Journal of General Internal Medicine

, Volume 25, Supplement 1, pp 62–67 | Cite as

Embracing a Health Services Research Perspective on Personal Health Records: Lessons Learned from the VA My HealtheVet System

  • Kim M. Nazi
  • Timothy P. Hogan
  • Todd H. Wagner
  • D. Keith McInnes
  • Bridget M. Smith
  • David Haggstrom
  • Neale R. Chumbler
  • Allen L. Gifford
  • Kathleen G. Charters
  • Jason J. Saleem
  • Kenneth R. Weingardt
  • Linda F. Fischetti
  • Frances M. Weaver
Perspectives

Abstract

Background

Personal health records (PHRs) are designed to help people manage information about their health. Over the past decade, there has been a proliferation of PHRs, but research regarding their effects on clinical, behavioral, and financial outcomes remains limited. The potential for PHRs to facilitate patient-centered care and health system transformation underscores the importance of embracing a broader perspective on PHR research.

Objective

Drawing from the experiences of VA staff to evaluate the My HealtheVet (MHV) PHR, this article advocates for a health services research perspective on the study of PHR systems.

Methods

We describe an organizing framework and research agenda, and offer insights that have emerged from our ongoing efforts regarding the design of PHR-related studies, the need to address PHR data ownership and consent, and the promotion of effective PHR research collaborations.

Conclusion

These lessons are applicable to other PHR systems and the conduct of PHR research across different organizational contexts.

Key words

personal health records health information health services research PHR 

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Copyright information

© Society of General Internal Medicine 2009

Authors and Affiliations

  • Kim M. Nazi
    • 1
  • Timothy P. Hogan
    • 2
    • 3
    • 4
  • Todd H. Wagner
    • 5
    • 6
  • D. Keith McInnes
    • 7
    • 8
    • 9
  • Bridget M. Smith
    • 2
    • 3
    • 4
    • 10
  • David Haggstrom
    • 11
    • 12
    • 13
    • 14
  • Neale R. Chumbler
    • 12
    • 15
    • 16
  • Allen L. Gifford
    • 7
    • 8
    • 9
    • 17
  • Kathleen G. Charters
    • 18
  • Jason J. Saleem
    • 11
    • 12
    • 13
    • 19
  • Kenneth R. Weingardt
    • 5
    • 6
    • 20
    • 21
  • Linda F. Fischetti
    • 22
  • Frances M. Weaver
    • 2
    • 3
    • 4
    • 10
    • 23
  1. 1.Veterans and Consumers Health Informatics Office, Office of Health Information, Veterans Health AdministrationUS Department of Veterans AffairsWashingtonUSA
  2. 2.Health Services Research and Development Center for Management of Complex Chronic CareUS Department of Veterans AffairsHinesUSA
  3. 3.Spinal Cord Injury Quality Enhancement Research Initiative (QUERI)US Department of Veterans AffairsHinesUSA
  4. 4.Edward J. Hines, Jr. Veterans Affairs Hospital, Veterans Health AdministrationUS Department of Veterans AffairsHinesUSA
  5. 5.Veterans Affairs Palo Alto Healthcare System, Veterans Health AdministrationUS Department of Veterans AffairsPalo AltoUSA
  6. 6.Stanford UniversityStanfordUSA
  7. 7.HIV/Hepatitis Quality Enhancement Research Initiative (QUERI)US Department of Veterans AffairsBedfordUSA
  8. 8.Health Services Research and Development Center for Health Quality Outcomes and Economic ResearchUS Department of Veterans AffairsBedfordUSA
  9. 9.Edith Nourse Rogers Memorial Veterans Hospital, Veterans Health AdministrationUS Department of Veterans AffairsBedfordUSA
  10. 10.Institute for Healthcare StudiesNorthwestern UniversityChicagoUSA
  11. 11.Health Services Research and Development Center on Implementing Evidence-Based PracticeUS Department of Veterans AffairsIndianapolisUSA
  12. 12.Richard L. Roudebush VA Medical CenterVeterans Health AdministrationIndianapolisUSA
  13. 13.University Center for Health Services and Outcomes Research, Regenstrief InstituteIndianapolisUSA
  14. 14.Division of General Internal Medicine and GeriatricsIndiana University Department of MedicineIndianapolisUSA
  15. 15.Stroke Quality Enhancement Research Initiative (QUERI)US Department of Veterans AffairsIndianapolisUSA
  16. 16.Department of Sociology, Indiana University School of Liberal ArtsIndiana University-Purdue University Indianapolis (IUPUI)IndianapolisUSA
  17. 17.Boston University School of Public Health, Boston UniversityBostonUSA
  18. 18.Creative Computing Solutions, Inc.RockvilleUSA
  19. 19.Department of Electrical and Computer EngineeringIndiana University-Purdue University Indianapolis (IUPUI)IndianapolisUSA
  20. 20.Substance Use Disorders Quality Enhancement Research Initiative (QUERI)US Department of Veterans AffairsHoustonUSA
  21. 21.Michael E. DeBakey VA Medical CenterVeterans Health AdministrationHoustonUSA
  22. 22.Chief Health Informatics Office, Office of Health Information, Veterans Health AdministrationUS Department of Veterans AffairsWashingtonUSA
  23. 23.Department of NeurologyNorthwestern UniversityChicagoUSA

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