Abstract
Thanks to recent innovations in medicine, it is now possible to detect many so-called genetic diseases' before birth. Consequently, there is a growing movement amongst the medical fraternity advocating genetic counseling: the detection and abortion of diseased fetuses, before birth. This paper considers the implications of this practice on the general quality of life, examining in some detail cost-benefit analyses of the most extensive screening and counseling programme to date, the Kennedy Institute project aimed at reducing the numbers of North American Jewish children born with Tay-Sachs disease. It is argued that although genetic counseling clearly does hold prospects for improving the quality of life in some respects, nevertheless it raises many questions (e.g. to do with minorities and the poor), and care must be taken lest-stampeded by the enthusiasms of medical researchers-overall the quality of life declines.
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Bibliography
BirchC. and P.Abrecht: 1975, Genetics and the Quality of Life (New South Wales, Pergamon).
BlumbergB. D. et al.: 1975, ‘The psychological sequelae of abortion performed for a genetic indication’, Am. J. Obstet. Gynecol. 122, pp. 799–808.
BorgaonkarD. S. and S. A.Shah: 1974, ‘The XYY chromosome male — or syndrome’, Prog. Med. Gen. 10, pp. 135–222.
BrockD. J. H.: 1977, ‘Biochemical and cytological methods in the diagnosis of neural tube defects’, Progress in Medical Genetics 2 (Philadelphia, Saunders) pp. 1–37.
CallahanD.: 1973, ‘The meaning and significance of genetic disease’, In B. Hilton et al., Ethical Issues in Human Genetics (New York, Plenum).
CrowJ. F.: 1973, ‘Population perspective’, In B. Hilton et al., Ethical Issues in Human Genetics (New York, Plenum Press).
EpsteinC. J. and M. S.Golbus: 1977, ‘Prenatal diagnosis of genetic diseases’, Am. Sci. 55, pp. 703–11.
FletcherJ.: 1973, ‘Parents of genetic counseling: the moral shape of decision-making’, In B. Hilton et al., Ethical Issues in Human Genetics (New York, Plenum).
HagardS., F.Carter and R. G.Milne: 1976, ‘Screening for spina bifida cystica: a cost-benefit analysis’, Brit. J. Prev. Soc. Med. 30, pp. 40–53.
HiltonB. et al.: 1073, Ethical Issues in Human Genetics. (New York, Plenum).
KabackM. et al.: 1974, ‘Approaches to the control and prevention of Tay-Sachs disease’, In A.Steinberg and A. G.Bearn (eds). Progress in Medical Genetics. (New York, Grune and Stratton).
KabackM. and R. S.Zeiger: 1973, ‘The John F. Kennedy Institute Tay-Sachs Program’, In B. Hilton et al., Ethical Issues in Human Genetics (New York, Plenum Press).
KanY. W., M. S.Golbus, R.Trecartin: 1976, ‘Prenatal diagnosis of sickle-cell anemia’, N. Engl. J. Med. 294, pp. 1039–40.
LevitanM. and A.Montague: 1977, Textbook of Human Genetics. 2nd ed. (New York, Oxford University Press).
McCallS.: 1976, ‘Human needs and the quality of life’, In W. R.Shea and J.King-Farlow (eds). Values and the Quality of Life (New York, Science History Publications).
MichalosA. C.: 1976, ‘Measuring the quality of life’, In W. R.Shea and J.King-Farlow (eds). Values and the Quality of Life. (New York, Science History Publications).
Reilly, P.: 1975, ‘Genetic screening legislation’, In H. Harris and K. Hirschhorn (eds). Advances in Human Genetics 5, pp. 319–76.
RuseM.: 1978, Sociobiology: Sense or Nonsense? (Dordrecht, Reidel).
SteinZ., M.Susser and A. V.Guterman: 1973, ‘Screening programme for prevention of Down's syndrome’, Lancet 1, pp. 305–10.
WesthoffC. F. and R. R.Rindfuss: 1974. ‘Sex preselection in the United States: Some implications’, Science 184, pp. 633–6.
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Ruse, M. Genetics and the quality of life. Soc Indic Res 7, 419–441 (1980). https://doi.org/10.1007/BF00305610
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DOI: https://doi.org/10.1007/BF00305610