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Child Indicators Research

, Volume 4, Issue 2, pp 231–247 | Cite as

Researching with Young Children: Seeking Assent

  • Sue DockettEmail author
  • Bob Perry
Article

Abstract

Changing views of children and childhood have resulted in an increased focus on the nature of children’s participation in research. Rather than conducting research on children, many researchers now seek to engage with children in research. Such a change recognises children’s agency as well as their rights to have a say in matters that affect them. Research that reflects a participatory rights perspective and respects children’s agency must be based on children making informed decisions about their participation. However, prevailing views of children’s competence to make these decisions often preclude their involvement. While recognising the importance of informed consent from parents/guardians, we argue the importance of assent as a means of recognising the wishes of young children in relation to research participation. In this context, assent is defined as a relational process whereby children’s actions and adult responses taken together, reflect children’s participation decisions.

Keywords

Assent Consent Children’s participation Children’s rights 

Notes

Acknowledgements

An earlier version of this paper was prepared for the 16th Annual conference of the Australian Association of Professional and Applied Ethics (AAPAE) conference, 2009 and appears in the proceedings for this conference. We wish to thank participants at this conference and the anonymous reviewers for their feedback and comments relating to the paper. Together they have provoked the changes in our thinking that are evident in this elaboration of our argument.

References

  1. Abramovitch, R., Freedman, J., Thoden, K., & Nikolich, C. (1991). Children’s capacity to consent to participation in psychological research: empirical findings. Child Development, 62, 1100–1109.CrossRefGoogle Scholar
  2. Alderson, P. (2004). Ethics. In S. Fraser, V. Lewis, S. Ding, M. Kellett, & C. Robinson (Eds.), Doing research with children and young people (pp. 97–112). London: Sage.Google Scholar
  3. Alderson, P. (2005). Ethics. In A. Farrell (Ed.), Ethical research with children (pp. 27–36). New York: Open University Press.Google Scholar
  4. Alderson, P., & Morrow, V. (2004). Ethics, social research and consulting with children and young people. Barkingside: Barnados.Google Scholar
  5. Balen, R., Blyth, E., Calabretto, H., Fraser, C., Horrocks, C., & Manby, M. (2006). Involving children in health and social research. ‘Human becomings’ or ‘active beings’? Childhood, 31(1), 29–48.CrossRefGoogle Scholar
  6. Botkin, J. (2003). Preventing exploitation in pediatric research. The American Journal of Bioethics, 3, 31–32.CrossRefGoogle Scholar
  7. Bruzzese, J. M., & Fisher, C. B. (2003). Assessing and enhancing the research consent capacity of children and youth. Applied Developmental Science, 7(1), 13–26.CrossRefGoogle Scholar
  8. Cahill, C. (2007). Doing research with young people: participatory research and the rituals of collective work. Children’s Geographies, 5(3), 297–312.CrossRefGoogle Scholar
  9. Campbell, A. (2008). For their own good: recruiting children for research. Childhood, 15(1), 30–49.CrossRefGoogle Scholar
  10. Chawla, L. (2002). Insight, creativity and thoughts on the environment: integrating children and youth into human settlement development. Environment and Urbanisation, 14, 11–22.CrossRefGoogle Scholar
  11. Christensen, P., & Prout, A. (2002). Working with ethical symmetry in social research with children. Childhood, 9(4), 477–497.CrossRefGoogle Scholar
  12. Clark, A., & Moss, P. (2001). Listening to young children: The mosaic approach. London: National Children’s Bureau and Joseph Rowntree Foundation.Google Scholar
  13. Cocks, A. (2007). The ethical maze: finding an inclusive path towards gaining children’s agreement to research participation. Childhood, 13(2), 247–266.CrossRefGoogle Scholar
  14. Conroy, H., & Harcourt, D. (2009). Informed agreement to participate: beginning the partnership with children in research. Early Child Development and Care, 179(2), 157–165.CrossRefGoogle Scholar
