Current Psychiatry Reports

, 15:377 | Cite as

Knowledge and Attitudes about Attention-Deficit/Hyperactivity Disorder (ADHD) and its Treatment: The Views of Children, Adolescents, Parents, Teachers and Healthcare Professionals

Attention-Deficit Disorder (R Bussing, Section Editor)
Part of the following topical collections:
  1. Topical Collection on Attention-Deficit Disorder

Abstract

Attention-deficit/hyperactivity disorder (ADHD) is a common neuro-developmental disorder that causes controversy; this may have a negative effect on the ability of families, teachers and healthcare professionals to achieve shared understanding and goals. This article reviews recent research of the knowledge and attitudes of children, adolescents, parents, teachers, healthcare professionals and the public about ADHD. Findings suggest that misconceptions about ADHD persist, and children with ADHD and their parents report stigmatizing experiences. Educational interventions to improve the knowledge of teachers about ADHD appeared to be effective in the short term. Parents and professionals working together in the diagnosis and treatment of children with ADHD may have different views about their roles in the shared decision-making process. Studies have reported both similarities and differences in parents’ and professionals’ views about the effectiveness of treatments for ADHD, but all stakeholders supported the principles of information-sharing and working in partnership.

Keywords

Attention-deficit/hyperactivity disorder ADHD Hyperkinetic disorder Treatment Knowledge Attitude Perception Stigma Child Adolescent Young people Parent Teacher Paediatrician Family physician General practitioner Primary care Professional Stakeholder Intervention Barrier Questionnaire 

References

Recently published papers of particular interest have been highlighted as: • Of importance •• Of major importance

