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Medical and health care needs of families providing in-home care for relatives with developmental disabilities

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Abstract

The purpose of this investigation was to attempt to describe the health care needs of families providing in-home care to members with developmental disabilities as well as the characteristics and demographics of families providing in-home care. The survey included 761 families who participated in a federal demonstration project in rural southern Georgia. The results indicated that impoverished families need increased assistance to provide adequate medical and health care when providing in-home care to relatives experiencing developmental disabilities. Implications for administration of programs and development of policies are discussed.

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References

  1. Arnold M, Case T: Supporting providers of in-home care: The needs of families with relatives who are disabled.Journal of Rehabilitation 1993; 59:55–59.

    Google Scholar 

  2. Braddock D, Hemp R, Fujiura G, et al.:The State of the States in Developmental Disabilities. Baltimore, MD: Paul H. Brookes, 1990.

    Google Scholar 

  3. Dunst C, Johanson C, Trivette C, et al.: Family-oriented early intervention policies and practices: Family-centered or not?Exceptional Children 1991; 58:115–126.

    PubMed  CAS  Google Scholar 

  4. Holroyd J: The questionnaire on resources and stress: An instrument to measure family response to a handicapped mother.Journal of Community Psychology 1974; 2:92–94.

    Google Scholar 

  5. McAndrew I: Children with a handicap and their families.Child: Care, Health and Development 1976; 2:213–237.

    Article  CAS  Google Scholar 

  6. Richards ID, McIntosh HT: Spina bifida survivors and their parents: A study of problems and services.Developmental Medicine and Neurology 1973; 15:292–304.

    CAS  Google Scholar 

  7. Hobbs N, Perrin J, Ireys H, et al.: Chronically ill children in America.Rehabilitation Literature 1984; 45:206–213.

    PubMed  CAS  Google Scholar 

  8. Herman, S: Use and impact of a cash subsidy program.Mental Retardation 1991; 29(5):253–258.

    PubMed  CAS  Google Scholar 

  9. Sciarillo W: Health care reform.Exceptional Parent 1993; 23:28–31.

    Google Scholar 

  10. Elmore RF: Backward mapping: Implementation research and policy decisions.Policital Science Quarterly 1980; 94:601–612.

    Article  Google Scholar 

  11. Sirvis B: Special health care needs.Teaching Exceptional Children 1988; 20:41–44.

    Google Scholar 

  12. Gallagher JJ: The family as a focus for intervention. In: Meisels SJ, Shonkoff JP (Eds.):Handbook of Early Childhood Intervention. New York: Cambridge University Press, 1990, pp. 540–599.

    Google Scholar 

  13. Guralnick MJ: Recent developments in early intervention efficacy research: Implications for family involvement in PL 99-457.Topics in Early Childhood Intervention 1989; 9:1–17.

    Google Scholar 

  14. Simeonsson RJ, Bailey DB: Family dimensions in early intervention. In: Meisels SJ, Shonkoff JP (Eds.):Handbook of Early Childhood Intervention. New York: Cambridge University Press, 1990, pp. 428–444.

    Google Scholar 

  15. Upshur CC: Mothers’ and fathers’ rating of the benefits of early intervention services.Journal of Early Intervention 1991; 15:345–357.

    Google Scholar 

  16. Shaw IF: Consumer evaluations of the personal social services.British Journal of Social Work 1984; 14: 277–284.

    Google Scholar 

  17. Damkot DK, Pandiani JA, Gordon, LR: Development, implementation and findings of a continuing client satisfaction survey.Community Mental Health Journal 1983; 19:265–278.

    Article  PubMed  CAS  Google Scholar 

  18. Smith N: Evaluation of alternatives for early intervention programs. In: Bickman L, Weatherford DL (Eds.):Evaluating Early Intervention Programs for Severely Handicapped Children and Their Families. Austin, TX: Pro-Ed, 1986, pp. 185–205.

    Google Scholar 

  19. Turnbull AP, Blue-Banning M, Behr S, et al.: Family research and intervention: A value and ethical examination. In: Dokecki PR, Zaner RM (Eds.):Ethics of Dealing with Persons with Severe Handicaps, Baltimore, MD: Brookes, 1986, pp. 119–140.

    Google Scholar 

  20. Able-Boone H, Sandal S, Loughry A, et al.: An informed, family-centered approach to Public Law 99-457: Parental Views.Topics in Early Childhood Special Education 1990; 10:100–111.

    Google Scholar 

  21. Korn SJ: Continuities and discontinuities in difficult/easy temperament: In fancy to young adulthood.Merrill-Palmer Quarterly 1984; 30:189–199.

    Google Scholar 

  22. Simeonsson RJ, Bailey DB, Huntington GS, et al.: Toward the concept of goodness of fit in early intervention.Infant Mental Health Journal 1986; 7:81–94.

    Google Scholar 

  23. Calhoun M, Calhoun L, Rose T: Parents of babies with severe handicaps: Concerns about early intervention.Journal of Early Intervention 1989; 13:146–152.

    Article  Google Scholar 

  24. Kagan S, Shelly A: The promise and problems of family support programs. In: Kagan SL, Powell DR, Weissbourde B, et al. (Eds.):American Family Support Programs. New Haven, CT: Yale University Press, 1987, pp. 3–18.

    Google Scholar 

  25. Weissbourde B, Kagan S: Family support programs: Catalysts for change.American Journal of Orthopsychiatry 1989; 59:20–31.

    Article  Google Scholar 

  26. Zigler E, Black K: America’s family support movement: Strengths and limitations.American Journal of Orthopsychiatry 1989; 59:6–19.

    Article  PubMed  CAS  Google Scholar 

  27. Marquis MS, Davies AR, Ware JE: Patient satisfaction and change in medical care provider: A longitudinal study.Medical Care 1983; 21:821–829.

    Article  PubMed  CAS  Google Scholar 

  28. Patrick DL, Scrivens E, Charlton J: Disability and patient satisfaction with medical care.Medical Care 1983; 21:1062–1075.

    Article  PubMed  CAS  Google Scholar 

  29. Vastowny T, Roghmann K, Hengst A: Satisfaction with medical care: Replications and theoretical re-evaluation.Medical Care 1983; 21:294–322.

    Article  Google Scholar 

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Authors and Affiliations

  1. University of Mississippi School of Education, 38677, University, MS

    Mit Arnold Ed.D. (Assistant Professor), Dorothee Serpas M.A. (graduate assistant), June DiPolito (director of High Hope Foundation) & Earle Cummings (a consultant to the High Hope Foundation)

  2. Georgia Southern University, Georgia, USA

    Tom Case Ph.D. (is a professor) & Max Burns Ph.D. (is a professor)

Authors
  1. Mit Arnold Ed.D.
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  2. Dorothee Serpas M.A.
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  3. Tom Case Ph.D.
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  4. Max Burns Ph.D.
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  5. June DiPolito
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  6. Earle Cummings
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Arnold, M., Serpas, D., Case, T. et al. Medical and health care needs of families providing in-home care for relatives with developmental disabilities. The Journal of Mental Health Administration 22, 85–93 (1995). https://doi.org/10.1007/BF02519201

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