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Addressing Over-Medicalization in Children with Medical Complexity

  • Colleen MartyEmail author
  • Justin C. Alvey
  • Kilby Mann
  • Nancy A. Murphy
Pediatric Rehabilitation Medicine (A Houtrow and M Fuentes, Section Editors)
  • 1 Downloads
Part of the following topical collections:
  1. Topical Collection on Pediatric Rehabilitation Medicine

Abstract

Purpose of Review

Children with medical complexity (CMC) are at risk for over-medicalization and medical child abuse. Their multiple diagnoses, medical complexities, and functional limitations require providers to partner with parents in their care. Even in the context of shared decision-making, over-medicalization and medical child abuse can occur.

Recent Findings

We define over-medicalization and medical child abuse as related to the care of CMC, present strategies to prevent, identify, and address shared provider-parent decision-making, and review ethical principles that can guide care decisions.

Summary

Complex pediatric care programs designed specifically for CMC promote care of the highest value for CMC through longitudinal documentation of comprehensive assessments and detailed care plans. Goal-directed care—focused on the child’s function and quality of life and the family’s values and preferences—offers opportunities to prevent, identify, and manage over-medicalization and medical child abuse.

Keywords

Children with medical complexity (CMC) Over-medicalization Medical child abuse (MCA) 

Notes

Acknowledgements

Antoinette Laskey, MD [1] is acknowledged for her contribution to the concept for this paper.

Compliance with Ethical Standards

Conflict of Interest

Colleen Marty, Justin Alvey, Kilby Mann, and Nancy Murphy declare no conflicts of interest relevant to this manuscript.

Human and Animal Rights and Informed Consent

This article does not contain any studies with human or animal subjects performed by any of the authors.

References

Papers of particular interest, published recently, have been highlighted as: •• Of major importance

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Copyright information

© Springer Science+Business Media, LLC, part of Springer Nature 2019

Authors and Affiliations

  • Colleen Marty
    • 1
    Email author
  • Justin C. Alvey
    • 1
  • Kilby Mann
    • 1
  • Nancy A. Murphy
    • 1
  1. 1.Department of PediatricsUniversity of Utah School of MedicineSalt Lake CityUSA

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