Current Developmental Disorders Reports

, Volume 5, Issue 3, pp 150–156 | Cite as

Promoting Wellness in People with Intellectual and Developmental Disabilities Through Relationships

  • Haleigh M. Scott
  • Susan M. HavercampEmail author
Intellectual Disability (Y Lunsky, Section Editor)
Part of the following topical collections:
  1. Topical Collection on Intellectual Disability


Purpose of Review

Social ties are essential to the health and wellness of people with intellectual and developmental disabilities (IDD); however, a better understanding of factors that promote and support the development of social relationships is needed to develop effective policies and interventions to promote wellness.

Recent Findings

Three factors that influence the formation and maintenance of social ties for people with IDD are individual capacity, interpersonal supports, and organizational or community supports.


The benefits of a strong social network and the dangers of isolation have been well established in people with and without IDD. Yet, there is a lack of research and planning around how best to support people with IDD in developing and maintaining social relationships. Policy and organizational changes as well as increased research attention is needed to promote the health and wellness of people with IDD by nurturing relationships.


intellectual disability developmental disabilities wellness health social relationships 


Compliance with Ethical Standards

Conflict of Interest

The authors declare that they have no conflict of interests.

Human and Animal Rights and Informed Consent

This article does not contain any studies with human or animal subjects performed by any of the authors.


