Psycho-Oncologie

, Volume 11, Issue 2, pp 69–75 | Cite as

Éléments de qualité de vie individuelle pour une amélioration de la prise en charge en psycho-oncologie pédiatrique

  • S. Scaon
  • G. Chasseigne
  • C. Giraudeau
  • P. Blouin
  • P. Colombat
  • C. Réveillère
Article Original / Original Article

Résumé

Ce travail étudie les relations perçues entre la satisfaction dans les domaines de vie jugés les plus importants et les contraintes imposées par la maladie et les soins (45 patients atteints d’une leucémie aiguë et âgés de 7 à 16 ans; outils: SEIQoL-DWet le PedsQL module cancer). Chez les 7–11 ans, la qualité de vie liée à la maladie est associée à la satisfaction dans les domaines de la famille et des activités physiques. Chez les adolescents, les relations sont plus complexes. L’étude conclut à la nécessité de variations de prise en charge selon l’âge.

Mots clés

SEIQoL-DW PedsQL™ 3.0 module cancer Activité physique adaptée Famille Oncologie pédiatrique 

A study of aspects of quality of life to improve care in pediatric psycho-oncology

Abstract

This study examines the perceived relationships between satisfaction in the areas of life patients consider most important and the constraints imposed on them by the disease and treatment (45 patients with leukemia aged 7–16 years; tools: SEIQoL-DW and the PedsQL cancer module). For children aged 7–11, health-related quality of life is associated with satisfaction in relation to family and physical activity. For adolescents, the relationships are more complex. In conclusion, the study highlights the need to vary management strategies according to age.

Keywords

SEIQoL-DW PedsQL™ 3.0 cancer module Adapted physical activity Family Pediatric oncology 

