Douleur et Analgésie

, Volume 23, Issue 1, pp 26–31 | Cite as

La symbolique des parents en regard de la douleur de leur enfant atteint d’une maladie chronique

Recherche Clinique / Clinical Research
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Résumé

La maladie incurable d’un enfant est imprégnée de douleur. Selon les familles, une symbolique unique est à l’œuvre, permettant ou non de donner un sens à la tragédie de la maladie. Ce projet doctoral explore les valeurs, symboles et spiritualité de ces parents. En modernité, la symbolique des miracles médicaux et du corps occupe une place très importante. Cela pourrait être la source d’une atrophie symbolique de certains parents, nuisant à une quête d’unité et de sens. La perte des relais temporels nous semble être la piste la plus importante à explorer auprès de ces parents.

Mots clés

Symbolisme Douleur et maladie chronique Souffrance des parents 

The symbolism of parents facing the pain of their chronically ill child

Abstract

The incurable disease of a child is filled with pain. Depending on families, a unique symbolism is at work, allowing or not to make sense of the tragedy of the disease. This doctoral project explores the values, symbols and spirituality of these parents. In modernity, the symbolisms of medical miracles and of the body occupy an important place. This could be the source of an atrophic symbolism for some parents, undermining the quest for unity and meaning. The loss of temporal relays seems to be the most important track to explore with these parents.

Keywords

Symbolism Chronic pain in chronic disease Parents’ suffering 

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Références

  1. 1.
    Barnes LL, Plotnikoff GA, Fox K, Pendleton S (2000) Spirituality, religion, and pediatrics: intersecting worlds of healing. Pediatrics 106:899–908PubMedGoogle Scholar
  2. 2.
    Clarke JN, Fletcher PC (2004) Parents as advocates: stories of surplus suffering when a child is diagnosed and treated for cancer. Soc Work Health Care 39:107–27CrossRefPubMedGoogle Scholar
  3. 3.
    Corbin J, Strauss A (1990) Grounded Theory Research: procedures, canons, and evaluative criteria. Qualitative sociology 13:3–21CrossRefGoogle Scholar
  4. 4.
    Douglas M (1971) De la souillure: essai sur les notions de pollution et de tabou. F. Maspero, ParisGoogle Scholar
  5. 5.
    Duivenvoorden HJ, Tibboel D, Koot HM, et al (2006) Pain assessment in profound cognitive impaired children using the Checklist Pain Behavior; is item reduction valid? Pain 126:147–54CrossRefPubMedGoogle Scholar
  6. 6.
    Durand G (2003) L’imagination symbolique. Presses universitaires de France, ParisGoogle Scholar
  7. 7.
    Fainzang S (2001) Médicaments et société: le patient, le médecin et l’ordonnance. Presses Universitaires de France, ParisGoogle Scholar
  8. 8.
    Feudtner C, Haney J, Dimmers MA (2003) Spiritual care needs of hospitalized children and their families: a national survey of pastoral care provider’s perceptions. Pediatrics 111:e67–e72CrossRefPubMedGoogle Scholar
  9. 9.
    Frank AW (1995) The wounded storyteller: body, illness, and ethics. The University of Chicago Press, ChicagoGoogle Scholar
  10. 10.
    Goubert L, Vervoort T, Cano A, Crombez G (2009) Catastrophizing about their children’s pain is related to higher parent-child congruency in pain ratings: an experimental investigation. Eur J Pain 13:196–201CrossRefPubMedGoogle Scholar
  11. 11.
    Grauby F (2009) Au cœur de notre corps: récit réaliste et imaginaire du corps dans le discours psychocorporel français. French Cultural Studies 20:351–67CrossRefGoogle Scholar
  12. 12.
    Greenstreet W (2006) From spirituality to coping strategy: making sense of chronic illness. Br J Nurs 15:938–42PubMedGoogle Scholar
  13. 13.
    Kavolis V (1988) Contemporary Moral Cultures and “The Return of the Sacred”. Sociol Anal 49:203–16CrossRefGoogle Scholar
  14. 14.
    Lapalme D (1991). Vers une phénoménologie de la souffrance. Thèse de doctorat, université de MontréalGoogle Scholar
  15. 15.
    Lafontaine C (2008) La société postmortelle. La mort, l’individu et le lien social à l’ère des technosciences:242Google Scholar
  16. 16.
    Le Breton D (1992) Anthropologie du corps et modernité. Presses universitaires de France, ParisGoogle Scholar
  17. 17.
    Lillrank A (2002) The tension between overt talk and covert emotions in illness narratives: transition from clinician to researcher. Cult Med Psychiatry 26:111–27CrossRefPubMedGoogle Scholar
  18. 18.
    Rehm RS, Bradley JF (2005) Normalization in families raising a child who is medically fragile-technology dependent and developmentally delayed. Qual Health Res 15:807–20CrossRefPubMedGoogle Scholar
  19. 19.
    Ricoeur P (1990) Soi-même comme un autre. Éd. du Seuil, ParisGoogle Scholar
  20. 20.
    Ricœur P (1969) Le conflit des interprétations: essais d’herméneutique. Éditions du Seuil, ParisGoogle Scholar
  21. 21.
    Ricœur P (1983) Temps et récit. Éditions du Seuil, ParisGoogle Scholar
  22. 22.
    Ricœur P (1991) Lectures. Éditions du Seuil, ParisGoogle Scholar
  23. 23.
    Sales E (2003) Family burden and quality of life. Qual of Life Res 12:33–41CrossRefGoogle Scholar
  24. 24.
    Snyder P, Pelletier M (eds) (2009) Ceci n’est pas le bonheur. Fides, QuébecGoogle Scholar
  25. 25.
    Taylor C (2007) A secular age. Belknap Press of Harvard University Press, Cambridge, MassGoogle Scholar
  26. 26.
    Velez E, Ramasco M (2006) Meaning of illness and illness representations, crucial factors to integral care. EDTNA-ERCA J 32:81–5PubMedGoogle Scholar
  27. 27.
    Voepel-Lewis T, Malviya S, Tait AR, et al (2008) A comparison of the clinical utility of pain assessment tools for children with cognitive impairment. Anesth Analg 106:72–8CrossRefPubMedGoogle Scholar
  28. 28.
    Wang KK, Barnard A (2008) Caregivers’ experiences at home with a ventilator-dependent child. Qual Health Res 18:501–8CrossRefPubMedGoogle Scholar
  29. 29.
    Weisbuch-Remington M, Mendes WB, Seery MD, Blascovich J (2005) The non-conscious influence of religious symbols in motivated performance situations. Pers Soc Psychol Bull 31:1203–16CrossRefPubMedGoogle Scholar
  30. 30.
    Wilson S (2007) “When you have children, you’re obliged to live”: motherhood, chronic illness and biographical disruption. Sociol Health Illn 29:610–26PubMedCrossRefGoogle Scholar

Copyright information

© Médecine et Hygiène et Springer-Verlag France 2010

Authors and Affiliations

  1. 1.Pédiatre intensivisteCHU de SherbrookeSherbrookeCanada
  2. 2.Département de pédiatrie, faculté de médecine et des sciences de la santéuniversité de SherbrookeSherbrookeCanada
  3. 3.Département d’études religieuses, faculté de théologieuniversité de SherbrookeSherbrookeCanada
  4. 4.Département de philosophie, faculté des lettres et sciences humainesuniversité de SherbrookeSherbrookeCanada
  5. 5.École des sciences infirmières, faculté de médecine et des sciences de la santéuniversité de SherbrookeSherbrookeCanada

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