Abstract
We examined the educational implications of newborn screening for cystic fibrosis (CF) as performed by combining the measurement of immunoreactive trypsin with analysis for the most common CF mutation, ΔF508. Four out of 77 (5%) of maternity staff from 11 hospitals in rural New South Wales, Australia had learned about the salient features of the screening protocol from a pamphlet distributed from a central laboratory. In comparison, a didactic lesson resulted in a significantly greater (p<0.00006) number of maternity staff learning about the salient features of the screening protocol. Most maternity staff expanded their explanation to parents of newborn babies because of the didactic lesson.
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Rae, J., Partington, M.W. Newborn screening for cystic fibrosis: Educational implications. J Genet Counsel 4, 193–198 (1995). https://doi.org/10.1007/BF01408409
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DOI: https://doi.org/10.1007/BF01408409