  1. 1.
    Helliwell JF, Putnam RD. The social context of well-being. Philos Trans R Soc B Biol Sci. 2004;359(1449):1435–46.CrossRefGoogle Scholar
  2. 2.
    Cohen S, Wills TA. Stress, social support, and the buffering hypothesis. Psychol Bull. 1985;98(2):310–57.CrossRefPubMedGoogle Scholar
  3. 3.
    Berkman LF, Syme SL. Social networks, host resistance and mortality: a nine-year follow-up study of Alameda County residents. Am J Epidemiol. 1979;109:186–204.CrossRefPubMedGoogle Scholar
  4. 4.
    Broadhead WE, Kaplan BH, James SA, Wagner EH, Schoenbach VJ, Grimson R, et al. The epidemiologic evidence for a relationship between social support and health. Am J Epidemiol. 1983;117(5):521–37.CrossRefPubMedGoogle Scholar
  5. 5.
    George LK, Blazer DG, Hughes DC, Fowler N. Social support and the outcome of major depression. Br J Psychiatry. 1989;154(4):478–85.CrossRefPubMedGoogle Scholar
  6. 6.
    Olstad R, Sexton H, Søgaard AJ. The Finnmark study. A prospective population study of the social support buffer hypothesis, specific stressors and mental distress. Soc Psychiatry Psychiatr Epidemiol. 2001;36(12):582–9.CrossRefPubMedGoogle Scholar
  7. 7.
    Vogt TM, Mullooly JP, Ernst D, Pope CR, Hollis JF. Social networks as predictors of ischemic heart disease, cancer, stroke and hypertension: incidence, survival and mortality. J Clin Epidemiol. 1992;45(6):659–66.CrossRefPubMedGoogle Scholar
  8. 8.
    Leavy RL. Social support and psychological disorder: a review. J Community Psychol. 1983;11(1):3–21.CrossRefPubMedGoogle Scholar
  9. 9.
    Cohen S. Social relationships and health. Am Psychol. 2004;59(8):676–84.CrossRefPubMedGoogle Scholar
  10. 10.
    Lyyra TM, Heikkinen RL. Perceived social support and mortality in older people. J Gerontol Ser B Psychol Sci Soc Sci. 2006;61(3):S147–52.CrossRefGoogle Scholar
  11. 11.
    Kawachi I, Berkman LF. Social ties and mental health. J Urban Health. 2001;78(3):458–67.CrossRefPubMedPubMedCentralGoogle Scholar
  12. 12.
    Kessler RC, Price RH, Wortman CB. Social factors in psychopathology: stress, social support, and coping processes. Annu Rev Psychol. 1985;36(1):531–72.CrossRefPubMedGoogle Scholar
  13. 13.
    Kroenke CH, Kubzansky LD, Schernhammer ES, Holmes MD, Kawachi I. Social networks, social support, and survival after breast cancer diagnosis. J Clin Oncol. 2006;24(7):1105–11.CrossRefPubMedGoogle Scholar
  14. 14.
    Tomaka J, Thompson S, Palacios R. The relation of social isolation, loneliness, and social support to disease outcomes among the elderly. J Aging Health. 2006;18(3):359–84.CrossRefPubMedGoogle Scholar
  15. 15.
    Uchino BN. Social support and physical health: understanding the health consequences of relationships. Yale University Press; 2004.Google Scholar
  16. 16.
    Holt-Lunstad J, Smith TB, Layton JB. Social relationships and mortality risk: a meta-analytic review. PLoS Med. 2010;7(7):e1000316.CrossRefPubMedPubMedCentralGoogle Scholar
  17. 17.
    Siedlecki KL, Salthouse TA, Oishi S, Jeswani S. The relationship between social support and subjective well-being across age. Soc Indic Res. 2014;117(2):561–76.CrossRefPubMedGoogle Scholar
  18. 18.
    Lunsky Y, Benson BA. Association between perceived social support and strain, and positive and negative outcome for adults with mild intellectual disability. J Intellect Disabil Res. 2001;45(2):106–14.CrossRefPubMedGoogle Scholar
  19. 19.
    Meins W. Prevalence and risk factors for depressive disorders in adults with intellectual disability. Aust N Z J Dev Disabil. 1993;18(3):147–56.Google Scholar
  20. 20.
    Scott HM, Havercamp SM. Mental health for people with intellectual disability: the impact of stress and social support. Am J Intellect Dev Disabil. 2014;119(6):552–64.CrossRefPubMedGoogle Scholar
  21. 21.
    Simplican SC, Leader G, Kosciulek J, Leahy M. Defining social inclusion of people with intellectual and developmental disabilities: an ecological model of social networks and community participation. Res Dev Disabil. 2015;38:18–29.CrossRefPubMedGoogle Scholar
  22. 22.
    Taheri A, Perry A, Minnes P. Examining the social participation of children and adolescents with intellectual disabilities and autism spectrum disorder in relation to peers. J Intellect Disabil Res. 2016;60(5):435–43.CrossRefPubMedGoogle Scholar
  23. 23.
    Heiman T. Friendship quality among children in three educational settings. J Intellect Dev Disabil. 2000;25(1):1–12.CrossRefGoogle Scholar
  24. 24.
    Lippold T, Burns J. Social support and intellectual disabilities: a comparison between social networks of adults with intellectual disability and those with physical disability. J Intellect Disabil Res. 2009;53(5):463–73.CrossRefPubMedGoogle Scholar
  25. 25.
    Kamstra A, Putten AA, Vlaskamp C. The structure of informal social networks of persons with profound intellectual and multiple disabilities. J Appl Res Intellect Disabil. 2015;28(3):249–56.CrossRefPubMedGoogle Scholar
  26. 26.
