Self-Compassion: a Protective Factor for Parents of Children with Autism Spectrum Disorder
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Parents of children with autism spectrum disorder (ASD) face many unique challenges and experience higher parenting stress than other parenting groups. These parents also experience internalised stigma by association with their ASD affected child, known as affiliate stigma. These factors predict greater psychological distress and subsequently decreased well-being for parents. Recent evidence has suggested that the psychological construct of self-compassion may act as a protective factor against stigma, as well as positively influencing the experiences of parents.
An online survey was conducted with parents of children with ASD (N = 237), administering standardised measures to investigate levels of stigma and self-compassion, as well as psychological outcomes.
Self-compassion was positively correlated with subjective well-being and negatively correlated with psychological distress and parenting stress. Hierarchical multiple regression controlled for background factors, known predictors (child symptom severity and social support), and various aspects of stigma. Self-compassion and affiliate stigma significantly added to explained variance as a predictor of well-being, psychological distress, and parenting stress.
Self-compassion was found to predict psychological well-being, lower distress, and lower parenting stress. If self-compassion is found to be causally related to these outcomes, interventions aimed at cultivating self-compassion and decreasing affiliate stigma may have benefits for parents of children with ASD.
KeywordsSelf-compassion Autism Parenting stress Stigma
ST designed and executed the study, performed the data analyses, and wrote the paper. MP collaborated with design and writing of the study, performed additional data analyses, and led revisions to the paper. RR collaborated with design and writing of the study and revisions. All authors approved the final version of the manuscript before submission.
This research was conducted as part of Honours in Psychology within The University of Adelaide. No additional funding was received.
Compliance with Ethical Standards
All procedures performed in studies involving human participants were in accordance with the ethical standards of the Human Research Ethics Sub-Committee of the School of Psychology at The University of Adelaide and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.
Informed consent was obtained from all individual participants included in the study.
Conflict of Interest
The authors declare that they have no conflicts of interest.
- Andrews, G., & Slade, T. (2001). Interpreting scores on the Kessler Psychological Distress Scale (K10). Australian and New Zealand Journal of Public Health, 25, 494–497. https://doi.org/10.1111/j.1467-842X.2001.tb00310.x.CrossRefPubMedGoogle Scholar
- Australian Unity Wellbeing Index. (2017). The wellbeing of Australians: financial wellbeing, 2017. Retrieved from http://www.acqol.com.au/reports/survey-reports/survey-034-report.pdf
- Cantwell, J., Muldoon, O., & Gallagher, S. (2015). The influence of self-esteem and social support on the relationship between stigma and depressive symptomology in parents caring for children with intellectual disabilities. Journal of Intellectual Disability Research, 59, 948–957. https://doi.org/10.1111/jir.12205.CrossRefPubMedGoogle Scholar
- Chang, E. C., Yu, T., Najarian, A. S., Wright, K. M., Chen, W., Chang, O. D., et al. (2017). Understanding the association between negative life events and suicidal risk in college students: examining self-compassion as a potential mediator. Journal of Clinical Psychology, 73, 745–755. https://doi.org/10.1002/jclp.22374.CrossRefPubMedGoogle Scholar
- Dekker, M. C., Nunn, R. J., Einfeld, S. E., Tonge, B. J., & Koot, H. M. J. (2002). Assessing emotional and behavioral problems in children with intellectual disability: revisiting the factor structure of the developmental behavior checklist. Journal of Autism and Developmental Disorders, 32, 601–610. https://doi.org/10.1023/A:1021263216093.CrossRefPubMedGoogle Scholar
- Finlay-Jones, A. L., Rees, C. S., & Kane, R. T. (2015). Self-compassion, emotion regulation and stress among Australian psychologists: testing an emotion regulation model of self-compassion using structural equation modeling. PLoS ONE, 10. https://doi.org/10.1371/journal.pone.0133481.CrossRefGoogle Scholar
- Goffman, E. (1963). Stigma: notes on the management of spoiled identity. Harmondsworth: Penguin.Google Scholar
- Green, S. E. (2001). ‘Oh, those therapists will become your best friends’: maternal satisfaction with clinics providing physical, occupational and speech therapy services to children with disabilities. Sociology of Health and Illness, 23, 798–828. https://doi.org/10.1111/1467-9566.00276.CrossRefGoogle Scholar
- Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43, 629–642. https://doi.org/10.1007/s10803-012-1604-y.CrossRefPubMedGoogle Scholar
- Ingersoll, B., & Hambrick, D. Z. (2011). The relationship between the broader autism phenotype, child severity, and stress and depression in parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 5, 337–344. https://doi.org/10.1016/j.rasd.2010.04.017.CrossRefGoogle Scholar