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Références

  1. 1.
    Katz AJ, Chia VM, Schoonen WM, Kelsh MA (2015) Acute lymphoblastic leukemia: an assessment of international incidence, survival, and disease burden. Cancer Causes Control 26:1627–42CrossRefPubMedGoogle Scholar
  2. 2.
    Van Litsenburg RRL, Huisman J, Raat H, et al (2013) Healthrelated quality of life and utility scores in short-term survivors of pediatric acute lymphoblastic leukemia. Qual Life Res 22:677–81CrossRefPubMedGoogle Scholar
  3. 3.
    Darcy L, Björk M, Enskär K, et al (2014) The process of striving for an ordinary, everyday life, in young children living with cancer, at six month and one year post diagnosis. Eur J Oncol Nurs 18:605–12CrossRefPubMedGoogle Scholar
  4. 4.
    Suzuki LK, Kato PM (2003) Psychosocial support for patients in pediatric oncology: the influences of parents, schools, peers, and technology. J Ped Oncol Nurs 20:159–74CrossRefGoogle Scholar
  5. 5.
    Varni JW, Burwinkle TM, Katz ER, et al (2002) The PedsQL™ in pediatric cancer: reliability and validity of the pediatric quality of life inventory generic core scales, multidimensional fatigue scale, and cancer module. Cancer 94:2090–106CrossRefPubMedGoogle Scholar
  6. 6.
    Savage E, Riordan AO, Hughes M (2009) Quality of life in children with acute lymphoblastic leukemia: a systematic review. Eur J Oncol Nurs 13:36–48CrossRefPubMedGoogle Scholar
  7. 7.
    Chang PC, Yeh CH (2005) Agreement between child self-report and parent proxy report to evaluate quality of life in children with cancer. Psycho-Oncology 14:125–34CrossRefPubMedGoogle Scholar
  8. 8.
    Eiser C, Jenney M (2007) Measuring quality of life. Arch Dis Child 92:348–50CrossRefPubMedPubMedCentralGoogle Scholar
  9. 9.
    Hinds PS (2010) Progress in quality of life in children and adolescents with cancer. Semin Oncol Nurs 26:18–25CrossRefPubMedGoogle Scholar
  10. 10.
    Gibson F, Aldiss S, Horstmann M, et al (2010) Children and young people’s experiences of cancer care: a qualitative research study using participatory methods. Int J Nurs Stud 47:1397–407CrossRefPubMedGoogle Scholar
  11. 11.
    Cox MRH (2005) Psychologie du sport. Ed De BoeckGoogle Scholar
  12. 12.
    Speyer E, Herbinet A, Vuillemin A, et al (2008) Activité physique adaptée et qualité de vie liée à la santé lors d’un séjour hospitalier chez des enfants atteints d’un cancer. Rev Epidemiol Sante Publique 56:270CrossRefGoogle Scholar
  13. 13.
    Speyer E, Vuillemin A, Herbinet A, et al (2010) Effect of adapted physical activity on health-related quality of life among hospitalized children and adolescents (the ACTIV’HOP randomized controlled trial): design and methods. Contemp Clin Trials 31:165–71CrossRefPubMedGoogle Scholar
  14. 14.
    Kusch M, Labouvie H, Ladisch GF, et al (2000) Structuring psychosocial care in pediatric oncology. Patient Educ Counsel 40:231–45CrossRefGoogle Scholar
  15. 15.
    Enskar K, Knutsson S, Huus K, et al (2014) A literature review of the results from nursing and psychosocial research within Swedish pediatric oncology. J Nurs Care 3:1–8Google Scholar
  16. 16.
    Joyce CRB, Hickey A, McGee HM, et al (2003) A theory-based method for the evaluation of individual quality of life: the SEIQoL. Qual Life Res 12:275–80CrossRefPubMedGoogle Scholar
  17. 17.
    Joyce CRB, McGee HM, O’Boyle CA (1999) Individual quality of life: approaches to conceptualisation and assessment. Ed Taylor & FrancisGoogle Scholar
  18. 18.
    Vinson J, Shank L, Thomas PD, et al (2010) Self-generated domains of quality of life in children with and without cerebral palsy. J Dev Phys Dis 22:497–508CrossRefGoogle Scholar
  19. 19.
    Wagner J (2004) Acceptability of the schedule for the evaluation of individual quality of life-direct weight (SEIQoL-DW) in youth with type 1 diabetes. Qual Life Res 13:1279–85CrossRefPubMedGoogle Scholar
  20. 20.
    Rodary C, Dauchy S, Beauvallet C, et al (2005) Intérêt de la mesure individualisée de la qualité de vie en oncologie: utilisation du SEIQoL chez des patients traités pour tumeur neuroendocrine. Rev Francoph Psycho-Oncol 4:36–44CrossRefGoogle Scholar
  21. 21.
    O’Boyle CA, Browne J, Hickey AM, et al (1993) The Schedule for the evaluation of individual quality of life (SEIQoL): a direct weighting procedure for quality of life domains (SEIQoL-DW) administration manual. Dublin Department of Psychology, Medical School, Royal College of Surgeons in IrelandGoogle Scholar
  22. 22.
    Hickey AM, Bury G, O’Boyle CA, et al (1996) A new short form individual quality of life measure (SEIQoL-DW): application in a cohort of individuals with HIV/AIDS. BMJ 313:29–33CrossRefPubMedPubMedCentralGoogle Scholar
  23. 23.
    Cohen J (1988) Statistical power analysis for the behavioral sciences. Ed Lawrence Erlbaum AssociatesGoogle Scholar
  24. 24.
    Boinon D, Charles C, Dauchy S, Sultan S (2011) Les effets de l’expression émotionnelle sur l’ajustement au cancer: une revue systématique de la littérature. Psycho-Oncologie 5:173–90CrossRefGoogle Scholar
  25. 25.
    Brunault P, Champagne AL, Huguet G, et al (2016) Major depressive disorder, personality disorders and coping strategies are independent risk factors for lower quality of life in non-metastatic breast cancer patients. Psycho-Oncology 25:513–20CrossRefPubMedGoogle Scholar
  26. 26.
    Brédart A, Untas A, Copel L, et al (2016) Breast cancer survivors’ supportive care needs, post-traumatic growth and satisfaction with doctors’ interpersonal skills in relation to physical activity eight months after the end of treatment: a prospective exploratory study. Oncology 90:151–9CrossRefPubMedGoogle Scholar
  27. 27.
    Scaon S, Leblanc S, Moreau C, et al (2013) Perception de l’activité physique adaptée par les parents d’enfants hospitalisés en oncohématologie pédiatrique. Psycho-Oncologie 7:140–5CrossRefGoogle Scholar
  28. 28.
    Kyngas H, Mikkonen R, Nousiainen EM, et al (2001) Coping with the onset of cancer: coping strategies and resources of young people with cancer. Eur J Cancer Care 10:6–11CrossRefGoogle Scholar
  29. 29.
    Réveillère C, Courtois R (2007) Tracas quotidiens et santé psychique à la préadolescence. Rev Francoph Stress Trauma 7:193–204Google Scholar

Copyright information

© Lavoisier 2017

Authors and Affiliations

  • S. Scaon
    • 1
    • 2
  • G. Chasseigne
    • 3
  • C. Giraudeau
    • 2
    • 4
  • P. Blouin
    • 5
  • P. Colombat
    • 2
    • 6
  • C. Réveillère
    • 7
  1. 1.Unité oncologie–hématologie pédiatriqueCHRU ClochevilleTours cedex 09France
  2. 2.Laboratoire psychologie des âges de la vie (EA-2114)université de ToursTours cedex 01France
  3. 3.HDR, laboratoire psychologie des âges de la vie (EA-2114)université de ToursTours cedex 01France
  4. 4.MCU psychologieuniversité de ToursTours cedex 01France
  5. 5.PH, unité oncologie–hématologie pédiatrique, CHRU ClochevilleTours cedex 09France
  6. 6.PU, PH hématologie thérapie cellulaireCHRU BretonneauTours cedex 09France
  7. 7.laboratoire psychologie des âges de la vie (EA-2114)PR université de Tours, Programme de recherche « Étude des spécificités et déterminants psychologiques desprocessus adaptatifs en situation de vulnérabilité »Tours cedex 01France

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