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Current Oncology Reports

, Volume 14, Issue 6, pp 486–493 | Cite as

Overview of Electronic Data Sharing: Why, How, and Impact

  • Roy B. JonesEmail author
  • Dianne Reeves
  • Charles S. Martinez
Innovations in Information Technology in Cancer Medicine (RB Jones, Section Editor)

Abstract

Electronic data sharing is a critical, but underappreciated, requirement for modern medical informatics systems. This capability is facilitated by acquisition of structured clinical data, but optimized only if this data is stored and transmitted using standardized representations. Most electronic medical record and clinical trials management systems are poorly suited for data sharing. In the near future, sharing clinical outcome data is likely to become very important, so these capabilities must be improved. In this article, basic concepts of electronic data sharing are reviewed and their use illustrated in a data-sharing project developed to support Hematopoietic Cell Transplantation reporting to a national database.

Keywords

Informatics Data sharing Data standards Database BRIDG SCTOD Electronic medical records Outcomes 

Notes

Disclosure

No potential conflicts of interest relevant to this article were reported.

References

  1. 1.
    Gelijns AC, Gabriel SE. Looking beyond translation—integrating clinical research with medical practice. N Engl J Med. 2012;366:18,1659–61.CrossRefGoogle Scholar

Copyright information

© Springer Science+Business Media, LLC 2012

Authors and Affiliations

  • Roy B. Jones
    • 1
    Email author
  • Dianne Reeves
    • 2
  • Charles S. Martinez
    • 1
  1. 1.MD Anderson Cancer CancerHoustonUSA
  2. 2.Informatics Operations BranchNational Cancer InstituteRockvilleUSA

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