- International Wellbeing Group. (2013). Personal wellbeing index (5th ed.). Melbourne: Centre on Quality of Life, Deakin University.Google Scholar
- Junior, S. B. M., Celestino, M. I. O., Serra, J. P. C., Caron, J., & Pondé, M. P. (2016). Risk and protective factors for symptoms of anxiety and depression in parents of children with autism spectrum disorder. Developmental Neurorehabilitation, 19, 146–153. https://doi.org/10.3109/17518423.2014.925519.CrossRefGoogle Scholar
- Keenan, B. M., Newman, L. K., Gray, K. M., & Rinehart, N. J. (2016). Parents of children with ASD experience more psychological distress, parenting stress, and attachment-related anxiety. Journal of Autism and Developmental Disorders, 46, 2979–2991. https://doi.org/10.1007/s10803-016-2836-z.CrossRefPubMedGoogle Scholar
- Kessler, R. C., Andrews, G., Colpe, L. J., Hiripi, E., Mroczek, D. K, Normand, S., … Zaslavsky, A. M. (2002). Short screening scales to monitor population prevalences and trends in non-specific psychological distress. Psychological Medicine, 32, 959-976. https://doi.org/10.1017/S0033291702006074 CrossRefGoogle Scholar
- Kinnear, S. H., Link, B. G., Ballan, M. S., & Fischbach, R. L. (2016). Understanding the experience of stigma for parents of children with autism spectrum disorder and the role stigma plays in families’ lives. Journal of Autism and Developmental Disorders, 46, 942–953. https://doi.org/10.1007/s10803-015-2637-9.CrossRefPubMedGoogle Scholar
- Leary, M. R., Tate, E. B., Adams, C. E., Allen, A. B., Hancock, J. C., & Carver, J. (2007). Self-compassion and reactions to unpleasant self-relevant events: the implications of treating oneself kindly. Journal of Personality and Social Psychology, 92, 887–904. https://doi.org/10.1037/0022-35126.96.36.1997.CrossRefPubMedGoogle Scholar
- Neff, K. D., Tóth-Király, I., Yarnell, L. M., Arimitsu, K., Castilho, P., Ghorbani, N., Guo, H. X., Hirsch, J. K., Hupfeld, J., Hutz, C. S., Kotsou, I., Lee, W. K., Montero-Marin, J., Sirois, F. M., de Souza, L. K., Svendsen, J. L., Wilkinson, R. B., & Mantzios, M. (2018). Examining the factor structure of the Self-Compassion Scale in 20 diverse samples: support for use of a total score and six subscale scores. Psychological Assessment. Advance online publication. https://doi.org/10.1037/pas0000629.CrossRefGoogle Scholar
- Osman, A., Lamis, D. A., Freedenthal, S., Gutierrez, P. M., & McNaughton-Cassill, M. (2012). The multidimensional scale of perceived social support: analyses of internal reliability, measurement invariance, and correlates across gender. Journal of Personality Assessment, 96, 103–112. https://doi.org/10.1080/00223891.2013.838170.CrossRefGoogle Scholar
- Parner, E. T., Thorsen, P., Dixon, G., De Klerk, N., Leonard, H., Nassar, N., … Glasson, E. J. (2011). A comparison of autism prevalence trends in Denmark and Western Australia. Journal of Autism and Developmental Disorders, 41, 1601-1608. https://doi.org/10.1007/s10803-011-1186-0 CrossRefGoogle Scholar
- Scheid, T. L., & Brown, T. N. (2010). Stressors, stress, and distress. In B. Wheaton & S. Montazer (Eds.), A handbook for the study of mental health: social contexts, theories, and systems (pp. 171–199). Cambridge: Cambridge University Press.Google Scholar
- Shin, J., Nhan, N. V., Crittenden, K. S., Hong, H. T. D., Flory, M., & Ladinsky, J. (2006). Parenting stress of mothers and fathers of young children with cognitive delays in Vietnam. Journal of Intellectual Disability Research, 50, 748–760. https://doi.org/10.1111/j.1365-2788.2006.00840.x.CrossRefPubMedGoogle Scholar
- Slade, T., Grove, R., & Burgess, P. (2011). Kessler Psychological Distress Scale: normative data from the 2007 Australian national survey of mental health and wellbeing. Australian and New Zealand Journal of Psychiatry, 45, 308–316. https://doi.org/10.3109/00048674.2010.543653.CrossRefPubMedGoogle Scholar
- Struening, E. L., Perlick, D. A., Link, B. G., Hellman, F., Herman, D., & Sirey, J. A. (2001). Stigma as a barrier to recovery: The extent to which caregivers believe most people devalue consumers and their families. Psychiatric Services, 52, 1633–1638. https://doi.org/10.1176/appi.ps.52.12.1633.CrossRefPubMedGoogle Scholar
- Sunderland, M., Slade, T., Stewart, G., & Andrews, G. (2011). Estimating the prevalence of DSM-IV mental illness in the Australian general population using the Kessler Psychological Distress Scale. Australian and New Zealand Journal of Psychiatry, 45, 880–889. https://doi.org/10.3109/00048674.2011.606785.CrossRefPubMedGoogle Scholar
- Weiss, J. A., Cappadocia, M. C., MacMullin, J. A., Viecili, M., & Lunsky, Y. (2012). The impact of child problem behaviors of children with ASD on parent mental health: The mediating role of acceptance and empowerment. Autism, 16, 261–274. https://doi.org/10.1177/1362361311422708.CrossRefPubMedGoogle Scholar
- Werner, S., & Shulman, C. (2013). Subjective well-being among family caregivers of individuals with developmental disabilities: the role of affiliate stigma and psychosocial moderating variables. Research in Developmental Disabilities, 34, 4103–4114. https://doi.org/10.1016/j.ridd.2013.08.029.CrossRefPubMedGoogle Scholar