Developing Guidance on Ethics for Patient Groups Collecting and Reporting Patient Information for Health Technology Assessments

Commentary

References

  1. 1.
    Hailey DW. Involvement of consumers in health technology assessments by INAHTA agencies. Int J Technol Assess Health Care. 2013;29(1):79–83.PubMedCrossRefGoogle Scholar
  2. 2.
    Gagnon MP, Desmartis M, Lepage-Savary D, Gagnon J, St-Pierre M, Rhainds M, Lemieux R, Gauvin FP, Pollender H, Légaré F. Introducing patients’ and the public’s perspectives to health technology assessment: a systematic review of international experiences. Int J Technol Assess Health Care. 2011;27(1):31–42.PubMedCrossRefGoogle Scholar
  3. 3.
    Gauvin FP, Abelson J, Giacomini M, Eyles J, Lavis JN. Moving cautiously: public involvement and the Health Technology Assessment Community. Int J Technol Assess Health Care. 2011;27(1):43–9.PubMedCrossRefGoogle Scholar
  4. 4.
    Smit C. Personal reflections of a patient representative in an appraisal committee. Patient. 2015;8:5–10.PubMedCrossRefGoogle Scholar
  5. 5.
    Patients and Citizen Involvement Interest Sub-Group. Good practice examples of patient and public involvement in health technology assessment. Feb 2015. http://www.htai.org/fileadmin/HTAi_Files/ISG/PatientInvolvement/EffectiveInvolvement/Good_Practice_Examples_Feb_2015.pdf. Accessed 17 Jul 2015.
  6. 6.
    Facey K, Boivin A, Gracia J, Hansen HP, Lo Scalzo A, Mossman J, Single A. Patients’ perspectives in health technology assessment: a route to robust evidence and fair deliberation. Int J Technol Assess Health Care. 2010;26(3):334–40.PubMedCrossRefGoogle Scholar
  7. 7.
    Patients and Citizen Involvement Interest Sub-Group. Patient group submission template—medicines HTA. 2014. http://www.htai.org/interest-groups/patient-and-citizen-involvement/resources/for-hta-agencies-and-policy-makers.html. Accessed 17 Jul 2015.
  8. 8.
    Patients and Citizen Involvement Interest Sub-Group. Patient group submission template—non-medicines HTA. 2014. http://www.htai.org/interest-groups/patient-and-citizen-involvement/resources/for-hta-agencies-and-policy-makers.html. Accessed 17 Jul 2015.
  9. 9.
    Scottish Medicines Consortium. Patient group submission form. http://www.scottishmedicines.org.uk/Public_Involvement/Patient_Group_Submission_Form.pdf. Accessed 11 Sep 2015.
  10. 10.
    National Institute for Health and Care Excellence. Patient/Carer Organisation Statement. http://www.nice.org.uk/Media/Default/About/NICE-Communities/Public-involvement/Developing-NICE-guidance/Patient-Organisation-STA-Template.docm. Accessed 11 Sep 2015.
  11. 11.
    Canadian Agency for Drugs and Technologies in Health. Patient input templates. https://www.cadth.ca/about-cadth/what-we-do/products-services/cdr/patient-input/patient-input-templates. Accessed 11 Sep 2015.
  12. 12.
    Patients and Citizen Involvement Interest Sub-Group, Patients and Citizen Involvement Interest Sub-Group. 2013. http://www.htai.org/fileadmin/HTAi_Files/ISG/PatientInvolvement/v2_files/Info/PCISG-Info-PCISGBrochure-11-Nov14.pdf. Accessed 17 Jul 2015.
  13. 13.
    Patients and Citizen Involvement Interest Sub-Group. Completing a patient group template: guidance for patient organisations for health technology assessments and appraisal of medicines. 2015. http://www.htai.org/fileadmin/HTAi_Files/ISG/PatientInvolvement/v2_files/Resource/PCISG-Resource-GuidanceandChecklist-Dec14.pdf. Accessed 17 Jul 2015.
  14. 14.
    pan-Canadian Oncology Drug Review. Guide for Patient Advocacy Groups: How to provide patient and caregiver input for a pCODR drug review. 2013. http://www.pcodr.ca/idc/groups/pcodr/documents/pcodrdocument/pcodr-patient-guide.pdf. Accessed 11 Sep 2015.
  15. 15.
    National Health and Medical Research Council, the Australian Research Council and Universities Australia. The Australian code for responsible conduct of research. 2009. https://www.nhmrc.gov.au/_files_nhmrc/publications/attachments/r39.pdf. Accessed 16 Jul 2015.
  16. 16.
    INVOLVE. Jargon buster: ethics. http://www.invo.org.uk/resource-centre/useful-information/jargon-buster/?letter=E. Accessed 16 Jul 2015.
  17. 17.
    Patients and Citizen Involvement Interest Sub-Group. Values and quality standards for patient involvement in HTA. 2014. http://www.htai.org/fileadmin/HTAi_Files/ISG/PatientInvolvement/v2_files/Info/PCISG-Info-ValuesandStandards-30-Jun14.pdf. Accessed 17 Jul 2015.

Copyright information

© Springer International Publishing Switzerland 2015

Authors and Affiliations

  1. 1.HTAi Patient and Citizen Involvement in HTA Interest Group MemberAshgroveAustralia
  2. 2.HTAi Ethics Interest Group and NHMRC Clinical Trials CentreUniversity of SydneyCamperdownAustralia
  3. 3.HTAi Patient and Citizen Involvement in HTA Interest Group ChairBrunswickAustralia

Personalised recommendations