Abstract
The sudden unexpected death of a child or a young person can have enormous implications for the surviving family members in addition to the immediate shock, sadness and sense of loss. The sudden loss of a sibling without any prior medical history may confront the family members with the question whether the sudden death was caused by a genetic condition and the fear that other family members may suffer the same fate.
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Behr E, Wood DA, Wright M, Syrris P, Sheppard MN, Casey A, et al, on behalf of the Sudden Arrhythmic Death Syndrome (SADS) Steering Group. Cardiological assessment of first-degree relatives in sudden arrhythmic death syndrome. Lancet. 2003;362:1457-9.
Vaartjes I, Hendrix A, Hertogh EM, Grobbee DE, Doevendans PA, Mosterd A, et al. Sudden death in persons younger than 40 years of age: incidence and causes. Eur J Cardiovasc Prev Rehabil. 2009;16:592-6.
Tan HL, Hofman N, Langen IM van, Wal AC van der, Wilde AAM. Sudden unexplained death: heritability, diagnostic yield, and therapeutic yield of cardiologic and genetic examination in surviving relatives. Circulation. 2005;112:207-13.
Heart Rhythm UK Familial Sudden Death Syndromes Statement Development Group. Clinical indications for genetic testing in familial sudden cardiac death syndromes: an HRUK position statement. Heart. 2008;94:502-7.
Basso C, Burke M, Fornes P, Gallagher PJ, Henriques de Gouveia R, Sheppard M, et al., on behalf of the Association for European Cardiovascular Pathology. Guidelines for autopsy investigation of sudden cardiac death. Virchows Arch. 2008;452:11-8.
Hendrix A, van der Werf C, Bots ML, Birnie E, van der Smagt JJ, Borleffs CJW, et al. Rationale and design of the CAREFUL study: the yield of cardiogenetic screening in first-degree relatives of sudden cardiac and unexplained death victims <45 years. Neth Heart J. 2010;18:286-90.
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Department of Cardiology, Academic Medical Center, University of Amsterdam, Amsterdam, the Netherlands
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de Winter, R.J. Sudden cardiac death: what should we tell the family?. NHJL 18, 284–285 (2010). https://doi.org/10.1007/BF03091777
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DOI: https://doi.org/10.1007/BF03091777