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A transplant of real life

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Abstract

A case of steroid-resistant nephrotic syndrome with focal segmental glomerulosclerosis leading to renal failure in a 4-year-old girl is described by her mother, with special emphasis on the problems resulting from recurrence of this disease, with graft loss in three successive kidney transplants. This report chronicles the gradual evolution from a family's initial heavy dependence upon medical solutions to their ultimate primary emphasis upon spiritual values, with medicine seen as the support toward achieving the child's psychological well-being and spiritual growth. The physician's role in balancing medical decision making, non-medical alternatives, and demands on limited and precious resources in such difficult cases is discussed.

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Authors and Affiliations

  1. Departments of Biomedical Ethics and Pediatrics, University of Minnesota Medical School, 55455, Minneapolis, MN, USA

    Vivian Diaz, Arthur Caplan & S. Michael Mauer

Authors
  1. Vivian Diaz
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  2. Arthur Caplan
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  3. S. Michael Mauer
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Diaz, V., Caplan, A. & Mauer, S.M. A transplant of real life. Pediatr Nephrol 7, 585–588 (1993). https://doi.org/10.1007/BF00852554

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  • DOI: https://doi.org/10.1007/BF00852554

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