  1. 1.
    American Psychiatric Association. Diagnostic and statistical manual of mental disorders. Text revision (DSM-IV TR). 4th ed. Washington, DC: The Press; 2000.CrossRefGoogle Scholar
  2. 2.
    DeGrandpre RJ. Ritalin nation: rapid fire culture and the transformation of human consciousness. New York: W. W. Norton & Company; 2000.Google Scholar
  3. 3.
    American Academy of Pediatrics, Project Advisory Committee. The medical home: medical home initiatives for children with special needs. Pediatrics. 2002;110:184–6.CrossRefGoogle Scholar
  4. 4.
    Rodrigo MD, Perera D, Eranga VP, Williams SS, Kuruppuarachchi KA. The knowledge and attitude of primary school teachers in Sri Lanka towards childhood attention deficit hyperactivity disorder. Ceylon Med J. 2011;56:51–4.PubMedCrossRefGoogle Scholar
  5. 5.
    Ghanizadeh A, Zarei N. Are GPs adequately equipped with the knowledge for educating and counseling of families with ADHD children? BMC Fam Pract. 2010;11:5.PubMedCrossRefGoogle Scholar
  6. 6.
    Gilmore L. Community knowledge and beliefs about ADHD. Aust Educ Dev Psychol. 2010;27:20–30.CrossRefGoogle Scholar
  7. 7.
    •• Bussing R, Zima BT, Mason DM, Meyer JM, White K, Garvan CW. ADHD knowledge, perceptions, and information sources: perspectives from a community sample of adolescents and their parents. J Adolesc Health. 2012;51:593–600. This study explores adolescentsand parentsperceptions, and their information needs and preferences; findings have important clinical and psycho-educational implications.PubMedCrossRefGoogle Scholar
  8. 8.
    Canu WH, Mancil EB. An examination of teacher trainees’ knowledge of Attention-Deficit/Hyperactivity Disorder. Sch Ment Heal. 2012;4:105–14.CrossRefGoogle Scholar
  9. 9.
    Kos JM, Richdale AL, Jackson MS. Knowledge about Attention-Deficit/Hyperactivity Disorder: a comparison of in-service and preservice teachers. Psychol Schools. 2004;41:517–26.CrossRefGoogle Scholar
  10. 10.
    Morley CP. The effects of patient characteristics on ADHD diagnosis and treatment: a factorial study of family physicians. BMC Fam Pract. 2010;11:11.PubMedCrossRefGoogle Scholar
  11. 11.
    •• Singh, I. Voices on identity, childhood, ethics and stimulants (VOICES) Study: Final Report. London, UK, 2012. Available at http://www.adhdvoices.com/adhdreport/. Accessed April 2013. This large cross-national qualitative study brings childrens voices into the debate and addresses previously unexplored ethical issues.
  12. 12.
    Goffman E. Stigma: Notes on the management of spoiled identity. Englewood Cliffs, NJ: Prentice-Hall; 1963.Google Scholar
  13. 13.
    Martin JK, Pescosolido BA, Olafsdottir S, McLeod JD. The construction of fear: Americans’ preferences for social distance from children and adolescents with mental health problems. J Health Soc Behav. 2007;48:50–67.PubMedCrossRefGoogle Scholar
  14. 14.
    Koro-Ljungberg M, Bussing R. The management of courtesy stigma in the lives of families of teenagers with ADHD. J Fam Issues. 2009;30:1175–200.CrossRefGoogle Scholar
  15. 15.
    Bussing R, Zima BT, Mason DM, Porter PC, Garvan CW. Receiving treatment for attention-deficit hyperactivity disorder: do the perspectives of adolescents matter? J Adolesc Health. 2011;49:7–14.PubMedCrossRefGoogle Scholar
  16. 16.
    • O'Driscoll C, Heary C, Hennessy E, McKeague L. Explicit and implicit stigma towards peers with mental health problems in childhood and adolescence. J Child Psychol Psychiatry. 2012;53:1054–62. This vignette study explores peer stigmatization of children with ADHD; findings suggest that negative attitudes towards peers with ADHD increase in adolescence, highlighting the need to provide timely interventions to reduce stigma.PubMedCrossRefGoogle Scholar
  17. 17.
    • dosReis S, Barksdale CL, Sherman A, Maloney K, Charach A. Stigmatizing experiences of parents of children with a new diagnosis of ADHD. Psychiatr Serv. 2010;61:811–6. This qualitative study addressescourtesy stigmaand other factors that have a negative impact on help-seeking.PubMedCrossRefGoogle Scholar
  18. 18.
    Singh I, Kendall T, Taylor C, Mears A, Hollis C, Batty M, et al. Young people’s experience of adhd and stimulant medication: a qualitative study for the NICE guideline. Child Adol Ment H-UK. 2010;15:186–92.CrossRefGoogle Scholar
  19. 19.
    Wiener J, Malone M, Varma A, Markel C, Biondic D, Tannock R, et al. Children’s perceptions of their ADHD symptoms: Positive illusions, attributions, and stigma. Can J School Psychol. 2012;27:217–42.CrossRefGoogle Scholar
  20. 20.
    Kaidar I, Wiener J, Tannock R. The attributions of children with attention deficit/hyperactivity disorder for their problem behaviours. J Atten Disord. 2003;6:99–109.PubMedCrossRefGoogle Scholar
  21. 21.
    Gajaria A, Yeung E, Goodale T, Charach A. Beliefs about attention-deficit/hyperactivity disorder and response to stereotypes: youth postings in Facebook groups. J Adolesc Health. 2011;49:15–20.PubMedCrossRefGoogle Scholar
  22. 22.
    Kellison I, Bussing R, Bell L, Garvan C. Assessment of stigma associated with attention-deficit hyperactivity disorder: psychometric evaluation of the ADHD stigma questionnaire. Psychiatry Res. 2010;178:363–9.PubMedCrossRefGoogle Scholar
  23. 23.
    Bell L, Long S, Garvan C, Bussing R. The impact of teacher credentials on ADHD Stigma Perceptions. Psychol Schools. 2011;48:184–97.CrossRefGoogle Scholar
  24. 24.
    • Ohan JL, Visser TAW, Strain MC, Allen L. Teachers’ and education students’ perceptions of and reactions to children with and without the diagnostic label “ADHD”. J School Psychol. 2011;49:81–105. This vignette study found that the label ‘ADHD’ in a child influences teachers’ perception of the child’s behaviour as more disruptive, but also prompts them to take positive steps to help. These findings are clinically relevant as concerns about teachers’ attitudes are frequently raised by parents in clinical encounters.CrossRefGoogle Scholar
  25. 25.