  15. Danby, S., & Farrell, A. (2005). Opening the research conversation. In A. Farrell (Ed.), Ethical research with children (pp. 49–67). London: Open University Press.Google Scholar
  16. David, M., Edwards, R., & Alldred, P. (2001). Children and school-based research: ‘informed consent’ or ‘educated consent’? British Educational Research Journal, 27(3), 347–365.CrossRefGoogle Scholar
  17. Fine, M., Weis, L., Weseen, S., & Wong, L. (2000). For whom? Qualitative research, representations and social responsibilities. In N. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (2nd ed., pp. 107–132). Thousand Oaks: Sage.Google Scholar
  18. Finlay, L., & Gough, B. (Eds.). (2003). Reflexivity: A practical guide for researchers in health and social sciences. London: Wiley-Blackwell.Google Scholar
  19. Flewitt, R. (2005). Conducting research with young children: some ethical issues. Early Childhood Development and Care, 175(6), 553–565.CrossRefGoogle Scholar
  20. Ford, K., Sankey, J., & Crisp, J. (2007). Development of children’s assent documents using a child-centred approach. Journal of Child Health Care, 11(1), 19–28.CrossRefGoogle Scholar
  21. Greene, S., & Hill, M. (2005). Researching children’s experiences: Methods. In S. Greene & D. Hogan (Eds.), Researching children’s experience: Approaches and methods (pp. 1–21). London: Sage.Google Scholar
  22. Heath, S., Charles, V., Crow, G., & Wiles, R. (2007). Informed consent, gatekeepers and go-betweens: negotiating consent in child- and youth-oriented institutions. British Educational Research Journal, 33(3), 403–417.CrossRefGoogle Scholar
  23. Hoffman-Ekstein, J., Michaux, A., Bessell, S., Mason, J., Watson, E., & Fox, M. (2008). Children’s agency in communities: A review of literature and the policy and practice context. http://www.bensoc.org.au Accessed June 25, 2009.
  24. James, A., & Prout, A. (1997). Constructing and reconstructing childhood: Contemporary issues in the sociological study of childhood (2nd ed.). London: Falmer.Google Scholar
  25. Jans, M. (2004). Children as citizens: towards a contemporary notion of child participation. Childhood, 11(1), 27–44.CrossRefGoogle Scholar
  26. Kirk, S. (2007). Methodological and ethical issues in conducting qualitative research with children and young people: a literature review. International Journal of Nursing Studies, 44, 1250–1260.CrossRefGoogle Scholar
  27. Kon, A. A. (2006). Assent in pediatric research. Pediatrics, 117, 1806–1810.CrossRefGoogle Scholar
  28. Lansdown, G. (2005a). Can you hear me? The right of young children to participate in decisions affecting them. Working paper 36. The Hague: Bernard van Leer Foundation.Google Scholar
  29. Lansdown, G. (2005b).The evolving capacities of the child. Florence: UNICEF Innocenti Research Centre. http://www.bernardvanleer.org/files/crc/4%20Gerison_Lansdown.pdf Accessed March 10, 2010.
  30. Liebel, M., & Saadi, I. (2010). Commentary 3. In B. Percy-Smith & N. Thomas (Eds.), A handbook of children and young people’s participation: Perspectives from theory and practice (pp. 150–153). London: Routledge.Google Scholar
  31. Malins, T. (2008). Consent as a source of selection bias and the need for a better approach process to manage it. Paper presented at the Australian Research Alliance for Children and Youth/NSW Commission for Children and Young People Involving children and young people in research Think Tank, November, Sydney.Google Scholar
  32. Miller, V. A., & Nelson, R. M. (2006). A developmental approach to child assent for nontherapeutic research. The Journal of Pediatrics, 149, S25–S30.CrossRefGoogle Scholar
  33. Mishna, F., Antle, B. J., & Regehr, C. (2004). Tapping the perspectives of children: emerging ethical issues in qualitative research. Qualitative Social Work, 3, 449–468.CrossRefGoogle Scholar
  34. Morrow, V. (2008). Ethical dilemmas in research with children and young people about their social environments. Children’s Geographies, 6(1), 49–61.CrossRefGoogle Scholar
  35. Morrow, V., & Richards, M. (1996). The ethics of social research with children: an overview. Children and Society, 10(2), 90–105.CrossRefGoogle Scholar
