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Journal of Cancer Education

, Volume 33, Issue 6, pp 1181–1188 | Cite as

Cancer Survivors’ Reported Discussions with Health Care Providers About Follow-Up Care and Receipt of Written Care Plans

  • Sarah C. Reed
  • Rod Walker
  • Rebecca Ziebell
  • Borsika Rabin
  • Stephanie Nutt
  • Jessica Chubak
  • Larissa Nekhlyudov
Article

Abstract

Prior studies reveal gaps in cancer survivors’ discussions with health care providers about follow-up care and receipt of care plans; however, whether survivorship care planning may vary by cancer type is not known. We surveyed 615 survivors of breast, colorectal, prostate, lung cancer, and melanoma enrolled in three health plans to examine cancer survivors’ self-reported discussions of follow-up care, including the need for surveillance, late and long-term effects, emotional needs, and health behaviors. We assessed whether cancer survivors received a written treatment summary and post-treatment care instructions. Most (92%) survivors reported having a discussion about the need for surveillance; 75%, late and long-term effects; 69%, lifestyle and health behaviors; and 53%, emotional and social needs. Most (88%) reported receiving post-treatment care instructions and 47%, a treatment summary. While there was little difference among survivors’ receipt of surveillance or health behavior recommendations by cancer type (p = 0.85 and p = 0.66, respectively), discussions of late and long-term effects occurred among 82% of prostate, 78% of breast, 73% of melanoma, 72% of colorectal, and 67% of lung survivors (p = 0.06). Approximately half of survivors reported discussions of emotional needs, with modest differences by cancer type (p = 0.08). Our findings indicate that most patient-provider discussions cover information on surveillance, with less emphasis on late and long-term effects, lifestyle and health behaviors, and substantially less focusing on emotional and social needs. No or modest differences in discussions occurred by cancer type. Whether tailoring information to individual cancer survivor needs is beneficial should be examined.

Keywords

Cancer survivorship Patient-provider communication 

Notes

Compliance with Ethical Standards

Conflict of Interest

Rod Walker has received funding as a biostatistician from research grants awarded to GHRI from Pfizer. All other authors have no financial or other relationships that could result in a conflict of interest.

Ethical Approval

All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki Declaration and its later amendments or comparable ethical standards.

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Copyright information

© American Association for Cancer Education 2017

Authors and Affiliations

  • Sarah C. Reed
    • 1
  • Rod Walker
    • 2
  • Rebecca Ziebell
    • 2
  • Borsika Rabin
    • 3
  • Stephanie Nutt
    • 4
  • Jessica Chubak
    • 2
  • Larissa Nekhlyudov
    • 5
  1. 1.Jane Addams College of Social WorkUniversity of Illinois at ChicagoChicagoUSA
  2. 2.Kaiser Permanente Health Research InstituteSeattleUSA
  3. 3.Department of Family Medicine and Public HealthUniversity of California San DiegoLa JollaUSA
  4. 4.Dell Medical SchoolUniversity of TexasAustinUSA
  5. 5.Department of Population Medicine, Harvard Medical School and Department of MedicineBrigham and Women’s HospitalBostonUSA

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