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Screening en follow-up van kinderen die voor thuisbeademing in aanmerking komen

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Tijdschrift voor Kindergeneeskunde

Samenvatting

Kinderen met chronische respiratoire insufficiëntie kunnen in aanmerking komen voor thuisbeademing. Bij voorkeur wordt een dergelijke behandeling in electieve, niet-acute omstandigheden opgestart, nadat zorgvuldig afgewogen is of de patiënt ervoor in aanmerking komt. Als eenmaal besloten is dat de patiënt in aanmerking komt voor thuisbeademing, moet door middel van systematische screening en follow-up bepaald worden wanneer het beste hiermee gestart kan worden. Dit artikel formuleert praktische aanbevelingen hiervoor bij patiënten met (1) een neuromusculaire aandoening, (2) centrale hypoventilatie, (3) het obstructief slaapapneusyndroom of (4) cystische fibrose.

Summary

Home mechanical ventilation may be a therapeutic option in children with chronic respiratory failure. Ideally, this therapy should not be initiated at the time of an acute respiratory failure but electively and after careful considerations have been made whether it is an appropriate therapeutic strategy for a particular patient. Once patient, parents and medical team have decided to pursue home mechanical ventilation, systematic screening and follow-up of the patient are necessary in order to determine individually the appropriate time to start up the support. This article summarises practical guidelines for screening and follow-up of patients with (1) neuromuscular disorders, (2) central hypoventilation, (3) obstructive sleep-disordered breathing or (4) cystic fibrosis.

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    P. L. J. M. Leroy

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  1. P. L. J. M. Leroy
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  2. H. Knoester
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  3. N. A. M. Cobben
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Correspondence to P. L. J. M. Leroy.

Additional information

Dhr. drs. P.L.J.M. Leroy, kinderarts-intensivist, Pediatrische Intensive Care Unit en Centrum voor Ademhalingsstoornissen bij Kinderen, Maastricht UMC. Mw. dr. H. Knoester, kinderarts-intensivist, Pediatrische Intensive Care Unit, Emma Kinderziekenhuis, AMC Amsterdam. Mw. dr. N.A.M. Cobben, longarts-intensivist, Centrum voor Thuisbeademing, Maastricht UMC.

Correspondentieadres: Drs. P.L.J.M. Leroy, Centrum voor Ademhalingsstoornissen bij Kinderen, Pediatrische Intensive Care Unit, Maastricht Universitair Medisch centrum.

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Leroy, P.L.J.M., Knoester, H. & Cobben, N.A.M. Screening en follow-up van kinderen die voor thuisbeademing in aanmerking komen. KIND 77, 104–110 (2009). https://doi.org/10.1007/BF03086371

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