The Indian Journal of Pediatrics

, Volume 75, Issue 9, pp 901–906

Impact of an educational program on parental knowledge of cerebral palsy

Original Article

Abstract

Objectives

To investigate parental knowledge of cerebral palsy, and to evaluate the impact of an educational intervention on it.

Methods

From May 2003 to April 2004, 26 parents of newly diagnosed children with cerebral palsy were interviewed. After the interview, each parent was administered a structured educational program and re-interviewed after three months. The pre and post intervention responses were compared using Chi-square test.

Results

After the intervention, there was a significant improvement in parental knowledge: (i) of the cause of the disorder (5/26 vs 20/26, P = 0.0001), (ii) that it is non-progressive (16/26 vs 24/26, P = 0.021), (iii) that it is not curable (10/26 vs 23/26, P = 0.0005), (iv) that it is treatable (12/26 vs 24/26, P=0.0009), (v) of the frequency and duration of therapy necessary to improve functional abilities (7/26 vs 17/26, P = 0.005), and, (vi) of the importance of following up regularly with a pediatrician (17/26 vs 26/26, P = 0.003). However, there was no significant improvement in parental knowledge: (i) of the meaning of the term ‘cerebral palsy’ (0/26 vs 5/26, P = 0.060), (ii) that ‘early intervention therapy’ given by a team of therapists is its recommended therapy (18/26 v 23/26, P = 0.174), (iii) of the meaning of the term ‘early intervention therapy’ (12/26 vs 17/26, P = 0.163), and (iv) that it is preventable with good medical care (8/26 vs 10/26, P = 0.560).

Conclusion

Parental knowledge of cerebral palsy is inadequate. A single-session educational program can significantly improve parental knowledge about many ‘core basic issues’ regarding cerebral palsy.

Key words

Disabled children Educational intervention Parents Parental perceptions 

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References

  1. 1.
    Eicher PS, Batshaw ML. Cerebral palsy. Pediatr Clin North Am 1993; 40: 537–551.PubMedGoogle Scholar
  2. 2.
    Rosenbaum P. Cerebral palsy: what parents and doctors want to know. BMJ 2003; 326: 970–974.PubMedCrossRefGoogle Scholar
  3. 3.
    Murphy N, Such-Neibar T. Cerebral palsy diagnosis and management: the state of the art. Curr Probl Pediatr Adolesc Health Care 2003; 33: 146–169.PubMedCrossRefGoogle Scholar
  4. 4.
    Ashwal S, Russman BS, Blasco PA et al. Practice parameter: diagnostic assessment of the child with cerebral palsy: report of the Quality Standards Subcommittee of the American Academy of Neurology and the Practice Committee of the Child Neurology Society. Neurology 2004; 62: 851–863.PubMedGoogle Scholar
  5. 5.
    Suvanand S, Kapoor SK, Reddaiah VP, Singh U, Sundaram KR. Risk factors for cerebral palsy. Indian J Pediatr 1997; 64: 677–685.PubMedCrossRefGoogle Scholar
  6. 6.
    Singhi PD, Ray M, Suri G. Clinical spectrum of cerebral palsy in north India—an analysis of 1,000 cases. J Trop Pediatr 2002; 48: 162–166.PubMedCrossRefGoogle Scholar
  7. 7.
    Guralnick MJ. Effectiveness of early intervention for vulnerable children: a developmental perspective. Am J Ment Retard 1998; 102: 319–345PubMedCrossRefGoogle Scholar
  8. 8.
    Bailey DB, Aytch LS, Odom SL, Symons F, Wolery M. Early intervention as we know it. Ment Retard Dev Dis Res Rev 1999; 5: 11–20.CrossRefGoogle Scholar
  9. 9.
    Anderson LM, Shinn C, Fullilove MT et al. The effectiveness of early childhood development programs. A systematic review. Am J Prev Med 2003; 24(Suppl 3): S32–S46.CrossRefGoogle Scholar
  10. 10.
    Malin AJ. Indian adaptation of the Vineland Social Maturity Scale. Ist ed. Lucknow; Indian Psychological Corporation, 1971.Google Scholar
  11. 11.
    Kamat VV, ed. Measuring intelligence of Indian children, 4th ed. Bombay; Oxford University Press, 1967.Google Scholar
  12. 12.
    Kuppuswamy B. Manual of socioeconomic status (urban), 2nd ed. Delhi: Manasayan, 1981.Google Scholar
  13. 13.
    Mishra D, Singh HP. Kuppuswamy’s socioeconomic status scale-a revision. Indian J Pediatr 2003; 70: 273–274.PubMedCrossRefGoogle Scholar
  14. 14.
    Hagberg B, Hagberg G, Olow I, von Wendt L. The changing panorama of cerebral palsy in Sweden. V. The birth year period 1979–82. Acta Paediatr Scand 1989; 78: 283–290.PubMedCrossRefGoogle Scholar
  15. 15.
    Singhi PD. Cerebral palsy-management. Indian J Pediatr 2004; 71: 635–639.PubMedCrossRefGoogle Scholar
  16. 16.
    Kant L, Dewan S. Parents’ knowledge about cerebral palsy. Indian Pediatr 1983; 20: 875–876.PubMedGoogle Scholar
  17. 17.
    Kaur P, Chavan BS, Lata S et al. Early intervention in developmental delay. Indian J Pediatr 2006; 73: 405–408.PubMedCrossRefGoogle Scholar
  18. 18.
    Bairg, McConacbie H, Scrutton D. Parents perception of disclosure of the diagnosis of cerebral palsy arch. Dis Child 2000; 83: 475–480.CrossRefGoogle Scholar

Copyright information

© Dr. K C Chaudhuri Foundation 2008

Authors and Affiliations

  • Sunil Karande
    • 1
  • Shailesh Patil
    • 1
  • Madhuri Kulkarni
    • 1
  1. 1.Developmental Clinic, Division of Pediatric Neurology, Department of PediatricsLokmanya Tilak Municipal Medical College & General HospitalSion, MumbaiIndia
  2. 2.MumbaiIndia

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