  36. Moss, P., & Petrie, P. (2002). From children’s services to children’s spaces. London: Routledge Falmer.Google Scholar
  37. National Health and Medical Research Council (NHMRC) (2007). National statement on ethical conduct in human research. Chapter 4.2: Children and young people.: http://www.nhmrc.gov.au/publications/ethics/2007_humans/section4.2.htm Accessed January 10, 2010.
  38. Noble-Carr, D. (2006). Engaging children in research on sensitive issues. Institute of Child Protection Studies, Australian Catholic University and ACT Department of Disability, Housing and Community Services. http://www.acu.edu.au/icps Accessed March 2, 2010.
  39. Office of the United Nations High Commissioner for Human Rights (2005). General Comment No 7. Implementing child rights in early childhood. http://www2.ohchr.org/english/bodies/crc/docs/AdvanceVersions/GeneralComment7Rev1.pdf Accessed October 13, 2009.
  40. Ondrusek, N., Abramovitch, R., Pencharz, P., & Koren, G. (1998). Empirical examination of the ability of children to consent to clinical research. Journal of Medical Ethics, 24(3), 158–165.CrossRefGoogle Scholar
  41. Percy-Smith, B., & Thomas, N. (2010). Conclusion: Emerging themes and new directions. In B. Percy-Smith & N. Thomas (Eds.), A handbook of children and young people’s participation: Perspectives from theory and practice (pp. 356–366). London: Routledge.Google Scholar
  42. Prout, A. (2000). Children’s participation: control and self-realisation in British late modernity. Children and Society, 14(4), 304–315.CrossRefGoogle Scholar
  43. Prout, A. (2005). The future of childhood. London: RoutledgeFalmer.Google Scholar
  44. Sancar, F. H., & Severcan, Y. C. (2010). In search of agency: Participation in a youth organisation in Turkey. In B. Percy-Smith & N. Thomas (Eds.), A handbook of children and young people’s participation: Perspectives from theory and practice (pp. 277–286). London: Routledge.Google Scholar
  45. Simons, H., & Usher, R. (2000). Situated ethics in educational research. London: RoutledgeFalmer.Google Scholar
  46. Stephens, J. (1992). Language and ideology in children’s fiction. London: Longman.Google Scholar
  47. Thomas, N., & O’Kane, C. (2000). Discovering what children think: connections between research and practice. British Journal of Social Work, 30, 819–835.CrossRefGoogle Scholar
  48. Ungar, D., Joffe, S., & Kodish, E. (2006). Children are not small adults: documentation of assent for research involving children. The Journal of Pediatrics, 149, S31–S33.CrossRefGoogle Scholar
  49. United Nations (1989). Convention on the rights of the child. New York: Author. http://www.unicef.org/crc/crc Accessed October 6, 2009.
  50. Veale, A. (2005). Creative methodologies in participatory research with children. In S. Greene & D. Hogan (Eds.), Researching children’s experience: Approaches and methods (pp. 253–272). London: Sage.Google Scholar
  51. Vitiello, B. (2003). Ethical considerations in psychopharmacological research involving children and adolescents. Psychopharmacology, 171(1), 86–91.CrossRefGoogle Scholar
  52. Wiles, R., Heath, S., Crow, G., & Charles, V. (2005). Informed consent in social research: A literature review. ESRC National Centre for Research Methods. http://www.ncrm.ac.uk/research/outputs/publications/methodsreview/MethodsReviewPaperNCRM-001.pdf Accessed October 6, 2009.
  53. Wise, S. (2009). Enabling ‘looked after’ children to express their competence as participants in research. In Australian Research Alliance for Children and Youth/NSW Commission for Children and Young People (Ed.), Involving children and young people in research (pp. 156–162). Sydney: Author.Google Scholar
  54. Woodhead, M., & Faulkner, D. (2008). Subjects, objects or participants? Dilemmas on psychological research with children. In P. Christensen & A. James (Eds.), Research with children: Perspectives and practices (2nd ed., pp. 10–39). London: Falmer.Google Scholar

Copyright information

© Springer Science+Business Media B.V. 2010

Authors and Affiliations

  1. 1.Murray School of EducationCharles Sturt UniversityAlburyAustralia

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