Journal of Autism and Developmental Disorders

, Volume 17, Issue 4, pp 469–486 | Cite as

Mothers of children with autism or communication disorders: Successful adaptation and the double ABCX model

  • Marie M. Bristol


This study demonstrates the effectiveness of a modified Double ABCX or FAAR model in predicting successful adaptation—good marital adjustment, few maternal depressive symptoms, and an in-home rating of family functioning—in 45 families of autistic and communication-impaired children. The model consisted of severity of the handicap and other family stresses, family resources of cohesion and social support, family definition of the handicap, and adequacy of coping patterns. Canonical correlation and subsequent multiple regression procedures demonstrated that family adaptation was positively predicted by adequacy of social support and active coping patterns. Poorer adaptation was predicted by other family stresses, unwarranted maternal self-blame for the handicap, and maternal definition of the handicap as a family catastrophe. Findings for cohesion were mixed. Resources and beliefs were more predictive of adaptation than severity of the child's handicap.


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  1. Akerley, M. (1975). The invulnerable parent.Journal of Autism and Childhood Schizophrenia, 5, 275–281.Google Scholar
  2. Billings, A. G., & Moos, R. H. (1982). Psychosocial theory and research on depression: An integrative framework and review.Clinical Psychology Review, 2, 213–237.Google Scholar
  3. Bradshaw, J., & Lawton, D. (1978). Tracing the causes of stress in families with handicapped children.British Journal of Social Work, 8, 181–192.Google Scholar
  4. Bristol, M. M. (1978).Carolina Parent Support Scale. University of North Carolina at Chapel Hill: Unpublished assessment instrument. (Revised 1981).Google Scholar
  5. Bristol, M. M. (1984). Family resources and successful adaptation in families of autistic children. In E. Schopler & G. Mesibov (Eds.),The effects of autism on the family (pp. 289–310). New York: Plenum.Google Scholar
  6. Bristol, M. M. (1985, April).A series of studies of social support, stress, and adaptation in families of developmentally disabled children. Paper presented at the biennial meeting of the Society for Research in Child Development, Toronto, Ontario, Canada.Google Scholar
  7. Bristol, M. M. (1987). The home care of developmentally disabled children: Empirical support for a model of successful family coping with stress. In S. Landesman & P. Vietze (Eds.),Living environments and mental retardation. Washington, D.C.: Monographs of the American Association on Mental Deficiency.Google Scholar
  8. Bristol, M. M., & DeVellis, R. (1980).The Definition Scale: The subjective meaning of having a handicapped child. Unpublished assessment instrument, University of North Carolina at Chapel Hill.Google Scholar
  9. Bristol, M. M., & Schopler, E. (1984). Stress and coping in families of autistic adolescents. In E. Schopler & G. Mesibov (Eds.),Autism in adolescents and adults (pp. 251–278). New York: Plenum.Google Scholar
  10. Bristol, M. M., Schopler, E., & McConnaughey, R. (1984, December).The prevalence of separation and divorce in unserved families of young autistic and autistic-like children. Paper presented at the 1984 HCEEP/DEC Early Childhood Conference, Washington.Google Scholar
  11. Burden, R. L. (1980). Measuring the effects of stress on the mothers of handicapped infants: Must depression always follow?Child: Care, Health and Development, 6, 111–125.Google Scholar
  12. Burr, W. R. (1973).Theory construction and the sociology of the family. New York: Wiley.Google Scholar
  13. Cohen, F., & Lazarus, R. (1979). Coping with the stresses of illness. In G. C. Stone, F. Cohen, & N. Adler & associates (Eds.),Health psychology—A handbook (pp. 217–254). San Francisco: Jossey-Bass.Google Scholar
  14. Crnic, K. A., Greenberg, M. T., Ragozin, A. S., Robinson, N. M., & Basham, R. B. (1983). Effects of stress and social support on mothers and premature and full term infants.Child Development, 54, 209–217.Google Scholar
  15. Cummings, S. J., Bayley, H. C., & Rie, H. E. (1966). Effects of the child's deficiency on the mother: A study of mothers of mentally retarded, chronically ill and neurotic children.American Journal of Orthopsychiatry, 36, 595–608.Google Scholar
  16. DeMyer, M. K., & Goldberg, P. (1983). Family needs of the autistic adolescent. In E. Schopler & G. B. Mesibov (Eds.),Autism in adolescents and adults (pp. 225–250). New York: Plenum.Google Scholar
  17. Friedrich, W. (1977). Ameliorating the psychological impact of chronic physical disease on the child and family.Journal of Pediatric Psychology, 2, 26–31.Google Scholar
  18. Gallagher, J. J., Cross, A., & Scharfman, W. (1981). Parental adaptation to a young handicapped child: The father's role.Journal of the Division for Early Childhood, 3, 3–14.Google Scholar
  19. Grossman, F. K. (1972).Brothers and sisters of retarded children: An exploratory study. Syracuse: Syracuse University Press.Google Scholar
  20. Hansen, D. A., & Johnson, V. A. (1979). Rethinking family stress theory: Definitional aspects. In W. R. Burr, R. Hill, F. I. Nye, & I. Reiss (Eds.),Contemporary theories about the family. Vol. 1. Research-based theories (pp. 582–603). New York: Free Press, McMillan.Google Scholar
