Annals of Behavioral Medicine

, Volume 41, Issue 1, pp 48–58 | Cite as

Development and Validation of the Health Competence Beliefs Inventory in Young Adults With and Without a History of Childhood Cancer

  • Branlyn Werba DeRosa
  • Anne E. Kazak
  • Kinjal Doshi
  • Lisa A. Schwartz
  • Jill Ginsberg
  • Jun J. Mao
  • Joseph Straton
  • Wendy Hobbie
  • Mary T. Rourke
  • Claire Carlson
  • Richard F. Ittenbach
Original Article

Abstract

Background

Adolescent and young adult survivors of childhood cancer are a vulnerable population. Health beliefs may be related to necessary follow-up care.

Purpose

This study seeks to develop a measure of health beliefs for adolescents and young adults with and without a history of cancer.

Methods

Inductive and deductive methods and focus groups were used to develop the Health Competence Beliefs Inventory. Cancer survivors (n = 138) and comparison participants (n = 130) completed the Health Competence Beliefs Inventory and other measures. Healthcare providers reported current medical problems.

Results

A series of iterative exploratory factor analyses generated a 21-item four-factor solution: (1) Health Perceptions; (2) Satisfaction with Healthcare; (3) Cognitive Competence; and (4) Autonomy. Survivors reported significantly different Health Competence Beliefs Inventory scale scores than comparisons (p < .05). The Health Competence Beliefs Inventory was associated with beliefs, affect, quality of life, posttraumatic stress symptoms, and medical problems.

Conclusions

The Health Competence Beliefs Inventory is a promising measure of adolescent and young adult perceptions of health and well-being.

Keywords

Cancer Survivorship Young adults Psychological outcomes Health Beliefs 

Notes

Acknowledgments

This research was supported by the National Cancer Institute (CA106928). The authors thank the study participants. We also thank Sue Ogle, CRNP, Stephanie K. Bui, MD, Janice K. Hillman, MD, FACP, Evelyn Wiener, MD, Michele Demski, BSN, RN, and Maureen Reilly, BSN, RN for assisting with recruitment and access to patients; and Andrew Gaffney, Emily Knudsen-Strong, Muhammad Monsour, Ifigenia Mougianis, Sonali Sanyal, Mary Caitlin St. Clair, James Wolf, and Mindy Yang for serving as research assistants and Kevin Oeffinger, MD for his review of the proposed items. The authors also thank the members of Writers Seminar of The CHOP/PENN Mentored Psychosocial Research Curriculum, supported by a K05 award to Dr. Kazak (CA128805). Requests for a copy of the Health Competence Beliefs Inventory may be sent to Dr. Kazak (kazak@email.chop.edu).

Conflict of Interest Statement

The authors have no conflict of interest to disclose.

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Copyright information

© The Society of Behavioral Medicine 2010

Authors and Affiliations

  • Branlyn Werba DeRosa
    • 1
  • Anne E. Kazak
    • 1
    • 2
  • Kinjal Doshi
    • 2
  • Lisa A. Schwartz
    • 1
  • Jill Ginsberg
    • 1
    • 2
  • Jun J. Mao
    • 2
  • Joseph Straton
    • 2
  • Wendy Hobbie
    • 1
  • Mary T. Rourke
    • 1
  • Claire Carlson
    • 1
  • Richard F. Ittenbach
    • 1
  1. 1.The Children’s Hospital of PhiladelphiaPhiladelphiaUSA
  2. 2.The University of PennsylvaniaPhiladelphiaUSA

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