    Steele M, Zayed R, Davidson B, et al. Referral patterns and training needs in psychiatry among primary care physicians in Canadian rural/remote areas. J Can Acad Child Adolesc Psychiatry. 2012;21:111–23.PubMedCrossRefGoogle Scholar
  26. 26.
    Sarraf N, Karahmadi M, Marasy MR, Azhar SM. A comparative study of the effectiveness of nonattendance and workshop education of primary school teachers on their knowledge, attitude and function towards ADHD students in Isfahan in 2010. J Res Med Sci. 2011;16:1196–201.PubMedGoogle Scholar
  27. 27.
    Barnett B, Corkum P, Elik N. A web-based intervention for elementary school teachers of students with attention-deficit/hyperactivity disorder (ADHD). Psychol Serv. 2012;9:227–30.PubMedCrossRefGoogle Scholar
  28. 28.
    Aguiar AP, Kieling RR, Costa AC, et al. Increasing teachers' knowledge about ADHD and learning disorders: an investigation on the role of a psychoeducational intervention. J Atten Disord. Epub ahead of print July 30, 2012.Google Scholar
  29. 29.
    White SW, Sukhodolsky DG, Rains AL, Foster D, McGuire JF, Scahill L. Elementary school teachers’ knowledge of Tourette syndrome, obsessive-compulsive disorder, & Attention Deficit/Hyperactivity Disorder: Effects of teacher training. J Dev Phys Disabil. 2011;23:5–14.CrossRefGoogle Scholar
  30. 30.
    Syed EU, Hussein SA. Increase in teachers’ knowledge about ADHD after a week-long training program: a pilot study. J Atten Disord. 2010;13:420–3.PubMedCrossRefGoogle Scholar
  31. 31.
    •• Fiks AG, Hughes CC, Gafen A, Guevara JP, Barg FK. Contrasting parents' and pediatricians' perspectives on shared decision-making in ADHD. Pediatrics. 2011;127:188–96.CrossRefGoogle Scholar
  32. 32.
    Fiks AG, Gafen A, Hughes CC, Hunter KF, Barg FK. Using freelisting to understand shared decision making in ADHD: parents' and pediatricians' perspectives. Patient Educ Couns. 2011;84:236–44.PubMedCrossRefGoogle Scholar
  33. 33.
    Davis CC, Claudius M, Palinkas LA, Wong JB, Leslie LK. Putting families in the center: family perspectives on decision making and ADHD and implications for ADHD care. J Atten Disord. 2012;16:675–84.PubMedCrossRefGoogle Scholar
  34. 34.
    Terbeck S, Chesterman LP. Parents, ADHD and the internet. Atten Defic Hyperact Disord. 2012;4:159–66.PubMedCrossRefGoogle Scholar
  35. 35.
    • Sciberras E, Iyer S, Efron D, Green J. Information needs of parents of children with attention-deficit/hyperactivity disorder. Clin Pediatr. Information needs of parents of children with attention-deficit/hyperactivity disorder. This article investigates a clinically relevant subject; it shows that parents prefer verbal information from a professional to any other information source.Google Scholar
  36. 36.
    Schachter D, Tharmalingam S, Kleinman I. Informed consent and stimulant medication: adolescents' and parents' ability to understand information about benefits and risks of stimulant medication for the treatment of attention-deficit/hyperactivity disorder. J Child Adolesc Psychopharmacol. 2011;21:139–48.PubMedCrossRefGoogle Scholar
  37. 37.
    Bussing R, Koro-Ljungberg M, Noguchi K, et al. Willingness to use ADHD treatments: a mixed methods study of perceptions by adolescents, parents, health professionals and teachers. Soc Sci Med. 2012;74:92–100.PubMedCrossRefGoogle Scholar
  38. 38.
    • Berger-Jenkins E, McKay M, Newcorn J, Bannon W, Laraque D. Parent medication concerns predict underutilization of mental health services for minority children with ADHD. Clin Pediatr. 2012;51:65–76. This longitudinal study shows that children with ADHD from ethnic minorities may not access care if their parentsconcerns about medication are not elicited and addressed by the healthcare professional.CrossRefGoogle Scholar
  39. 39.
    Dulcan M. Practice parameters for the assessment and treatment of children, adolescents, and adults with attention-deficit/hyperactivity disorder. J Am Acad Child Adolesc Psychiatry. 1997;36:85S–121S.PubMedCrossRefGoogle Scholar
  40. 40.
    American Academy of Pediatrics. ADHD: Clinical practice guideline for the diagnosis, evaluation, and treatment of Attention-Deficit/Hyperactivity Disorder in children and adolescents. Pediatrics. 2011;128:1007–22.CrossRefGoogle Scholar
  41. 41.
    National Institute for Health and Clinical Excellence Attention Deficit Hyperactivity Disorder. Diagnosis and management of ADHD in children, young people and adults (Clinical Guidance 72). London: NICE; 2008.Google Scholar
  42. 42.
    Ross WJ, Chan E, Harris SK, Goldman SJ, Rappaport LA. Pediatrician-psychiatrist collaboration to care for children with attention deficit hyperactivity disorder, depression, and anxiety. Clin Pediatr. 2011;50:37–43.CrossRefGoogle Scholar
  43. 43.
    Dryer R, Kiernan MJ, Tyson GA. Parental and professional beliefs on the treatment and management of ADHD. J Atten Disord. 2012;16:398–405.PubMedCrossRefGoogle Scholar
  44. 44.
    Fiks AG, Mayne S, Hughes CC, et al. Development of an instrument to measure parents' preferences and goals for the treatment of attention deficit-hyperactivity disorder. Acad Pediatr. 2012;12:445–55.PubMedCrossRefGoogle Scholar
  45. 45.
    Ferrin M, Ruiz-Veguilla M, Blanc-Betes M, et al. Evaluation of attitudes towards treatment in adolescents with attention deficit hyperactivity disorder (ADHD). Eur Child Adolesc Psychiatry. 2012;21:387–401.PubMedCrossRefGoogle Scholar
  46. 46.
    Cox DJ, Davis MT, Cox BS, et al. quantifying the relationship between perceived consequences of ADHD medication and its usage. J Atten Disord. Epub ahead of print August 21, 2012.Google Scholar

Copyright information

© Springer Science+Business Media New York 2013

Authors and Affiliations

  1. 1.Nottinghamshire Healthcare NHS Trust and University of NottinghamNottinghamUK
  2. 2.Division of Psychiatry and Institute of Mental HealthUniversity of Nottingham, and Nottinghamshire Healthcare NHS TrustNottinghamUK

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