Journal of Cancer Survivorship

, Volume 5, Issue 4, pp 358–370 | Cite as

Survivorship care planning after the Institute of Medicine recommendations: how are we faring?

  • Carrie Tompkins Stricker
  • Linda A. Jacobs
  • Betsy Risendal
  • Alison Jones
  • Sarahlena Panzer
  • Patricia A. Ganz
  • Karen L. Syrjala
  • Mary S. McCabe
  • K. Scott Baker
  • Kenneth Miller
  • Jacqueline Casillas
  • Donald L. Rosenstein
  • Marci Campbell
  • Steven C. Palmer
Article

Abstract

Introduction

This study evaluates the concordance of treatment summaries (TSs) and survivorship care plans (SCPs) delivered to breast cancer survivors within the LIVESTRONG™ Network of Survivorship Centers of Excellence with Institute of Medicine (IOM) recommendations and describes additional structure/process variables.

Method

Seven NCI-designated comprehensive cancer centers and six community-based centers participated. TS/SCPs for 65 patients were rated against IOM recommendations using a study-derived checklist, and surveys were administered to better understand the structure and process of delivering TSs/SCPs.

Results

On average, fewer than half of IOM content recommendations were met for TSs (M = 46%) and less than two thirds for SCPs (M = 59%). No sites achieved ≥75% overall concordance with IOM recommendations for TSs and only two of 13 met this criterion for SCPs. Content domain scores across sites varied widely, as did the number of sites addressing domain content with ≥75% concordance. Nonetheless, resources required for document preparation and delivery were substantial.

Discussion

Gaps in concordance with IOM recommendations exist even in dedicated survivorship centers. A substantial time burden was also noted. Further research is needed to determine which informational elements are essential, to develop and test strategies for improving efficiency and reach, and to determine if outcomes of survivorship care planning warrant the resources required in their preparation and delivery.

Implications for survivors

TSs and SCPs have been recommended for all cancer survivors. Essential elements must be determined, approaches made more efficient, outcome improvements demonstrated, and cost-benefit analyses determined before survivors should expect widespread implementation of this recommendation for survivorship care.

Keywords

Treatment summaries Survivorship care plans/planning Breast cancer survivorship 

Notes

Acknowledgments

The authors would like to acknowledge contributions of both Donna Pucci and Alison Taggi, research coordinators at the University of Pennsylvania who were instrumental in conducting this study. We are also grateful to all of the clinical and research staff at each of the LIVESTRONG™ Survivorship Centers of Excellence and community-based affiliates who participated in and helped collect data for this study. This research was supported by funding from the LIVESTRONG™ Foundation.

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Copyright information

© Springer Science+Business Media, LLC 2011

Authors and Affiliations

  • Carrie Tompkins Stricker
    • 1
  • Linda A. Jacobs
    • 1
  • Betsy Risendal
    • 2
  • Alison Jones
    • 2
  • Sarahlena Panzer
    • 1
  • Patricia A. Ganz
    • 3
  • Karen L. Syrjala
    • 4
  • Mary S. McCabe
    • 6
  • K. Scott Baker
    • 5
  • Kenneth Miller
    • 7
  • Jacqueline Casillas
    • 8
  • Donald L. Rosenstein
    • 9
  • Marci Campbell
    • 10
  • Steven C. Palmer
    • 11
  1. 1.Abramson Cancer Center at the University of PennsylvaniaPhiladelphiaUSA
  2. 2.University of Colorado Cancer CenterAuroraUSA
  3. 3.UCLA Schools of Medicine & Public Health, Jonsson Comprehensive Cancer CenterLos AngelesUSA
  4. 4.Clinical Research Division, Fred Hutchinson Cancer Research Center: Survivorship ProgramSeattleUSA
  5. 5.Pediatric Blood and Marrow Transplantation and Survivorship Programs, Fred Hutchinson Cancer Research CenterSeattleUSA
  6. 6.Memorial Sloan-Kettering Cancer Center: Survivorship ProgramNew YorkUSA
  7. 7.Dana-Farber Cancer InstituteBostonUSA
  8. 8.David Geffen School of Medicine at UCLADepartment of Pediatrics, Division of Hematology/OncologyLos AngelesUSA
  9. 9.Departments of Psychiatry and Medicine, Comprehensive Cancer Support Program, North Carolina Cancer Hospital and Lineberger Cancer Center, University of North Carolina at Chapel HillChapel HillUSA
  10. 10.North Carolina Cancer Hospital and Lineberger Cancer Center, University of North Carolina at Chapel HillChapel HillUSA
  11. 11.Abramson Cancer Center at the University of PennsylvaniaPhiladelphiaUSA

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