Advertisement

Voluntarism and civil society in the neoliberal era: a study on the palliative care movement in Kerala

  • R. Santhosh
Research Paper

Abstract

Locating itself within the debates on state-civil society relationship in the neoliberal era, this paper analyzes the community-led palliative care movement in Kerala and explores the nature of civil society participation and state patronage that made this movement highly successful in the state. The paper explains how civil society organizations including religious groups play pivotal role by providing volunteers and ensuring resources from the community for the everyday functioning of this movement aimed at providing palliative care to the terminally ill. The paper discusses the curious scenario where this initiative could persuade the state to replicate this model and incorporate it in the health delivery system of the government, thereby making Kerala the first state in India with an official palliative care policy and statewide support system in place. While discussing the specific socio-historic context that facilitated increased involvement of civil society organizations in the welfare programs in conjunction with the state in Kerala, the paper suggests that this experiment complicates the understanding of a neoliberal welfare state and highlights the necessity to analyze the local level manifestations of neoliberalism in different socio-political settings.

Keywords

Neoliberalism Civil society Palliative care Religion Kerala 

References

  1. Atia M (2011) ‘A way to paradise’: pious neoliberalism, Islam and faith-based development. Ann Assoc Am Geogr 102(4):808–827CrossRefGoogle Scholar
  2. Bayat A (2002) Activism and social development in middle east. Int J Middle East Stud 34(1):1–28Google Scholar
  3. Bayat A (2007) Making Islam democratic. Stanford University Press, StanfordCrossRefGoogle Scholar
  4. Beck U (2005) The cosmopolitan state: redefining power in the global age. Int J Polit Cult Soc 18(3):143–159Google Scholar
  5. Benthall J, Bellion-Jourdan J (2003) The charitable crescent: politics of aid in the Muslim world. B. Tauris, LondonGoogle Scholar
  6. Beteille A (2003) Civil society and its institutions. In: Elliott CM (ed) Civil society and democracy: a reader. Oxford University Press, New DelhiGoogle Scholar
  7. Beyer P (1994) Religion and globalisation. Sage, LondonGoogle Scholar
  8. Beyer P (2006) The religious system of global society. Routledge, LondonGoogle Scholar
  9. Bhagwati J (2004) In defence of globalisation. Oxford University Press, OxfordGoogle Scholar
  10. Casanova J (2001) Religion, the new millennium, and globalisation. Sociol Relig 62(4):415–441CrossRefGoogle Scholar
  11. Castells M (2008) The new public sphere: global civil society, communication networks, and global governance. Ann Am Acad Polit Soc Sci 616(1):78–93CrossRefGoogle Scholar
  12. Chandhoke N (2012) Globality, state, and collective imagination: the Indian experience. In: Brar B, Mukherjee P (eds) Facing globality. Oxford University Press, New DelhiGoogle Scholar
  13. Chatterjee P (2001) One civil and political societies in post-colonial democracies. In: Kaviraj S, Khilnani S (eds) Civil society. Cambridge University Press, New DelhiGoogle Scholar
  14. Chatterjee P (2010) The state. In: Jayal NG, Mehta PB (eds) The Oxford companion to politics in India. Oxford University Press, New DelhiGoogle Scholar
  15. Chaudhury M, Amar Nath HK (2012) An estimate of public expenditure on health in India. National Institute of Public Finance and Policy. New DelhiGoogle Scholar
  16. Clark JA (2004) Islam, charity and activism: middleclass networks and social welfare in Egypt, Jordan and Yemen. Indiana University Press, BloomingtonGoogle Scholar
  17. De Cordier B (2010) Challenges of social upliftment and definition of identity: a field analysis of the social service network of Jamaat-e-Islami Hind, Meerut, India. J Muslim Minor Aff 30(4):479–500CrossRefGoogle Scholar
  18. Devika J (2007) Fears of contagion? Depoliticisation and recent conflicts over politics in Kerala. Econ Polit Wkly 42(25):2464–2470Google Scholar
  19. Frankie RW, Chasin BH (1997) Power to the Malayalee people. Econ Polit Wkly 32(48):3061–3068Google Scholar
  20. Government of Kerala (2009) Palliative care policy. Government of Kerala, ThiruvananthapuramGoogle Scholar
  21. Habermas J et al (2010) An Awareness of what is missing: faith and reason in post-secular age (Cronin C, Trans). Polity Press, MaldanGoogle Scholar
