Migraine: Stigma in Society
Migraine is a prevalent disease with a substantial socioeconomic impact. However, stigma affects social attitude toward migraine, accruing additional burden on individuals with migraine and isolating them from a society that should be supporting them.
Purpose of this Review
This review will discuss the following concepts: (1) the emergence of stigma toward migraine and its impact on medical care; (2) internalized stigma among those with migraine and its detrimental effect on quality of life and patient-physician relationships; (3) the structural impact of stigma on research funding, workplace support, and specialized care; and (4) strategies for “rebranding” the disease and alleviating stigma toward migraine.
Recent literature on condition rebranding offers strategies on how to define and communicate migraine to the public.
Rebranding of migraine to alleviate societal stigma is paramount. This involves use of unified language, education, and advocacy.
KeywordsStigma Migraine Disability Rebranding Wellness
Research partially funded by The Groten Family Fund
Compliance with Ethical Standards
Conflict of Interest
Simy K. Parikh and William B. Young declare no conflict of interest.
Human and Animal Rights and Informed Consent
This article does not contain any studies with human or animal subjects performed by any of the authors.
Papers of particular interest, published recently, have been highlighted as: • Of importance •• Of major importance
- 2.• Vos T, Barber RM, Bell B, Bertozzi-Villa A, Biryukov S, Bolliger I, et al. Global, regional, and national incidence, prevalence, and years lived with disability for 301 acute and chronic diseases and injuries in 188 countries, 1990-2013: a systematic analysis for the Global Burden of Disease Study 2013 Global Burden of Disease Study 2013. Lancet. 2015;386:743–800 This analysis demonstrates the significant total impact of migraine on global disability. CrossRefGoogle Scholar
- 5.Stokes M, Becker WJ, Lipton RB, Sullivan SD, Wilcox TK, Wells L, et al. Cost of health care among patients with chronic and episodic migraine in Canada and the USA: results from the International Burden of Migraine Study (IBMS). Headache J Head Face Pain. 2011;51(7):1058–77Google Scholar
- 8.The World Health Organization, Burden LT. Atlas of headache disorders and resources in the world 2011. Trento: World Heal. Organ; 2011.Google Scholar
- 10.Foxhall K. Migraines were taken more seriously in medieval times: where did we go wrong? [Internet]. Available from: theconversation.com/migraines-were-taken-more-seriously-in-medieval-times-where-did-we-go-wrong-64497 [Accessed 26 Apr 2018].
- 11.• Kempner J. Gendering the migraine market: do representations of illness matter? Soc Sci Med. 2006;63:1986–97 This dicussion describes how migriane is represented commerically and offers perspective on how marketing can influence the development of societal stigma toward migraine. CrossRefGoogle Scholar
- 14.•• Young WB, Park JE, Tian IX, Kempner J. The stigma of migraine. PLoS One. 2013;8(1):e54074. This is an original study assessing internalized stigma in individuals with migriane, which demonstrates a link between ability to work and internalized stigma among people with chronic migriane. Google Scholar
- 16.• Pescosolido BA, Martin JK. The stigma complex. Annu rev Sociol. 2015;41:87–116 This is a comprehensive review on the multiple individual and community factors that contribute to the complexity of stigma. This review also discusses the terminology involved in the study of stigma. CrossRefGoogle Scholar
- 25.Employees hide headaches, migraines from supervisors. [Internet]. Available from: https://www.reuters.com/brandfeatures/excedrin/employees-hide-headaches-migraines-from-supervisors Accessed 25 Apr 2018.
- 26.UCNS Diplomates Certified in Headache Medicine. [Internet]. Available from: https://www.ucns.org/globals/axon/assets/12644.pdf Accessed 26 Apr 2018.