-représentés et pour comprendre les raisons de leur manque de participation ainsi que pour identifier les stratégies qui inciteront leur participation au processus de réforme sur la santé. Les résultats indiquent qu’une participation de type tradi-tionnel (réunions de comités, forum au public, sondages) ne s’accordait pas à la réalité quotidienne de ces individus. Cependant, plutôt que de simplement refuser de s’impliquer dans les recherches, les membres des groupes d’observation ont invité les autres participants à venir observer leur vie de tous les jours — un concept auquel on fait souvent référence sous le terme de „participation expérimentale.” Afin d’encourager une vaste participation aux initiatives sur la santé au niveau de la communauté, les résultats de cette étude montrent à la fois une nouvelle compréhension et une nouvelle appréciation des éléments constituant réellement la participation.

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Correspondence to Joan Wharf Higgins PhD.

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Higgins, J.W. Closer to Home: The Case for Experiential Participation in Health Reform. Can J Public Health 90, 30–34 (1999). https://doi.org/10.1007/BF03404095

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