    Bigby C, Knox M, Beadle-Brown J, Bould E. Identifying good group homes: qualitative indicators using a quality of life framework. Intellect Dev Disabil. 2014;52(5):348–66.CrossRefPubMedGoogle Scholar
  27. 27.
    Fulford C, Cobigo V. Friendships and intimate relationships among people with intellectual disabilities: a thematic synthesis. J Appl Res Intellect Disabil. 2018;31(1):e18–35.CrossRefPubMedGoogle Scholar
  28. 28.
    Havercamp SM, Scandlin D, Roth M. Health disparities among adults with developmental disabilities, adults with other disabilities, and adults not reporting disability in North Carolina. Public Health Rep. 2004;119(4):418–26.CrossRefPubMedPubMedCentralGoogle Scholar
  29. 29.
    Havercamp SM, Scott HM. National health surveillance of adults with disabilities, adults with intellectual and developmental disabilities, and adults with no disabilities. Disabil Health J. 2015;8(2):165–72.CrossRefPubMedGoogle Scholar
  30. 30.
    Verdonschot MM, De Witte LP, Reichrath E, Buntinx WH, Curfs LM. Community participation of people with an intellectual disability: a review of empirical findings. J Intellect Disabil Res. 2009;53(4):303–18.CrossRefPubMedGoogle Scholar
  31. 31.
    Firth H, Rapley M. From acquaintance to friendship: Issues for people with learning disabilities. Kidderminster: BIMH Publications; 1990.Google Scholar
  32. 32.
    Swango-Wilson A. Meaningful sex education programs for individuals with intellectual/developmental disabilities. Sex Disabil. 2011;29(2):113–8.CrossRefGoogle Scholar
  33. 33.
    Hughes C, Kaplan L, Bernstein R, Boykin M, Reilly C, Brigham N, et al. Increasing social interaction skills of secondary school students with autism and/or intellectual disability: a review of interventions. Res Pract Persons Severe Disabil. 2012;37(4):288–307.CrossRefGoogle Scholar
  34. 34.
    McGaw S, Ball K, Clark A. The effect of group intervention on the relationships of parents with intellectual disabilities. J Appl Res Intellect Disabil. 2002;15(4):354–66.CrossRefGoogle Scholar
  35. 35.
    Ward KM, Atkinson JP, Smith CA, Windsor R. A friendships and dating program for adults with intellectual and developmental disabilities: a formative evaluation. Intellect Dev Disabil. 2013;51(1):22–32.CrossRefPubMedGoogle Scholar
  36. 36.
    Ward KM, Windsor R, Atkinson JP. A process evaluation of the friendships and dating program for adults with developmental disabilities: measuring the fidelity of program delivery. Res Dev Disabil. 2012;33(1):69–75.CrossRefPubMedGoogle Scholar
  37. 37.
    Asselt-Goverts AE, Embregts PJ, Hendriks AH, Frielink N. Experiences of support staff with expanding and strengthening social networks of people with mild intellectual disabilities. J Community Appl Soc Psychol. 2014;24(2):111–24.CrossRefGoogle Scholar
  38. 38.
    Wilson NJ, Jaques H, Johnson A, Brotherton ML. From social exclusion to supported inclusion: adults with intellectual disability discuss their lived experiences of a structured social group. J Appl Res Intellect Disabil. 2017;30(5):847–58.CrossRefPubMedGoogle Scholar
  39. 39.
    Braddock DL, Hemp R, Tanis ES, Wu J, Haffer L. The state of the states in intellectual and developmental disabilities, 2017. American Association on Intellectual and Developmental Disabilities; 2017.Google Scholar
  40. 40.
    Sigstad HMH. Significance of friendship for quality of life in adolescents with mild intellectual disability: a parental perspective. J Intellect Develop Disabil. 2016;41(4):289–98.CrossRefGoogle Scholar
  41. 41.
    Mailick Seltzer M, Wyngaarden Krauss M. Quality of life of adults with mental retardation/developmental disabilities who live with family. Dev Disabil Res Rev. 2001;7(2):105–14.Google Scholar
  42. 42.
    Bane G, Deely M, Donohoe B, Dooher M, Flaherty J, Iriarte EG, et al. Relationships of people with learning disabilities in Ireland. Br J Learn Disabil. 2012;40(2):109–22.CrossRefGoogle Scholar
  43. 43.
    Krauss MW, Seltzer MM, Goodman SJ. Social support networks of adults with mental retardation who live at home. Am J Ment Retard. 1992.Google Scholar
  44. 44.
    Bigby C. When parents relinquish care: informal support networks of older people with intellectual disability. J Appl Res Intellect Disabil. 1997;10(4):333–44.CrossRefGoogle Scholar
  45. 45.
    Kamstra A, Putten AA, Post WJ, Vlaskamp C. Informal social networks of people with profound intellectual and multiple disabilities: relationship with age, communicative abilities and current living arrangements. J Appl Res Intellect Disabil. 2015;28(2):159–64.CrossRefPubMedGoogle Scholar
  46. 46.
    Rossetti Z, Hall S. Adult sibling relationships with brothers and sisters with severe disabilities. Res Pract Persons Severe Disabil. 2015;40(2):120–37.CrossRefGoogle Scholar
  47. 47.
    Floyd FJ, Costigan CL, Richardson SS. Sibling relationships in adolescence and early adulthood with people who have intellectual disability. Am J Intellect Dev Disabil. 2016;121(5):383–97.CrossRefPubMedGoogle Scholar
  48. 48.
