, Volume 10, Issue 12, pp 2492–2506 | Cite as

Self-Compassion: a Protective Factor for Parents of Children with Autism Spectrum Disorder

  • Susanna Torbet
  • Michael Proeve
  • Rachel M. RobertsEmail author



Parents of children with autism spectrum disorder (ASD) face many unique challenges and experience higher parenting stress than other parenting groups. These parents also experience internalised stigma by association with their ASD affected child, known as affiliate stigma. These factors predict greater psychological distress and subsequently decreased well-being for parents. Recent evidence has suggested that the psychological construct of self-compassion may act as a protective factor against stigma, as well as positively influencing the experiences of parents.


An online survey was conducted with parents of children with ASD (N = 237), administering standardised measures to investigate levels of stigma and self-compassion, as well as psychological outcomes.


Self-compassion was positively correlated with subjective well-being and negatively correlated with psychological distress and parenting stress. Hierarchical multiple regression controlled for background factors, known predictors (child symptom severity and social support), and various aspects of stigma. Self-compassion and affiliate stigma significantly added to explained variance as a predictor of well-being, psychological distress, and parenting stress.


Self-compassion was found to predict psychological well-being, lower distress, and lower parenting stress. If self-compassion is found to be causally related to these outcomes, interventions aimed at cultivating self-compassion and decreasing affiliate stigma may have benefits for parents of children with ASD.


Self-compassion Autism Parenting stress Stigma 


Author Contributions

ST designed and executed the study, performed the data analyses, and wrote the paper. MP collaborated with design and writing of the study, performed additional data analyses, and led revisions to the paper. RR collaborated with design and writing of the study and revisions. All authors approved the final version of the manuscript before submission.

Funding Information

This research was conducted as part of Honours in Psychology within The University of Adelaide. No additional funding was received.

Compliance with Ethical Standards

All procedures performed in studies involving human participants were in accordance with the ethical standards of the Human Research Ethics Sub-Committee of the School of Psychology at The University of Adelaide and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.

Informed Consent

Informed consent was obtained from all individual participants included in the study.

Conflict of Interest

The authors declare that they have no conflicts of interest.