  21. Hill, R. (1949).Families under stress. New York: Harper.Google Scholar
  22. Hill, R. (1958). Social stresses on the family.Social Casework, 39, 139–150.Google Scholar
  23. Hollingshead, A. B. (1971).Four factor index of social status. Unpublished manuscript, Yale University.Google Scholar
  24. Holmes, T., & Rahe, R. (1967). The social readjustment rating scale.Journal of Psychosomatic Research, 11, 213.Google Scholar
  25. Holroyd, J. (1974). The questionnaire on resources and stress: An instrument to measure family response to a handicapped member.Journal of Community Psychology, 2, 92–94.Google Scholar
  26. Holroyd, J., & McArthur, D. (1976). Mental retardation and stress on the parents: A contrast between Down's syndrome and childhood autism.American Journal of Mental Deficiency, 80, 431–436.Google Scholar
  27. Kshirsagar, A. M. (1972).Multivariate analysis. New York: Marcel Dekker.Google Scholar
  28. Lawley, D. N. (1959). Tests of significance in canonical analysis.Biometrika, 46.Google Scholar
  29. Locke, H. J., & Wallace, K. M. (1959). Short marital-adjustment and prediction tests: Their reliability and validity.Marriage and Family Living, 8, 251–255.Google Scholar
  30. Lotter, V. (1978). Follow-up studies. In M. Rutter & E. Schopler (Eds.),Autism: A reappraisal of concepts and treatment (pp. 475–495). New York: Plenum.Google Scholar
  31. Love, H. (1973).The mentally retarded child and his family. Springfield, Illinois: Charles C Thomas.Google Scholar
  32. McCubbin, H. I. (1979). Integrating coping behavior in family stress theory.Journal of Marriage and the Family, 42, 237–244.Google Scholar
  33. McCubbin, H. I., & Patterson, J. M. (1981).Systematic assessment of family stress, resources, and coping. St. Paul: Family Stress Project, University of Minnesota.Google Scholar
  34. McCubbin, H. I., & Patterson, J. (1983). The family stress process: The double ABCX model of adjustment and adaptation. In H. I. McCubbin, M. B. Sussman, & J. M. Patterson (Eds.),Social stress and the family: Advances and developments in family's stress theory and research. New York: Haworth.Google Scholar
  35. Meyers, E., Mink, I., & Nihira, K. (1977).Home Quality Rating Scale (An instrument developed for the NPI-Lanterman State Hospital Research Group). Ponoma, California: NPI-Lanterman State Hospital.Google Scholar
  36. Moos, R., & Moos, B. (1981).Family Environment Scale Manual. Palo Alto, California: Consulting Psychologists Press.Google Scholar
  37. Nihira, K., Meyers, C. E., & Mink, I. T. (1983). Home environment, family adjustment, and the development of mentally retarded children.Applied Research in Mental Retardation, 1, 5–24.Google Scholar
  38. Ogle, P. A. (1982).The sibling relationship: Maternal perception of nonhandicapped and handicapped/nonhandicapped sibling dyads. Unpublished doctoral dissertation, University of North Carolina.Google Scholar
  39. Olson, D. H., & McCubbin, H. I. (1982). Circumplex model of marital and family systems V: Application to family stress and crisis intervention. In H. I. McCubbin, A. E. Cauble, & J. M. Patterson (Eds.),Family stress, coping, and social support. Springfield, Illinois: Charles C Thomas.Google Scholar
  40. Price-Bonham, S., & Addison, S. (1978). Families and mentally retarded children: Emphasis on the father.The Family Coordinator, 27, 221–230.Google Scholar
  41. Radloff, L. (1977). The CES-D scale: A self-report depression scale for research in general population.Applied Psychological Measurement, I, 385–401.Google Scholar
  42. Rutter, M. (1970). Autistic children: Infancy to adulthood.Seminars in Psychiatry, 2, 435–450.Google Scholar
  43. Schopler, E., Mesibov, G., DeVellis, R., & Short, A. (1981). Treatment outcome for autistic children and their families. In P. Mittler (Ed.),Frontiers of knowledge in mental retardation: Proceedings of the fifth congress of IASSMD. Vol. 1: Social educational and behavioral aspects (pp. 293–301). Baltimore: University Park Press.Google Scholar
  44. Schopler, E., Reichler, R. J., DeVellis, R. F., & Daly, K. (1980). Toward objective classification of childhood autism: Childhood Autism Rating Scale (CARS).Journal of Autism and Developmental Disorders, 10, 91–103.Google Scholar
  45. Tew, B., & Laurence, K. M. (1975). Mothers, brothers and sisters of patients with spina bifida.Developmental Medicine and Child Neurology, 15, 69–76.Google Scholar
  46. Timm, N. H. (1975).Multivariate analysis with applications in education and psychology. Belmont, California.Google Scholar
  47. Turnbull, A., & Turnbull, H. R. (1978).Parents speak out: Views from the other side of the two way mirror. Columbus, Ohio: Charles E. Merrill.Google Scholar
  48. Wahler, R. G. (1980). The insular mother: Her problems in parent-child treatment.Journal of Applied Behavior Analysis, 13, 207–219.Google Scholar

Copyright information

© Plenum Publishing Corporation 1987

Authors and Affiliations

  • Marie M. Bristol
    • 1
  1. 1.Division TEACCH, Department of Psychiatry, CB 7180 Medical School Wing EUniversity of North Carolina at Chapel HillChapel Hill

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