Samenvatting
De problematiek van kinderen met een stoornis in de seksuele ontwikkeling trekt de laatste jaren veel aandacht. De ethische rechtvaardiging van de behandeling zoals die is ontstaan na de Tweede Wereldoorlog staat daarbij ernstig ter discussie. In plaats van die traditionele behandeling krijgt de keuzevrijheid van de betrokkene meer aandacht. Deze bijdrage richt zich op de ethische controverse. Gepleit wordt voor zorgvuldig multidisciplinair evaluatieonderzoek van behandelingen. Ethische uitgangspunten en idealen dienen eveneens te worden meegenomen, met het belang van de patiënt als ultiem criterium.
Summary
The treatment of children with disorders of sexual development has lately been subject of many debates. The ethical consensus on treatment that originated fifty years ago is severely questioned. Instead, much emphasis is given to freedom of choice and the principle of informed consent. This article focuses on the ethical controversy. It is argued that multidisciplinary evaluative research is needed of every kind of treatment. Ethical ideals and perspectives need also to be evaluated, with the interest of the patient as its ultimate criterion.
Literatuur
Hughes I, Houk C, Ahmed SF, Lee PA.; LWPES Consensus Group; ESPE Consensus Group. Consensus statement on the management of intersex disorders. Arch Dis Child. 2006;91:554-63.
Hughes IA, Nihoul-Fékété C, Thomas B, Cohen-Kettenis PT. Consequences of the ESPE/LWPES guidelines for diagnosis and treatment of disorders of sex development. Best Pract Res Clin Endocrinol Metabol. 2007;21(3):351-65.
Murphy TF. Experiments in gender: ethics at the boundaries of clinical practice and research. In: Sytsma SE, ed. Ethics and intersex. Dordrecht: Springer, 2005. p. 139-53.
Dreger AD. `Ambiguous sex' – or ambivalent medicine? Ethical problems in the treatment of intersexuality. Hastings Cent Rep. 1998;28(3):24-35.
Nabhan ZM, Lee PA. Disorders of sex development. Curr Opin Obstet Gynecol. 2007;19:440-5.
Williams GC, Frankel RM, Campbell TL, Deci EL. The science of the art of medicine: Research on the biopsychological approach to health care. In: Frankel RM, Quill TE, McDaniel SH, eds. The biopsychosocial approach: Past, present, future. Rochester: University of Rochester Press, 2003. p. 109-23.
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Dhr. prof. dr. E. van Leeuwen, sectie EFG, afdeling KWAZO, UMC St Radboud, Postbus 9101, 6500 HB Nijmegen
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van Leeuwen, E. Ethische overwegingen bij de behandeling van stoornissen in de seksuele ontwikkeling. KIND 76, 148–151 (2008). https://doi.org/10.1007/BF03078195
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DOI: https://doi.org/10.1007/BF03078195