  1. Altiere, M. J., & von Kluge, S. (2009). Searching for acceptance: challenges encountered while raising a child with autism. Journal of Intellectual and Developmental Disability, 34, 142–152. Scholar
  2. American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Washington, DC: American Psychiatric Association.CrossRefGoogle Scholar
  3. Andrews, G., & Slade, T. (2001). Interpreting scores on the Kessler Psychological Distress Scale (K10). Australian and New Zealand Journal of Public Health, 25, 494–497. Scholar
  4. Australian Unity Wellbeing Index. (2017). The wellbeing of Australians: financial wellbeing, 2017. Retrieved from
  5. Barnard, L. K., & Curry, J. F. (2011). Self-compassion: conceptualizations, correlates, & interventions. Review of General Psychology, 15, 289–303. Scholar
  6. Bechet, A. K., Johnson, N. L., & Zauszniewski, J. A. (2012). Resilience in family members of persons with autism spectrum disorder: a review of the literature. Issues in Mental Health Nursing, 33, 650–656. Scholar
  7. Benson, P. R. (2010). Coping, distress, and well-being in mothers of children with autism. Research in Autism Spectrum Disorders, 4, 217–228. Scholar
  8. Bonis, S. (2016). Stress and parents of children with autism: a review of literature. Issues in Mental Health Nursing, 37, 153–163. Scholar
  9. Cachia, R., Anderson, L., & Moore, A. (2016). Mindfulness, stress and well-being in parents of children with autism spectrum disorder: a systematic review. Journal of Child and Family Studies, 25, 1–14. Scholar
  10. Cantwell, J., Muldoon, O., & Gallagher, S. (2015). The influence of self-esteem and social support on the relationship between stigma and depressive symptomology in parents caring for children with intellectual disabilities. Journal of Intellectual Disability Research, 59, 948–957. Scholar
  11. Chan, K. K., & Lam, C. B. (2017). Trait mindfulness attenuates the adverse psychological impact of stigma on parents of children with autism spectrum disorder. Mindfulness, 8, 984–994. Scholar
  12. Chang, E. C., Yu, T., Najarian, A. S., Wright, K. M., Chen, W., Chang, O. D., et al. (2017). Understanding the association between negative life events and suicidal risk in college students: examining self-compassion as a potential mediator. Journal of Clinical Psychology, 73, 745–755. Scholar
  13. Cummins, R. A., Eckersley, R., Pallant, J., Van Vugt, J., & Misajon, R. (2003). Developing a national index of subjective wellbeing: the Australian Unity Wellbeing Index. Social Indicators Research, 64, 159–190.CrossRefGoogle Scholar
  14. Dagnan, D., & Waring, M. (2004). Linking stigma to psychological distress: testing a social-cognitive model of the experience of people with intellectual disabilities. Clinical Psychology and Psychotherapy, 11, 247–254. Scholar
  15. Dekker, M. C., Nunn, R. J., Einfeld, S. E., Tonge, B. J., & Koot, H. M. J. (2002). Assessing emotional and behavioral problems in children with intellectual disability: revisiting the factor structure of the developmental behavior checklist. Journal of Autism and Developmental Disorders, 32, 601–610. Scholar
  16. Diener, E. D., Emmons, R. A., Larsen, R. J., & Griffin, S. (1985). The satisfaction with life scale. Journal of Personality Assessment, 49, 71–75. Scholar
  17. Fernández M.C. & Arcia E. (2004). Disruptive behaviors and maternal responsibility: A complex portrait of stigma, self-blame and other reactions. Hispanic Journal of Behavioral Sciences, 26, 356–372. Scholar
  18. Finlay-Jones, A. L., Rees, C. S., & Kane, R. T. (2015). Self-compassion, emotion regulation and stress among Australian psychologists: testing an emotion regulation model of self-compassion using structural equation modeling. PLoS ONE, 10. Scholar
  19. Germer, C. K., & Neff, K. D. (2013). Self-compassion in clinical practice. Journal of Clinical Psychology, 69, 856–867. Scholar
  20. Goffman, E. (1963). Stigma: notes on the management of spoiled identity. Harmondsworth: Penguin.Google Scholar
  21. Green, S. E. (2001). ‘Oh, those therapists will become your best friends’: maternal satisfaction with clinics providing physical, occupational and speech therapy services to children with disabilities. Sociology of Health and Illness, 23, 798–828. Scholar
  22. Green, S. E. (2003). “What do you mean ‘what’s wrong with her?”’: stigma and the lives of families of children with disabilities. Social Science and Medicine, 57, 1361–1374. Scholar
  23. Hall, H. R., & Graff, C. J. (2012). Maladaptive behaviors of children with autism: parent support, stress, and coping. Issues in Comprehensive Pediatric Nursing, 35, 194–214. Scholar
  24. Hardan-Khalil, K., & Mayo, A. (2015). Psychometric properties of the multidimensional scale of perceived social support. Clinical Nurse Specialist, 29, 258–261. Scholar
  25. Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43, 629–642. Scholar
  26. Hoaglin, D. C., Iglewicz, B., & Tukey, J. W. (1986). Performance of some resistant rules for outlier labelling. Journal of the American Statistical Association, 81(396), 991–999. Scholar
  27. Ingersoll, B., & Hambrick, D. Z. (2011). The relationship between the broader autism phenotype, child severity, and stress and depression in parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 5, 337–344. Scholar
