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Indian Cancer Patients’ Needs, Perceptions of, and Expectations from their Support Network: a Qualitative Study

  • Shweta Chawak
  • Mahati ChittemEmail author
  • Phyllis Butow
  • Nagraj Huilgol
Article
  • 15 Downloads

Abstract

Psycho-oncology research in India reveals that family caregivers and oncologists are primary medical decision-makers frequently acting on behalf of the patient. Thus, patients are rarely asked about their wants and needs. This study aimed to understand Indian cancer patients’ needs and expectations from their support network. Twenty-six cancer patients participated in semi-structured interviews exploring patients’ needs, perceptions of their support network and the type of support they would prefer, and their experiences of receiving this support. The interviews were analyzed using Interpretive Phenomenological Analysis. Emergent themes included: (i) role of the oncologist: being the primary medical decision-maker, communicating in a style consistent with patient preferences; (ii) role of the immediate family: being emotionally available, helping with navigating the hospital system, aiding in medical adherence; (iii) role of relatives and friends: giving advice and providing tangible aid and services; and (iv) role of other cancer patients: helping with coping with the illness. The study highlights Indian patients’ ability to define their supportive network and assign specific roles to them. The study implies the need to develop communication training programs and peer-to-peer support groups to address patients’ unmet communication needs and aid in coping.

Keywords

Psycho-oncology Support network Primary and secondary caregivers Indian cancer patients Qualitative 

Notes

Acknowledgements

This research work was supported by the Ministry of Human Resource Development, Government of India, India. MPhil scholarship was awarded to the first author.

Compliance with Ethical Standards

Conflict of Interest

The authors declare that they have no conflict of interest.

Research Involving Human Participants

All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.

Informed Consent

Informed consent was obtained from all individual participants included in the study.

Ethics Approval

Ethics approval for the study was received from the Institute Ethics Committee, Indian Institute of Technology Hyderabad, Hyderabad, India, and the ethics committee of Dr. Balabhai Nanavati Hospital, Mumbai, India.

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Copyright information

© American Association for Cancer Education 2019

Authors and Affiliations

  1. 1.Department of Liberal ArtsIndian Institute of Technology HyderabadKandiIndia
  2. 2.School of PsychologyUniversity of SydneySydneyAustralia
  3. 3.Division of Radiation OncologyNanavati Super Specialty HospitalMumbaiIndia

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