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Advances in Neurodevelopmental Disorders

, Volume 3, Issue 1, pp 17–28 | Cite as

What it Takes to Raise Children with Autism in a Rural State

  • Reshmi L. SinghEmail author
  • Eric J. Moody
  • Bethany Rigles
  • Elyssa B. Smith
ORIGINAL PAPER

Abstract

Parents of children with autism living in a rural state face unique challenges based on their location. These include barriers to diagnosis and treatment, driven in part by scarcity of professionals familiar with autism and long distances between services providers and family residences. Instead of focusing on these barriers, which are well known and researched, we utilized a strength-based technique known as Appreciative Inquiry (AI) to inquire how parents view and experience success for their child with autism in a rural state. Our investigation was conducted with 22 parents of children with autism ranging in age from 30 to 60 years using semi-structured interviews. Data were analyzed using thematic analysis. Results of our analysis indicated that parents envisioned and promoted success for their child over time through: (1) developing skills, (2) integrating (their) child into community, (3) building relationships, (4) advocating by parent and child, and (5) adapting to their new reality. Our findings showed that parents in a rural location define success based on their existent resources and support systems provided by clinicians, school personnel, and most importantly, support from the larger community (e.g., other parents). Parents in our study showed that behavioral interventions are not the only solution.

Keywords

Autism Appreciative inquiry Rural Success Parents 

Notes

Author Contributions

RLS: Executed the study and did the data analyses and wrote the study manuscript. EJM: Designed the study and collaborated on the writing and editing of the study manuscript. BR: Executed the study and collaborated on the writing and editing of the study. EBS: Transcribed the interviews and collaborated with RLS on the data analysis and writing and editing of the study manuscript.

Compliance with Ethical Standards

Conflict of Interest

The authors declare that they have no competing interests.

Ethics Statement

The University of Wyoming Institutional Review Board reviewed and approved this human subjects study.

Informed Consent Statement

Informed consent was obtained from each parent participant in this study before data collection—interviews were conducted.

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Copyright information

© Springer Nature Switzerland AG 2018

Authors and Affiliations

  1. 1.Wyoming Institute for Disabilities, College of Health Sciences School of PharmacyUniversity of WyomingLaramieUSA
  2. 2.Wyoming Institute for Disabilities (WIND), College of Health SciencesUniversity of WyomingLaramieUSA
  3. 3.University of Colorado BoulderBoulderUSA
  4. 4.School of Counseling, Leadership, Advocacy, and Design (CLAD), Counselor Education and SupervisionUniversity of WyomingLaramieUSA

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