Journal of Cancer Education

, Volume 29, Issue 2, pp 270–277

Development and Evaluation of a Survey to Assess Survivor Knowledge Change After Survivorship Care Plans: WiSDOM-B (Wisconsin Survey of cancer DiagnOsis and Management in Breast cancer)

  • Gabrielle B. Rocque
  • Kari B. Wisinski
  • Kevin A. Buhr
  • Jamie L. Froeschner
  • Nathan Jones
  • Sarah Donohue
  • Douglas Wiegmann
  • Mary E. Sesto
  • Amye J. Tevaarwerk
Article

DOI: 10.1007/s13187-013-0591-9

Cite this article as:
Rocque, G.B., Wisinski, K.B., Buhr, K.A. et al. J Canc Educ (2014) 29: 270. doi:10.1007/s13187-013-0591-9

Abstract

The oncology community has increased efforts to inform survivors about long-term risks and planned follow-up after cancer treatment. Survivorship care plans (SCPs) have been recommended since 2005, yet the benefits of implementation are only now being emphasized. SCPs are hypothesized to enhance patient knowledge. The Wisconsin Survey of Diagnosis and Management in Breast Cancer (WiSDOM-B) was developed to measure changes in breast cancer survivor knowledge pre- and postdelivery of an SCP. The WiSDOM-B was developed with input from oncologists (medical, radiation, and surgical), patient advocates, cancer survivors, and survey design experts. Initially, nine patients evaluated survey content, and modifications were made to enhance clarity. Subsequently, 38 patients were enrolled in a randomized pilot trial assessing SCP impact on knowledge of diagnosis, treatment, late effects, and follow-up (WiSDOM-B) and satisfaction with knowledge (existing survey). The WiSDOM-B was developed using feedback from multiple stakeholders. Baseline knowledge was poor and remained stable in the control arm. There was a suggestion of increased survivor knowledge following receipt of SCPs in the intervention arm (68.4 vs. 74.4 %). Change was not statistically significant compared with the control arm. Despite knowledge deficits, baseline satisfaction with knowledge was high for both groups, with 100 % of patients being satisfied/very satisfied with information provided. Satisfaction did not change significantly following SCP receipt. The WiSDOM-B assesses survivor knowledge of cancer diagnosis, treatment, follow-up, and side effects. It will be a useful tool for future studies assessing the impact of care plans on survivor knowledge.

Keywords

Breast cancer Survivor knowledge Survivorship care plans Late effects 

Supplementary material

13187_2013_591_MOESM1_ESM.docx (88 kb)
Supplementary Material 1(DOCX 87 kb)
13187_2013_591_MOESM2_ESM.docx (98 kb)
Supplementary Material 2(DOCX 97 kb)

Copyright information

© Springer Science+Business Media New York 2013

Authors and Affiliations

  • Gabrielle B. Rocque
    • 1
  • Kari B. Wisinski
    • 1
  • Kevin A. Buhr
    • 2
  • Jamie L. Froeschner
    • 3
  • Nathan Jones
    • 1
  • Sarah Donohue
    • 1
  • Douglas Wiegmann
    • 4
  • Mary E. Sesto
    • 5
  • Amye J. Tevaarwerk
    • 1
  1. 1.University of Wisconsin Carbone Cancer Center, School of Medicine and Public HealthUniversity of Wisconsin-MadisonMadisonUSA
  2. 2.Department of Biostatistics and Medical Informatics, School of Medicine and Public HealthUniversity of Wisconsin-MadisonMadisonUSA
  3. 3.Department of MedicineUniversity of Wisconsin-MadisonMadisonUSA
  4. 4.Department of Industrial and Systems Engineering, College of EngineeringUniversity of Wisconsin-MadisonMadisonUSA
  5. 5.Department of Orthopedics and Rehabilitation, School of Medicine and Public HealthUniversity of Wisconsin-MadisonMadisonUSA

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