Commercial Genetic Testing in Mainland China: Social, Financial and Ethical Issues
This paper provides an empirical account of commercial genetic predisposition testing in mainland China, based on interviews with company mangers, regulators and clients, and literature research during fieldwork in mainland China from July to September 2006. This research demonstrates that the commercialization of genetic testing and the lack of adequate regulation have created an environment in which dubious advertising practices and misleading and unprofessional medical advice are commonplace. The consequences of these ethically problematic activities for the users of predictive tests are, as yet, unknown. The paper concludes with a bioethical and social science perspective on the social and ethical issues raised by the dissemination and utilization of genetic testing in mainland China.
KeywordsGenetic screening China Commerce Bioethics Social sciences
- 1.Duncan, R. E. (2004). Predictive genetic testing in young people: When is it appropriate? Child Health, 40, 593–595.Google Scholar
- 2.Marteau, T., & Richards, M. (1996). The troubled helix: Social and psychological implications of the new human genetics. Cambridge: Cambridge University Press.Google Scholar
- 3.Information from government bulletin of National Statistic Bureau on 16th August 2006. Available at: http://finance.people.com.cn/GB/1037/4710759.html. Accessed 4 October 2007.
- 4.Huang, Q. (2006). Test gene, does it like check-up? In: Xinming Zhoukan, 13 Apr.Google Scholar
- 5.Does genetic testing predict 47 diseases? Available online at: http://www.qianlong.com/. 29 November, 2005.
- 7.Ministry of Health P. R. China. Available online: http://www.moh.gov.cn/newshtml/7425.htm. Accessed 2 October 2007.
- 8.Article 18.104.22.168. 11.12 of Measures for the administration of prenatal diagnosis technology (in Chinese: Chanqian Jishu Zhenduan Guanli Banfa, 4,8,9,10,11,12 tiao).Google Scholar
- 9.Rose, N., & Novas, C. (2003). Biological citizenship. In A. Ong & S. Collier (Ed.), Global anthropology (pp. 439–463). London: Blackwell.Google Scholar
- 10.Zhou, W. T. (2006). Fuda company genetic testing is doubtful. Dongfangzhaobao Daily, 9 Apr.Google Scholar
- 11.Be cautious about genetic testing. (2006). Beijing Daily, 16 Feb.Google Scholar
- 12.Chinese Corporation Law Article 59, 60 (Gongsi Fa 59, 60 tiao).Google Scholar
- 13.Genetic fortune-telling. Beijing Technology Daily (Beijing Keji Ribao), 9 Oct, 2005.Google Scholar
- 16.Bulletin of National Statistic Bureau, 27 March 2006. Available online: http://www.xuelang.net/webInfo/xuelang/work/Netmemhot/09242452372.htm. Accessed 3 October 2007.
- 17.The application of Genetic testing. (2005). Jinbao Daily, 29 Nov.Google Scholar
- 18.Template downloadable from: http://south.genomics.org.cn/genetest/template.doc. Accessed 3 October 2007.
- 19.Article 11, International Declaration on Human Genetic Data. Adopted unanimously and by acclamation on 16 October 2003 by the 32 session of the General Conference of UNESCO.Google Scholar