    Kramer J, Hall A, Heller T. Reciprocity and social capital in sibling relationships of people with disabilities. Ment Retard. 2013;51(6):482–95.Google Scholar
  49. 49.
    Lunsky Y, Neely LC. Extra-individual sources of social support as described by adults with mild intellectual disabilities. Ment Retard. 2002;40(4):269–77.CrossRefPubMedGoogle Scholar
  50. 50.
    NASDDDS and HSRI 2015 National Core Indicators Staff Stability Survey Report. A collaboration on the National Association of State Directors of Developmental Disability Services and Human Services Research Institute 2016. 47 p. Available from: .
  51. 51.
    Gaventa BC. Spirituality, quality of life, and pathways to inclusion and belonging (invited presentation), topics in developmental disabilities. Columbus: The Ohio State University Nisonger Center; 2018.Google Scholar
  52. 52.
    Lunsky Y. Individual differences in interpersonal relationships for persons with mental retardation. Int Rev Res Men Retarda. 2006;31:117–61.CrossRefGoogle Scholar
  53. 53.
    Mason P, Timms K, Hayburn T, Watters C. How do people described as having a learning disability make sense of friendship? J Appl Res Intellect Disabil. 2013;26(2):108–18.CrossRefPubMedGoogle Scholar
  54. 54.
    Wiener J, Tardif CY. Social and emotional functioning of children with learning disabilities: does special education placement make a difference? Learn Disabil Res Pract. 2004;19(1):20–32.CrossRefGoogle Scholar
  55. 55.
    Siperstein GN, Leffert JS, Wenz-Gross M. The quality of friendships between children with and without learning problems. Am J Ment Retard. 1997;102(2):111–25.CrossRefPubMedGoogle Scholar
  56. 56.
    Friedman C, Rizzolo MC. Friendship, quality of life, and people with intellectual and developmental disabilities. J Dev Phys Disabil. 2018;30(1):39–54.CrossRefGoogle Scholar
  57. 57.
    Bigby C. Known well by no-one: trends in the informal social networks of middle-aged and older people with intellectual disability five years after moving to the community. J Intellect Dev Disabil. 2008;33(2):148–57.CrossRefPubMedGoogle Scholar
  58. 58.
    McConkey R, Collins S. The role of support staff in promoting the social inclusion of persons with an intellectual disability. J Intellect Disabil Res. 2010;54(8):691–700.CrossRefPubMedGoogle Scholar
  59. 59.
    McConkey R, Dowling S, Hassan D, Menke S. Promoting social inclusion through unified sports for youth with intellectual disabilities: a five-nation study. J Intellect Disabil Res. 2013;57(10):923–35.CrossRefPubMedGoogle Scholar
  60. 60.
    Fish TR, Rabidoux P. Next chapter book club: a model community literacy program for people with intellectual disabilities. Woodbine House; 2009.Google Scholar
  61. 61.
    Fish TR, Rabidoux P, Ober J, Graff VL. Community literacy and friendship model for people with intellectual disabilities. Ment Retard. 2006;44:443–6.CrossRefPubMedGoogle Scholar
  62. 62.
    Hollins S, Egerton J, Carpenter B. Book clubs for people with intellectual disabilities: the evidence and impact on wellbeing and community participation of reading wordless books. Adv Ment Health Intellect Disabil. 2016;10(5):275–83. Scholar
  63. 63.
    Lunsky Y, Benson BA. Reliability of ratings of consumers with mental retardation and their staff on multiple measures of social support. Am J Ment Retard. 1997;102(3):280–4.CrossRefPubMedGoogle Scholar
  64. 64.
    Scott HM, Havercamp SM. Comparisons of self and proxy report on health-related factors in people with intellectual disability. J Appl Res Intellect Disabil. 2018.Google Scholar
  65. 65.
    Venema E, Otten S, Vlaskamp C. The efforts of direct support professionals to facilitate inclusion: the role of psychological determinants and work setting. J Intellect Disabil Res. 2015;59(10):970–9.CrossRefPubMedGoogle Scholar
  66. 66.
    Mansell J, Beadle-Brown J. Person-centred planning or person-centred action? Policy and practice in intellectual disability services. J Appl Res Intellect Disabil. 2004;17(1):1–9.CrossRefGoogle Scholar
  67. 67.
    Kamstra A, van der Putten AA, Vlaskamp C. Efforts to increase social contact in persons with profound intellectual and multiple disabilities: analysing individual support plans in the Netherlands. J Intellect Disabil. 2017;21(2):158–74.CrossRefPubMedGoogle Scholar
  68. 68.
    Bigby C, Beadle-Brown J. Improving quality of life outcomes in supported accommodation for people with intellectual disability: what makes a difference? J Appl Res Intellect Disabil. 2018;31(2):e182–200.CrossRefPubMedGoogle Scholar
  69. 69.
    van Asselt-Goverts AE, Embregts PJ, Hendriks AH. Evaluation of a social network intervention for people with mild to borderline intellectual disabilities. J Appl Res Intellect Disabil. 2018;31(2):e229–43.CrossRefPubMedGoogle Scholar

Copyright information

© Springer International Publishing AG, part of Springer Nature 2018

Authors and Affiliations

  1. 1.University of Illinois at ChicagoChicagoUSA
  2. 2.The Ohio State University Nisonger CenterColumbusUSA

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