The Medical Expenditure Panel Survey (MEPS) Experiences with Cancer Survivorship Supplement
The prevalence of cancer survivorship in the USA is expected to increase in the future because the US population is increasing in size and is aging and because survival following diagnosis is improving for many types of cancer. Medical care costs associated with cancer are also projected to increase dramatically. However, currently available data for estimating medical care costs and other important aspects of the burden of cancer, including time spent receiving medical care, productivity loss due to morbidity for patients and their families, and financial hardship, are limited, particularly in the population under the age of 65.
We describe selected publicly available data sources for estimating the burden of cancer in the USA and a new collaborative effort to improve the quality of these data: the nationally representative Medical Expenditure Panel Survey (MEPS) Experiences with Cancer Survivorship Supplement.
Data from this effort can be used to address key gaps in cancer survivorship research related to medical care costs, employment patterns, financial hardship, and other aspects of the burden of illness for cancer survivors and their families.
Implications for cancer survivors
Research using the MEPS Experiences with Cancer Survivorship Supplement can inform efforts by health care policy makers, healthcare systems, providers, and employers to improve the cancer survivorship experience in the USA.
KeywordsCost of illness Health care expenditures Burden of illness Neoplasms SEER-Medicare NHIS MEPS
The authors wish to thank Cathy Bradley, Pamela Farley Short, Patricia Ganz, and Michael Feuerstein for comments on an early version of the MEPS Experiences with Cancer questionnaire; Martha Stapleton and Stephanie Beauvais of Westat for their detailed cognitive testing report describing responses in cancer survivors to the MEPS Experiences with Cancer questionnaire; and Stephanie Nutt and Ruth Rechis of LIVESTRONG, Neetu Chawla of the NCI for comments on an earlier version of the manuscript, and Timothy McNeel of IMS, Inc for programming assistance with the 2009 MEPS. Funding for the MEPS Experiences with Cancer Supplement was provided by the NCI, the CDC, the National Institutes of Health Office of Behavioral and Social Sciences Research, and the ACS and supported by the AHRQ and Westat.
- 1.Howlander N, Noone AM, Krapcho M, Neyman N, Aminou R, Waldron W, et al. SEER cancer statistics review, 1975-2008. Bethesda: National Cancer Institute; 2011.Google Scholar
- 8.Schwartz K, Claxton G, Martin K, Schmidt C. Spending to survive: cancer patients confront holes in the health insurance system. Kaiser Family Foundation and American Cancer Society; 2009.Google Scholar
- 9.Hewitt M, Greenfield S, Stovall E. From cancer patient to cancer survivor: lost in translation. Washington, DC: National Academies Press; 2006.Google Scholar
- 10.U.S. Department of Health & Human Services. Affordable Care Act. 2011. http://www.healthcare.gov/. Accessed 4 November 2011.
- 13.Agency for Healthcare Research and Quality. Healthcare Cost and Utilization Project (HCUP). 2010. http://www.ahrq.gov/data/hcup/. Accessed 4 January 2012.
- 16.Warren JL, Klabunde CN, Schrag D, Bach PB, Riley GF. Overview of the SEER-Medicare data: content, research applications, and generalizabilty to the United States elderly population. Med Care. 2002;40(8 Suppl):IV-3–IV-18.Google Scholar
- 17.Hackbarth GM. Medicare Cost-sharing and Supplemental Insurance. Statement before the Subcommittee on Health, Committee on Ways and Means, U.S. House of Representatives. 2003.Google Scholar
- 22.Centers for Disease Control and Prevention. National Health Interview Survey. 2011. http://www.cdc.gov/nchs/nhis.htm. Accessed 4 January 2012.
- 28.Thorpe KE, Howard D. Health insurance and spending among cancer patients. Health Aff (Millwood). 2003 Apr 9;(Suppl Web Exclusives):W3-189; 198.Google Scholar
- 31.National Cancer Institute. Medical Expenditure Panel Survey (MEPS): Experiences with Cancer Survivorship Supplement. 2011. http://healthservices.cancer.gov/surveys/meps/. Accessed 4 January 2012.
- 32.Lerro CC, Stein KD, Smith T, Virgo KS. A systematic review of large-scale surveys of cancer survivors conducted in North America, 1990–2011, under review. 2011.Google Scholar
- 33.Willis G. Cognitive interviewing: a tool for improving questionnaire design. Thousand Oaks: Sage; 2005.Google Scholar
- 34.Tourangeau R, Rips LJ, Rasinski K. The psychology of survey response. Cambridge: Cambridge University Press; 2000.Google Scholar
- 35.DeNavas-Walt C, Proctor BD, Smith JC. Income, Poverty, and Health Insurance Coverage in the United States: 2008. 2009. http://www.census.gov/prod/2009pubs/p60-236.pdf. Accessed 4 January 2012.