Understanding the needs of lung cancer patients during the pre-diagnosis phase
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Patients with lung cancer have numerous and varying needs spanning across the cancer trajectory; however, only limited research has focused specifically on the pre-diagnosis phase. A multicentre cross-sectional survey was conducted to explore the experience of lung cancer patients during the pre-diagnosis phase. High levels of anxiety were reported by many participants (45.6 %). Informational (32.1 %), and emotional (24.1 %) needs were reported as most important; the majority (89.0 %) reported these needs were met. Most participants sought information throughout, with many (38.6 %) rating their oncology health care providers to be the best source of information. The majority (70.0 %) reported that they were not directed to any resources to help address their anxiety. During pre-diagnosis, informational and emotional needs appear most important, and for the majority, these were reportedly met. Although many experienced high levels of anxiety, few were directed to resources to address it.
KeywordsLung cancer Patient needs Pre-diagnosis Referral
This research was supported by funding from Cancer Care Ontario. The authors gratefully acknowledge the participation of the patients and the contribution of the oncologists and research staff involved in this study at the Juravinski Cancer Centre, the Thunder Bay Regional Cancer Care and the Princess Margaret Hospital. The opinions, results and conclusions reported in this article are those of the authors and not necessarily those of Cancer Care Ontario.
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