  28. International Wellbeing Group. (2013). Personal wellbeing index (5th ed.). Melbourne: Centre on Quality of Life, Deakin University.Google Scholar
  29. Johnson, N., Frenn, M., Feetham, S., & Simpson, P. (2011). Autism spectrum disorder: parenting stress, family functioning and health-related quality of life. Families, Systems, and Health, 29, 232–252. Scholar
  30. Junior, S. B. M., Celestino, M. I. O., Serra, J. P. C., Caron, J., & Pondé, M. P. (2016). Risk and protective factors for symptoms of anxiety and depression in parents of children with autism spectrum disorder. Developmental Neurorehabilitation, 19, 146–153. Scholar
  31. Keenan, B. M., Newman, L. K., Gray, K. M., & Rinehart, N. J. (2016). Parents of children with ASD experience more psychological distress, parenting stress, and attachment-related anxiety. Journal of Autism and Developmental Disorders, 46, 2979–2991. Scholar
  32. Kessler, R. C., Andrews, G., Colpe, L. J., Hiripi, E., Mroczek, D. K, Normand, S., … Zaslavsky, A. M. (2002). Short screening scales to monitor population prevalences and trends in non-specific psychological distress. Psychological Medicine, 32, 959-976. CrossRefGoogle Scholar
  33. Kinnear, S. H., Link, B. G., Ballan, M. S., & Fischbach, R. L. (2016). Understanding the experience of stigma for parents of children with autism spectrum disorder and the role stigma plays in families’ lives. Journal of Autism and Developmental Disorders, 46, 942–953. Scholar
  34. Kohane, I. S., McMurry, A., Weber, G., MacFadden, D., Rappaport, L., Kunkel, L., et al. (2012). The co-morbidity burden of children and young adults with autism spectrum disorders. PLoS ONE, 7. Scholar
  35. Lai, W., & Oei, T. (2014). Coping in parents and caregivers of children with autism spectrum disorders (ASD): a review. Review Journal of Autism and Developmental Disorders, 1, 207–224. Scholar
  36. Leary, M. R., Tate, E. B., Adams, C. E., Allen, A. B., Hancock, J. C., & Carver, J. (2007). Self-compassion and reactions to unpleasant self-relevant events: the implications of treating oneself kindly. Journal of Personality and Social Psychology, 92, 887–904. Scholar
  37. Lee, P. F., Thomas, R. E., & Lee, P. A. (2015). Approach to autism spectrum disorder: using the new DSM-V diagnostic criteria and the CanMEDS-FM framework. Canadian Family Physician, 61, 421–424.PubMedPubMedCentralGoogle Scholar
  38. Link, B., & Phelan, J. C. (2001). Conceptualizing stigma. Annual Review of Sociology, 27, 363–385. Scholar
  39. Ludlow, A., Skelly, C., & Rohleder, P. (2011). Challenges faced by parents of children diagnosed with autism spectrum disorder. Journal of Health Psychology, 17, 702–711. Scholar
  40. Mak, W. S., & Cheung, R. Y. (2008). Affiliate stigma among caregivers of people with intellectual disability or mental illness. Journal of Applied Research in Intellectual Disabilities, 21, 532–545. Scholar
  41. Mak, W. S., & Kwok, Y. T. (2010). Internalization of stigma for parents of children with autism spectrum disorder in Hong Kong. Social Science and Medicine, 70, 2045–2051. Scholar
  42. Marsack, C. N., & Samuel, P. S. (2017). Mediating effects of social support on quality of life for parents of adults with autism. Journal of Autism and Developmental Disorders, 47, 2378–2389. Scholar
  43. Mills, J., Wand, T., & Fraser, J. A. (2015). On self-compassion and self-care in nursing: selfish or essential for compassionate care? International Journal of Nursing Studies, 52, 791–793. Scholar
  44. Muris, P., & Petrocchi, N. (2017). Protection or vulnerability? A meta-Analysis of the relations between the positive and negative components of self-compassion and psychopathology. Clinical Psychology and Psychotherapy, 24, 373–383. Scholar
  45. Neely, M., Schallert, E., Mohammed, D., Roberts, L., & Chen, S. (2009). Self-kindness when facing stress: the role of self-compassion, goal regulation, and support in college students’ well-being. Motivation and Emotion, 33, 88–97. Scholar
  46. Neely-Barnes, S. L., Hall, H. R., Roberts, R. J., & Graff, J. C. (2011). Parenting a child with an autism spectrum disorder: Public perceptions and parental conceptualizations. Journal of Family Social Work, 14, 208–225. Scholar
  47. Neff, K. D. (2003a). Self-compassion: an alternative conceptualization of a healthy attitude toward oneself. Self and Identity, 2, 85–101. Scholar
  48. Neff, K. D. (2003b). The development and validation of a scale to measure self-compassion. Self and Identity, 2, 223–250. Scholar
  49. Neff, K. D., & Beretvas, S. N. (2013). The role of self-compassion in romantic relationships. Self and Identity, 12, 78–98. Scholar
  50. Neff, K. D., & Faso, D. J. (2015). Self-compassion and well-being in parents of children with autism. Mindfulness, 6, 938–947. Scholar
  51. Neff, K. D., & Germer, C. K. (2013). A pilot study and randomized controlled trial of the mindful self-compassion program. Journal of Clinical Psychology, 69, 28–44. Scholar
  52. Neff, K. D., Hsieh, Y., & Dejitterat, K. (2005). Self-compassion, achievement goals, and coping with academic Failure. Self and Identity, 4, 263–287. Scholar
  53. Neff, K. D., Kirkpatrick, K. L., & Rude, S. S. (2007). Self-compassion and adaptive psychological functioning. Journal of Research in Personality, 41, 139–154. Scholar
