Stigmatization of Children and Adolescents with Autism Spectrum Disorders and their Families: a Scoping Study

  • Rinita MazumderEmail author
  • Sandra Thompson-Hodgetts
Review Paper



Individuals with autism spectrum disorder (ASD) and their families may experience high rates of stigmatization, including self-stigma, public stigma, stigma through association, and structural stigma.


We conducted a scoping review of peer-reviewed publications to identify, describe, and summarize existing literature related to stigma and ASD.


Twenty-five articles met our inclusion criteria, including 14 qualitative, 9 quantitative, and 1 mixed method studies and 1 meta-synthesis. Four emergent themes include social perceptions of ASD, social isolation, well-being and responses to stigma, and stigma reduction.


Knowledge generated from this scoping review provides an overview of the influence that stigma may have on individuals with ASD and their families. Further research directions are suggested to address structural stigma and community inclusion.


Scoping review Stigma Public stigma Children Families Caregivers Autism spectrum disorders ASD 


Compliance with Ethical Standards

Conflict of interest

The authors declare that they have no conflict of interest.


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Copyright information

© Springer Science+Business Media, LLC, part of Springer Nature 2019

Authors and Affiliations

  1. 1.Faculty of Rehabilitation MedicineUniversity of AlbertaEdmontonCanada
  2. 2.Department of Occupational TherapyUniversity of AlbertaEdmontonCanada

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