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Vécu subjectif de la maladie et de la guérison chez 13 adolescents et jeunes adultes traités pour une hémopathie maligne dans l’enfance

Subjective experience of illness and recovery in 13 adolescents and young adults treated for childhood haematological malignancies

  • Article Original / Original Article
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Psycho-Oncologie

Résumé

Les auteurs rapportent les résultats d’une étude réalisée en 2010, qui a consisté à rencontrer, au cours d’un entretien semi-directif, 13 adolescents ou jeunes adultes guéris d’une hémopathie maligne de l’enfance, traités dans le service d’hématologie de l’hôpital d’enfants du CHU de Nancy. L’objectif est d’explorer le vécu de la maladie et des traitements, et surtout le vécu de la période de guérison. Certains d’entre eux présentent une détresse importante dans différents domaines. Ainsi, l’image du corps et l’estime de soi sont souvent altérées chez ces jeunes patients. Des préoccupations quant à une éventuelle stérilité ou des troubles sexuels parfois sévères sont retrouvés. Une ambivalence au sujet de leur future parentalité émerge de leur discours. Ces éléments sont des freins à un travail de guérison. Une consultation de suivi psychologique pourrait être proposée de façon systématique par un professionnel formé à cette problématique spécifique.

Abstract

The authors report the results of a study conducted in 2010, which consisted meeting, through a semi-structured interview, 13 adolescents or young adults medically cured of childhood haematological malignancies, treated in the department of haematology at the Children’s Hospital of Nancy. The objective is to explore the experience of illness and treatment, especially the experience of recovery. Some of them present significant distress in various subjects. Thus, body image and self-esteem are often altered among these young patients. Concerns about possible infertility or severe sexual dysfunction are found. Ambivalence about their future parenting emerges from their speech. These elements are obstacles to the recovery process. A follow-up psychological consultation could be provided in a systematic way by a professional trained in these specific problems.

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Authors and Affiliations

  1. Centre médicopsychologique pour enfants, 1, avenue Voltaire, F-54300, Lunéville, France

    J. Kieffer & D. Sibertin-Blanc

  2. Centre médicopsychologique pour enfants, 11, rue de la Madeleine, F-54000, Nancy, France

    M. -J. Gross

  3. Hôpital d’enfants, CHU de Nancy, rue du Morvan, F-54500, Vandœuvre-les-Nancy, France

    C. Schmitt & P. Bordigoni

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  1. J. Kieffer
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Correspondence to J. Kieffer.

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Kieffer, J., Gross, M.J., Schmitt, C. et al. Vécu subjectif de la maladie et de la guérison chez 13 adolescents et jeunes adultes traités pour une hémopathie maligne dans l’enfance. Psycho Oncologie 6, 217–230 (2012). https://doi.org/10.1007/s11839-012-0387-x

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  • DOI: https://doi.org/10.1007/s11839-012-0387-x

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