  54. Neff, K. D., Tóth-Király, I., Yarnell, L. M., Arimitsu, K., Castilho, P., Ghorbani, N., Guo, H. X., Hirsch, J. K., Hupfeld, J., Hutz, C. S., Kotsou, I., Lee, W. K., Montero-Marin, J., Sirois, F. M., de Souza, L. K., Svendsen, J. L., Wilkinson, R. B., & Mantzios, M. (2018). Examining the factor structure of the Self-Compassion Scale in 20 diverse samples: support for use of a total score and six subscale scores. Psychological Assessment. Advance online publication. Scholar
  55. Osman, A., Lamis, D. A., Freedenthal, S., Gutierrez, P. M., & McNaughton-Cassill, M. (2012). The multidimensional scale of perceived social support: analyses of internal reliability, measurement invariance, and correlates across gender. Journal of Personality Assessment, 96, 103–112. Scholar
  56. Parcesepe, A. M., & Cabassa, L. J. (2013). Public stigma of mental illness in the United States: a systematic literature review. Administration & Policy in Mental Health and Mental Health Services Research, 40, 384–399. Scholar
  57. Parner, E. T., Thorsen, P., Dixon, G., De Klerk, N., Leonard, H., Nassar, N., … Glasson, E. J. (2011). A comparison of autism prevalence trends in Denmark and Western Australia. Journal of Autism and Developmental Disorders, 41, 1601-1608. CrossRefGoogle Scholar
  58. Pozo, P., Sarriá, E., & Brioso, A. (2014). Family quality of life and psychological well-being in parents of children with autism spectrum disorders: a double ABCX model. Journal of Intellectual Disability Research, 58, 442–458. Scholar
  59. Raes, F. (2011). The effect of self-compassion on the development of depression symptoms in a non-clinical sample. Mindfulness, 2, 33–36. Scholar
  60. Ridner, S. H. (2004). Psychological distress: concept analysis. Journal of Advanced Nursing, 45, 536–545. Scholar
  61. Scheid, T. L., & Brown, T. N. (2010). Stressors, stress, and distress. In B. Wheaton & S. Montazer (Eds.), A handbook for the study of mental health: social contexts, theories, and systems (pp. 171–199). Cambridge: Cambridge University Press.Google Scholar
  62. Shin, J., Nhan, N. V., Crittenden, K. S., Hong, H. T. D., Flory, M., & Ladinsky, J. (2006). Parenting stress of mothers and fathers of young children with cognitive delays in Vietnam. Journal of Intellectual Disability Research, 50, 748–760. Scholar
  63. Silva, L., & Schalock, M. (2012). Autism Parenting Stress Index: Initial psychometric evidence. Journal of Autism and Developmental Disorders, 42, 566–574. Scholar
  64. Slade, T., Grove, R., & Burgess, P. (2011). Kessler Psychological Distress Scale: normative data from the 2007 Australian national survey of mental health and wellbeing. Australian and New Zealand Journal of Psychiatry, 45, 308–316. Scholar
  65. Smeets, E., Neff, K., Alberts, H., & Peters, M. (2014). Meeting suffering with kindness: effects of a brief self-compassion intervention for female college students. Journal of Clinical Psychology, 70, 794–807. Scholar
  66. Struening, E. L., Perlick, D. A., Link, B. G., Hellman, F., Herman, D., & Sirey, J. A. (2001). Stigma as a barrier to recovery: The extent to which caregivers believe most people devalue consumers and their families. Psychiatric Services, 52, 1633–1638. Scholar
  67. Sunderland, M., Slade, T., Stewart, G., & Andrews, G. (2011). Estimating the prevalence of DSM-IV mental illness in the Australian general population using the Kessler Psychological Distress Scale. Australian and New Zealand Journal of Psychiatry, 45, 880–889. Scholar
  68. Taffe, J. R., Gray, K. M., Einfeld, S. L., Dekker, M. C., Koot, H. M., Emerson, E., … Tonge, B. J. (2007). Short form of the Developmental Behaviour Checklist. American Journal on Mental Retardation, 112, 31-39.CrossRefGoogle Scholar
  69. Weiss, J. A., Cappadocia, M. C., MacMullin, J. A., Viecili, M., & Lunsky, Y. (2012). The impact of child problem behaviors of children with ASD on parent mental health: The mediating role of acceptance and empowerment. Autism, 16, 261–274. Scholar
  70. Werner, S., & Shulman, C. (2013). Subjective well-being among family caregivers of individuals with developmental disabilities: the role of affiliate stigma and psychosocial moderating variables. Research in Developmental Disabilities, 34, 4103–4114. Scholar
  71. Williams, M. J., Dalgleish, T., Karl, A., Kuyken, W. R., & Reynolds, C. R. (2014). Examining the factor structures of the Five Facet Mindfulness Questionnaire and the Self-Compassion Scale. Psychological Assessment, 26, 407–418. Scholar
  72. Wong, C. Y., Mak, W. S., & Liao, K. Y. (2016). Self-compassion: a potential buffer against affiliate stigma experienced by parents of children with autism spectrum disorders. Mindfulness, 7, 1385–1395. Scholar
  73. Wright, D. B., London, K., & Field, A. P. (2011). Using bootstrap estimation and the plug-in principle for clinical psychology data. Journal of Experimental Psychopathology, 2(2), 252–270. Scholar
  74. Zimet, G. D., Dahlem, N. W., Zimet, S. G., & Farley, G. K. (1998). The multidimensional scale of perceived social support. Journal of Personality Assessment, 52, 30–41. Scholar

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Authors and Affiliations

  1. 1.School of PsychologyUniversity of AdelaideAdelaideAustralia

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