Developing Partnerships and Recruiting Dyads for a Prostate Cancer Informed Decision Making Program: Lessons Learned From a Community-Academic-Clinical Team
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Prostate cancer (PrCA) is the most commonly diagnosed non-skin cancer among men. PrCA mortality in African-American (AA) men in South Carolina is ~50% higher than for AAs in the U.S as a whole. AA men also have low rates of participation in cancer research. This paper describes partnership development and recruitment efforts of a Community-Academic-Clinical research team for a PrCA education intervention with AA men and women that was designed to address the discordance between high rates of PrCA mortality and limited participation in cancer research. Guided by Vesey’s framework on recruitment and retention of minority groups in research, recruitment strategies were selected and implemented following multiple brainstorming sessions with partners having established community relationships. Based on findings from these sessions culturally appropriate strategies are recommended for recruiting AA men and women for PrCA education research. Community-based research recruitment challenges and lessons learned are presented.
KeywordsAfrican-American men and women Community-based participatory research Research partnerships Recruitment Cancer communication Multi-media
Funded by the National Cancer Institute (NCI) Community Networks Program Centers U54 CA153461-01 (PI: Hébert; Project Leader: Friedman). Partially supported by an Established Investigator Award in Cancer Prevention and Control from the Cancer Training Branch of the NCI to J.R. Hébert (K05 CA136975). We acknowledge the community advisory panel, Spartanburg Regional Gibbs Cancer Center, NCI Community Clinical Oncology Program and NCI Community Cancer Centers Program partners, Dawn Skaggs, Bruce Grant, RN, and study participants.
- 6.UsTOO International Prostate Cancer Education & Support. Special News for African American Men. 2011; http://www.ustoo.org/Special_News.asp. Accessed November 16, 2011
- 7.National Medical Association. (2011) Statement on Prostate Specific Antigen National Medical Association’s Urology Section’s Experts. http://www.prlog.org/11725950-statement-on-prostate-specific-antigen-national-medical-associations-urology-sections-experts.html. Accessed November 16, 2011
- 14.Comis RL, Crowley J, Unger J, et al (2006) Baseline study of patient accrual onto publicly sponsored U.S. Cancer Clinical Trials: an analysis conducted for the global access project of the National Patient Advocate Foundation. http://www.npaf.org/images/pdf/gap/sept_2006/cccg.pdf. Accessed April 21, 2009
- 16.Ford JG, Howerton MW, Bolen S, et al (2005) Knowledge and access to information on recruitment of underrepresented populations to cancer clinical trials. Evid Rep Technol Assess (Summ) (122):1–11Google Scholar
- 31.Vesey GA (2002) A successful strategy for recruitment and retention of Black elders in applied research. Afr Am Res Perspect 8(2):40–56Google Scholar
- 32.National Coalition of Oncology Nurse Navigators. (2010) Oncology Nurse Navigation and Patient Navigation Defined. http://old.nconn.org/pdf/NCONN_PressRelease_8_10.pdf. Accessed November 30, 2011
- 34.Friedman DB, Hooker SP, Wilcox S, Burroughs EL, Rheaume CE. African American men’s perspectives on promoting physical activity: “We’re not that difficult to figure out!” J Health Commun. In pressGoogle Scholar