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Implementation of Patient and Family Advisory Councils in Primary Care Practices in a Large, Integrated Health System

  • Anita D. Misra-Hebert
  • Susannah Rose
  • Colleen Clayton
  • Kevin Phipps
  • Scott Dynda
  • Maureen Duffy
  • Julie Rish
Concise Research Reports

INTRODUCTION

The role of patient engagement in healthcare is well recognized.1 While some guidelines exist for development of patient councils,2 and characteristics of high functioning patient advisory councils have been identified around representative patient sample recruitment, facilitation, accountability, and supportive culture,3 implementation of patient and family engagement is not well standardized. There has been interest in patient engagement in healthcare research,4, 5 but there remains a need to describe the process of patient and family involvement in primary care practice including recruitment, goals and expectations, and outcomes of the engagement process. A reporting item tied to reimbursement for The Centers for Medicare and Medicaid Services Comprehensive Primary Care Plus program (CPC+),6(Patient and Caregiver Engagement domain), is that Patient and Family Advisory Councils (PFACs) are created with representation of care providers and patients and families from...

KEY WORDS

primary care patient engagement primary care redesign 

Notes

Funding Information

Dr. Misra-Hebert is supported by an Agency for Healthcare Research and Quality grant K08HS024128. Dr. Rose receives partial salary support from the National Institutes of Health #1R01HG010092-01.

Compliance with Ethical Standards

Conflict of Interest

Dr. Misra-Hebert has received research funding from the Merck Investigators Studies Program and from Novo Nordisk, both unrelated to this work.

Dr. Rose has received honoraria from Siemens Healthineers, unrelated to this report.

All other authors declare no conflicts of interest.

References

  1. 1.
    Patient Engagement.  https://doi.org/10.1377/hpb20130214.898775/full/. Accessed July 5, 2018.
  2. 2.
    Steps to Creating a Patient Safety Advisory Council. http://www.ahrq.gov/professionals/quality-patient-safety/patient-safety-resources/resources/patient-safety-advisory-council/chapter3.html. Published April 1, 2008. Accessed July 5, 2018.
  3. 3.
    Sharma AE, Willard-Grace R, Willis A, et al. “How Can We Talk about Patient-centered Care without Patients at the Table?” Lessons learned from Patient Advisory Councils. J Am Board Fam Med. 2016;29(6):775–784.  https://doi.org/10.3122/jabfm.2016.06.150380 CrossRefPubMedPubMedCentralGoogle Scholar
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    Carman KL, Workman TA. Engaging patients and consumers in research evidence: applying the conceptual model of patient and family engagement. Patient Educ Couns. 2017;100(1):25–29.  https://doi.org/10.1016/j.pec.2016.07.009 CrossRefPubMedPubMedCentralGoogle Scholar
  5. 5.
    Concannon TW, Fuster M, Saunders T, et al. A systematic review of stakeholder engagement in comparative effectiveness and patient-centered outcomes research. J Gen Intern Med. 2014;29(12):1692–1701.  https://doi.org/10.1007/s11606-014-2878-x CrossRefPubMedPubMedCentralGoogle Scholar
  6. 6.
    Comprehensive Primary Care Plus | Center for Medicare & Medicaid Innovation. https://innovation.cms.gov/initiatives/comprehensive-primary-care-plus. Accessed July 5, 2018.

Copyright information

© Society of General Internal Medicine 2018

Authors and Affiliations

  • Anita D. Misra-Hebert
    • 1
  • Susannah Rose
    • 2
  • Colleen Clayton
    • 3
  • Kevin Phipps
    • 2
  • Scott Dynda
    • 4
  • Maureen Duffy
    • 2
  • Julie Rish
    • 2
  1. 1.Department of Internal Medicine and Center for Value-Based Care Research, Medicine Institute Cleveland ClinicClevelandUSA
  2. 2.Office of Patient ExperienceCleveland ClinicClevelandUSA
  3. 3.Department of Family Medicine, Medicine InstituteCleveland ClinicClevelandUSA
  4. 4.Market and Network ServicesCleveland ClinicClevelandUSA

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