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Guidelines for Treatment and Monitoring of Adult Survivors of Pediatric Brain Tumors

  • Anna J. JanssEmail author
  • Claire Mazewski
  • Briana Patterson
Neuro-oncology (GJ Lesser, Section Editor)
Part of the following topical collections:
  1. Topical Collection on Neuro-oncology

Opinion statement

Pathologies of pediatric brain tumors are more varied than those diagnosed in adults and survival outcomes more optimistic. Therapies for pediatric brain tumors are also diverse and treatment options are expanding. The growing number of adult survivors of childhood brain tumors is quite diverse. Medical management of these adults requires understanding the tumor diagnosis and location, the modalities used to treat the tumor, the age of the survivor at the time of diagnosis and treatment, any complications of treatment, and, most importantly, the baseline medical condition and neurological function of each adult survivor. A network of medical, neurological, and mental health providers is critical in the care of a child with a brain tumor. A comparable network should be available to survivors of these tumors since they may transition to adulthood with medical and neurological deficits and can acquire additional late effects of treatments as they age. Optimally, each survivor will have an individualized survivor health plan (SHP) that concisely summarizes the tumor, treatments, potential late effects, and screening that may identify evolving late effects before they impact mental, social or physical functioning. This plan helps patients, families, and the medical team advocate for surveillance aiming to optimize the survivor’s quality of life. Failure to support the health and function of these heroic cancer survivors renders the medical advances, the courage, and the struggle that permitted survival meaningless.

Keywords

Pediatric brain tumor survivors Long-term cancer survivor guidelines Hypothalamic syndromes Treatment-induced secondary malignancies Radiation-induced cognitive impairment Frailty 

Notes

Compliance With Ethical Standards

Conflict of Interest

Anna J. Janss, Claire Mazewski, and Briana Patterson declare they have no conflict of interest.

Human and Animal Rights and Informed Consent

This article does not contain any studies with human or animal subjects performed by any of the authors.

References and Recommended Reading

Papers of particular interest, published recently, have been highlighted as: • Of importance •• Of major importance

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Copyright information

© Springer Science+Business Media, LLC, part of Springer Nature 2019

Authors and Affiliations

  • Anna J. Janss
    • 1
    Email author
  • Claire Mazewski
    • 1
  • Briana Patterson
    • 2
  1. 1.Neuro-OncologyAflac Children’s Cancer and Blood Disorders Clinic/Emory Pediatric InstituteAtlantaUSA
  2. 2.Pediatric EndocrinologyEmory Children’s Center/Emory Pediatric InstituteAtlantaUSA

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