Development and Validation of the Health Competence Beliefs Inventory in Young Adults With and Without a History of Childhood Cancer
- 262 Downloads
Adolescent and young adult survivors of childhood cancer are a vulnerable population. Health beliefs may be related to necessary follow-up care.
This study seeks to develop a measure of health beliefs for adolescents and young adults with and without a history of cancer.
Inductive and deductive methods and focus groups were used to develop the Health Competence Beliefs Inventory. Cancer survivors (n = 138) and comparison participants (n = 130) completed the Health Competence Beliefs Inventory and other measures. Healthcare providers reported current medical problems.
A series of iterative exploratory factor analyses generated a 21-item four-factor solution: (1) Health Perceptions; (2) Satisfaction with Healthcare; (3) Cognitive Competence; and (4) Autonomy. Survivors reported significantly different Health Competence Beliefs Inventory scale scores than comparisons (p < .05). The Health Competence Beliefs Inventory was associated with beliefs, affect, quality of life, posttraumatic stress symptoms, and medical problems.
The Health Competence Beliefs Inventory is a promising measure of adolescent and young adult perceptions of health and well-being.
KeywordsCancer Survivorship Young adults Psychological outcomes Health Beliefs
This research was supported by the National Cancer Institute (CA106928). The authors thank the study participants. We also thank Sue Ogle, CRNP, Stephanie K. Bui, MD, Janice K. Hillman, MD, FACP, Evelyn Wiener, MD, Michele Demski, BSN, RN, and Maureen Reilly, BSN, RN for assisting with recruitment and access to patients; and Andrew Gaffney, Emily Knudsen-Strong, Muhammad Monsour, Ifigenia Mougianis, Sonali Sanyal, Mary Caitlin St. Clair, James Wolf, and Mindy Yang for serving as research assistants and Kevin Oeffinger, MD for his review of the proposed items. The authors also thank the members of Writers Seminar of The CHOP/PENN Mentored Psychosocial Research Curriculum, supported by a K05 award to Dr. Kazak (CA128805). Requests for a copy of the Health Competence Beliefs Inventory may be sent to Dr. Kazak (firstname.lastname@example.org).
Conflict of Interest Statement
The authors have no conflict of interest to disclose.
- 2.National Cancer Institute, LIVESTRONG Young Adult Alliance. Closing the gap: Research and care imperative for adolescents and young adults with cancer, report of the adolescent and young adult oncology progress review group. NIH Publication No. 06-6067; 2006.Google Scholar
- 18.Author. The Health Competence Beliefs Inventory: A technical report of scale development. Author Institution; 2009.Google Scholar
- 19.Schwarzer R, Jerusalem M. Generalized Self-Efficacy scale. In: Weinman J, Wright S, Johnston M, eds. Measures in health psychology: A user’s portfolio. Causal and control beliefs; 1995: 35–37.Google Scholar
- 22.Diener E, Emmons RA. The independence of positive and negative affect. J Pers Soc Psychol. 1985; 47: 1105–1117.Google Scholar
- 24.Weathers FW, Ford J. Psychometric review of the PTSD Checklist. In: Stamm, BH, ed. Measurement of stress, trauma, and adaptation; 1996: 250–251.Google Scholar
- 31.DeVellis, R. Scale development: Theory and applications. 2nd ed. Thousand Oaks, CA: Sage Publications, Inc.; 2003.Google Scholar
- 32.Kline, P. The new psychometrics: Science, psychology and measurement. London: Routledge; 1998.Google Scholar