  22. Hart G (2004) Geography and development: critical ethnographies. Prog Hum Geogr 28:91–100CrossRefGoogle Scholar
  23. Harvey D (2007) Neoliberalism and creative destruction. Ann Am Acad Polit Soc Sci 610:22–44CrossRefGoogle Scholar
  24. Hefner RW (2001) Public Islam and the problem of democratization. Sociol Relig 62(4):491–514CrossRefGoogle Scholar
  25. Higgot R (2000) Contested gloablization: the changing context and normative challenges. Rev Int Stud 26:131–156CrossRefGoogle Scholar
  26. Hindess B (2004) Liberalism—What’s in a Name? In: Larner W, Walters W (eds) Global governmentality: governing international spaces. Routledge, London, pp 23–39Google Scholar
  27. Hooda SK (2013) Changing pattern on public health expenditure in India: issues and challenges. ISID‐PHFI Collaborative Research Programme Working Paper Series 01. New DelhiGoogle Scholar
  28. Jeffrey R (1992) Politics, women and well being. Oxford University Press, DelhiCrossRefGoogle Scholar
  29. Kumar S (2012) Public health approaches to palliative care: the neighborhood network in Kerala. In: Sallnow L, Kumar S, Kellehear A (eds) International perspectives in palliative care. Routledge, New YorkGoogle Scholar
  30. Kumar S, Mathew N (2005) Neighborhood network in palliative care. Indian J Palliat Care 11(1):6–9CrossRefGoogle Scholar
  31. Little A (2002) The politics of community: theory and practice. Edinburgh University Press, EdinburghGoogle Scholar
  32. Marshall C (2011) Development and faith institutions: gulfs and bridges. In: ter Haar G (ed) Religion and development ways of transforming the world. Hurst and Company, LondonGoogle Scholar
  33. Mason A (2000) Community, solidarity and belonging: levels of community and their normative significance. Cambridge University Press, CambridgeCrossRefGoogle Scholar
  34. McGrew A (2007) Globalisation in hard times: contention in the academy and beyond. In: Ritzer G (ed) The Blackwell companion to globalisation. Blackwell, MaldenGoogle Scholar
  35. Paleri AK, Numpeli M (2005) The evolution of palliative care in North Kerala. Indian J Palliat Care 1(1):15–18CrossRefGoogle Scholar
  36. Rajagopal MR, Kumar S (1999) A model for delivery of palliative care in India—the Calicut experiment. J Palliat Care 15:44–49Google Scholar
  37. Rajasenan D, de Groot Gerard (2005) Kerala economy: trajectories, challenges, and implications. Directorate of Publications and Public Relations, Cochin University of Science and Technology, KochiGoogle Scholar
  38. Ramankutty V (2000) Historical analysis of the development of health care facilities in Kerala State, India. Health Policy Plan 15(1):101–109Google Scholar
  39. Robertson R, Chirico J (1985) Humanity, globalisation, worldwide religious resurgence: a theoretical exploration. Sociol Anal 46:219–242CrossRefGoogle Scholar
  40. Santhosh R (2015) Islamic activism and palliative care: an analysis from Kerala. In: Fountain P, Bush R, Feener RM (eds) Religion and politics of development. Palgrave Macmillan, BasingstokeGoogle Scholar
  41. Sen A (2007) Global inequality and human security. In: Nayar BR (ed) Globalisation and politics in India. Oxford University Press, New DelhiGoogle Scholar
  42. Sen A, Dreze J (1992) India: economic development and social opportunity. Oxford University Press, DelhiGoogle Scholar
  43. Sharma A (2006) Crossbreeding institutions, breeding struggle: women’s empowerment, neoliberal governmentality and state (re)formation in India. Cult Anthropol 21(1):60–95CrossRefGoogle Scholar
  44. Starr A (2000) Naming the enemy: anti-corporate movements confront globalisation. Zed Books, New YorkGoogle Scholar
  45. Stiglitz J (2003) Globalisation and its discontents. W. W. Norton, New YorkGoogle Scholar
  46. Stjernsward J (2007) Palliative care: the public health strategy. J Public Health Policy 28(1):42–55CrossRefGoogle Scholar
  47. Sullivan DJ (1994) Private voluntary organisations in Egypt: Islamic development, private initiative, and state control. University Press of Florida, GainesvilleGoogle Scholar
  48. Thomas B, Rajesh K (2011) Decentralisation and interventions in health sector: a critical inquiry into the experience of local self governments in Kerala. Working Paper 271. Institute for Social and Economic Change, BangaloreGoogle Scholar
  49. Vijay D, Mukta K (2009) Framing and diffusion of the palliative care movement in Kerala, India (Unpublished paper)Google Scholar

Copyright information

© Institute for Social and Economic Change 2016

Authors and Affiliations

  1. 1.Department of Humanities and Social SciencesIIT MadrasChennaiIndia

Personalised recommendations